Hi Lexis honey, your such a sweet heart. Your always giving me support. You have no idea how much it means to me.
Right now I am at my very lowest. I'm supposed to get a temp. procedure done again today and I just don't know how I'm going to stop crying before I get to the Dr.s You know how it is when your trying not to cry but all it takes is one little things to set you off? I'm afraid that will happen today. I always show up to my Dr.s apt. in a cheerful mood, trying to make others laugh but I don't think I can make anyone laugh today.
Hello everyone. I wasn't sure which board to post this on so I picked this one. I'm usually on the Bipolar board but every one there seems to be in such a good mood, I just didn't want to drag them down. I hope this won't drag any of you down either.
I suffer from chronic pain. I have had back pain for a very long time now. Prob.7 yrs or more. I ended up excepting my pain, excepting the fact that I would be in pain every day for the rest of my life. So I adjusted my life style. Then all of a sudden Vulvodynia hit me, Lichen Simplex Chronicus. I've had it for two years now. Constant vulva pain. I can't wear pants and even underwear causes me pain. There is no cure, only treatments. Treatments that don't work. It just seems like there will be no end to my pain. I can't even imagine going through this for another year. Some women have had this for 20 and 30 years. OMG, I don't know what I would do. There has been times that I wish I would just die.
I break down crying off and on and get depressed. I try not to cry in front of my husband because he feels so helpless to do anything. I just feel like there is no hope in sight.
Hello Az, your a very kind person. I appreciate you replying to me.
Ive been going through this for about 6 months, Ive been given different meds but nothing is working. Its only getting worse. I dont know how women can live with this. Its also so hard for me to believe that Dr.s dont know very much about this. They dont know what causes it and they only have a limited number of meds. for it. Its like a crap shoot, I try this med and that med. Its like throwing money in the trash.
Sorry that Im so down, Im usually such a happy person, but I have just had enough.
Hey peeps, Ive been an emotional wreck. Just a total mess. Mostly crying and feeling that there is no end to my health issues. Today my main issue is Lichen Simplex Vulva. Its a thickening of the skin around the outside of my vagina. The entire area hurts, all the way to my anus area as well. Lots and lots of burning and sometimes it feels like I have a cactus down there. I have to plan my day around it, it has control of my life. If Im at a restaurant, Im miserable the entire time because sitting will cause burning. I cant go to a movie theater because I cant sit for that long, cant sit at the computer for long periods, cant go swimming very often because the swim suit is tight which causes pain, being outside causes me to sweat and sweating causes burning, even going to the Dr.s and sitting in the waiting room hurts. I have to sit very unlady like. The entire thing is very depressing.
My sex life has changed big time. Having sex means burning and pain. I have sex about once a week or less. Because of the lack of sex Im afraid that my hubby will find it some where else.
I dont stay in contact with my friends on the bipolar support board like I want to do. I used to spend hours and hours on the board, replying to posts, but now its only a fraction of the time I would like to spend. I dont send out emails like I used to either.Im afraid that my friends will think that I have dumped them or dont care about them like I once had. Im in pain, Im depressed and I cant think straight.
I have an apt. to see my new Gyno tomorrow and I hope that she can come up with another plan. But with every day that goes by, I lose hope.View Thread