The following comment seems to me to indicate very poor outcomes of the procedure. -------------------------------------------------------------------------------------- After the Whipple procedure was introduced, many surgeons were reluctant to perform it because it had a high death rate. As recently as the 1970s, more than 15% of patients died either during the surgery or shortly thereafter. -------------------------------------------------------------------------------------- I do not understand why any doctor would tell you to stop checking your blood glucose. WHAT YOU SAID INDICATES TO ME THAT IT IS TIME TO IMMEDIATELY CHECK THE CREDENTIALS OF YOUR DOCTOR, OR JUST FIND A DOCTOR THAT HAS A SPECIALTY IN TREATING TYPE 1 DIABETICS. ESPECIALLY SINCE YOUR A1C WAS 13.8%.
That number is way out of bounds for anyone. Normal A1c readings should be lurking around 6.0%. My last A1C (subsequent to the one I previously listed) is 6.8%...and that is what my Doctor wanted to see, because my Blood Glucose tends to fall precipitously when it crosses the threshold on the way down, of 70mg/dl. I have gone to bed with a Blood Glucose level of 230mg/dl and got up 6 hours later with a Blood Glucose of 42mg/dl. Consequently, I now have a snack at bedtime regardless. Type 1 diabetes is never to be taken lightly. Get a team together that is on your side. The doctors/nurses/educators should include, but not be limited to:
· Family Doctor · Diabetes Educator · Diabetes Dietician · Foot & Ankle Specialist · Eye Doctor specializing in Diabetic disorders · Nursing assistant, such as provided by [Wellmark Blueshield Access> · Cardiologist · Pneumotherapist, if you have any lung impairment View Thread
I also am a Type 1 and when I was diagnosed, we still were resharpening our needles, using Test-tape, boiling our syringes and using Pork or Beef Insulin. Currently I am 71, with a BMI of 24.22, Average Blood Glucose of <140. My last A1C was 6.5. I had been told I could expect to see my 35th birthday. I asked my doctor how aggressively we could treat my Diabetes. My eyesight is 20/30, very slight macular degeneration and minimal Peripheral Neuropathy. My Diabetes-team recommended an A1C of 7.0 due to having too many Low readings. Stay busy, do not vegetate in front of the TV. I do Volunteer Children's Ministry 4 days a week. Yes...I know that lowering an A1C is a great choice. Follow your Diabetes-team's advice, eat right, exercise as you are able, check your BMI weekly...(on-line BMI calculator) and that will tell you weather you are loosing weight correctly or not. You may want to consider foods with more Fiber, and less red meat. Also, keep your Potassium level up (banana's are a good choice as long as you keep your carbs down and remember that 2 apples = 1 banana. Good Luck to you...and get going with a Diabetic Team. Your Doctor, Podiatrist, Eye Specialist, Gastroenterologist, Dietician...and any others your Doctor recommends. Each case of Diabetes is unique, and remember you are the reason for someone's smile!View Thread
Thanks for the update! I checked with my doctor, and you are spot on! I also checked the website you mentioned, and I am impressed to the point that I will be doing further research into the project. As the CGM becomes accurate to an acceptable level, this should become available to anyone that has diabetes, either Type 1 or 2. You have made my day !!!View Thread
You are correct, and thank you. The only info I had on the Continuous Glucose Monitor came from my personal physician. He informed me, almost a year ago about a pilot program in a hospital setting that used the signal from a CGM to reprogram change the setting of an insulin pump. He has not mentioned the program since that comment was made...so I am making an assumption. [the program may not have proved to be practical>.
I am a type 1, beginning with Type 2, which is better diagnosed as Latent autoimmune diabetes in adults (LADA). No you are not a "Ginny Pig". So far, even at age 71, I have good eyesight, most of the things that can go wrong in my body, are under good control with Rx Medications. I have hyper-unawareness unless my blood glucose exceeds 400. I have good hypo-awareness, and begin noticing a problem when blood glucose falls below 70. As I mentioned earlier, I was originally diagnosed with Type 2 diabetes at approx. 26 years of age. Three years later, my medication was no longer controlling my blood glucose, and I was diagnosed with Type 1. In actuality, I should have been diagnosed as LADA.
Thank you again for the info about CGM. In addition to Diabetes, I no longer produce Adrenalin, my Thyroid gland is not working properly, I have neuropathy that has minimally affected my feet to knee level. I have one nerve in the lower central portion of my heart that does not always fire. I also have COPD, the Bronchitis Type, since I have never smoked. I have a good life, relatively well controlled, and find great pleasure in doing Volunteer work rather than vegetating in front of the TV.
I test my blood glucose 6 to 7 times a day, I use Humalog insulin with a sliding scale, and Lantus insulin for basal control. I use a nebulizer and a rescue inhaler for my COPD, and sit down to rest when the heart acts up, which is not often. Life is good when staying as active as possible is part of the routine!
I started as a type 2 diabetic 46 years ago. Two years later, I was diagnosed as a type 1 diabetic. In all those years I have never heard of anyone being diagnosed as a combination of Type 2 and Type 1, or as you call it...a Type 3 diabetic. I have struggled with my a1c, however it has been a struggle to increase it more than decrease it until a few months ago. I am 71 years old. For the years a1c tests have been available, I kept mine from 5.8 to 6.2. My family doctor told me, that at my age, he wanted to see it a bit higher. I gradually increased it to 7.0 with the result that I have more energy. However, because of COPD I still run out of breath after a walk of 150 feet. I am volunteering Children's Ministry in settings with at least one other adult, sometimes more depending on the number of children. Children relate to me as a grandfather figure. I need to remain healthy, and I watch my diet and journal all my medications. Currently I use Humalog (Sliding Scale) and Lantus 28 units twice a day. It has gotten to the point that my blood sugars run low in the AM - 50 to 70, and super high in the PM, 200 - 400. Meals = 1200 calories / day. B=450, L=350, and D=400. If my blood sugar is below 180 at bedtime, I will snack 80-100 high protein calories. OK...I'm questioning your diagnosis, and requesting suggestions.View Thread
Lyle, Who determined that you are both Type 1 and Type 2 ? I began as a Type 2 46 years ago, and after a couple of years, I was upgraded to Type 1, which by the way is much easier to control than Type 2. I have never heard of anyone...ever being classified as both Type 1 and Type 2. I think it's time you went to a credible Diabetic Specialist. Also, there is a brand new system out now, that uses a patch sticking to your body, usually an upper arm, that can continuously monitor your blood sugar for 5 days before it needs to be replaced. It makes appropriate changes of the operation to an insulin pump continuously. Once the price comes down I'm going for that. Type 1 diabetes control is like a 3 seat teeter totter. Insulin Dose / Food Intake / Exercise. I happen to be 70 years old. Originally I was told that I might see my 35th birthday. I went back to my family doctor and asked just how aggressively diabetes could be treated. As you can already tell, it went well. My last A1C was 7.2 and NO, 14 is awful, 9 is still too high. Unfortunately, I have a few physical limitations now, so my exercising is very limited, and that caused a horrifying swing today...47 one time, 515 another time. I am on a sliding scale that a Diabetic Trainer and I worked out together. I am back to 115 as I'm writing this. About weight. One year ago, at 5 ft. 9 in. tall, I was at 183.5 lbs. in my skivvies. Today by going slow and being almost paranoid about it, I have dropped to 168 lbs. I feel better but COPD still keeps me on the handy-capped list.
Please run from Cigarettes, Alcohol, Fatty foods and Red Meat. Actually, the human body is harshly affected by meat products of any kind, and no I'm not a 7th Day Adventist, however their are plenty of ways to get correct protein, which is a must, while on a complete vegetarian diet. You can get some very good food idea's watching the food preparation segments on cable channel 3ABN. Please check with a good Primary Care Physician and a Dietitian before changing your diet. Through proper control and care, you may live a long and productive life. You can find me on Facebook as "Papa Tom" if you have questions you would rather talk to a successful Diabetic about. ALWAYS verify any changes you want to make in your Diabetes Plan and please get a team of Doctors, Specialists, Dietitians, Dentists, Dental Extractionist's, Eye Specialists etc. and put all of them in your cell phone and/or your home phone, if you can program it. I can not tell you how important that is.
Never go anywhere without your testing equipment and a snack that does not need refrigeration. Your body will inform you of what is going on, once you have been trained to understand all the symptoms of this condition. I will keep you in my mind and prayers. It couldn't hurt to have God in your corner! Papa Tom.View Thread
Q, Hi, what time do you take your Lantus? A. Just prior to my evening meal. Q. If you are high as the day wears on, as you seem to be, and you correct with a bedtime bolus of Humalog you may need to back off on that dose to prevent early AM lows. A. My correction dose of Humalog at bedtime, is 1/2 the normal correction dose during the day. Q. This happens to some people with the frequent use if the same, convenient injection sites. A. I rotate injection sites constantly. This was one of the first things I was taught upon switching from pills to Insulin. Q. Medtronic has a device called the IPro... A. My GP doctor was one of the first to set up a program using that at University of Iowa Hospitals and Clinics. We had a short discussion about that a couple of months ago. I'll ask him about it again, but there is one problem here. Part of what keeps me from being a retired couch potato, is my Volunteer Childcare work. The median age groups I work with is 2 to 4 years of age. This age is very inquisitive, and I fear that it would be too easy for them to be detrimental to the equipment. At this point, I don't know whether my insurance would even cover that type of equipment. I am usually in a rocking chair tending to the children with separation anxiety, or with disciplinary issues. (Time outs with discussion, one minute for each year of their age.)
Old School...yes, At the beginning I was resharpening needles, boiling glass syringes and using "test tape" to approximate my blood sugar levels.
I am leery of using a pump because of having 2 grandchildren and their Mom living with us, and I do Volunteer Childcare 3 to 4 days a week for 3 to 4 hours each day. The children are very curious and could easily pull the canulous (sp) out.
I'm taking 45 units of Lantus along with all other meds, including Humalog with my evening meal.
Corrections at bedtime are actually 1/2 of the normal meal time corrections. Yes I do have a small snack at bedtime...usually 100 calories. Of greater concern is my spikes before supper. [200-390> and High sugar upon retiring. [240>
Breakfast: 17 units
Lunch 9 units correction - (possibly not enough)
Evening 7 units correction - (possibly not enough)
Bedtime - correction @ 1/2 normal correction 100 calories.
I am 70 years old, and have had Type 1 Diabetes for 44 years. I have been treating my Diabetes aggressively, because I was told by two doctors that I might see my 35th birthday.
I am using Humalog on a sliding scale prior to each meal, and 45 units of Lantus per day. I have a problem that I can not get a handle on.
Low sugar before breakfast. [40s> Normal sugar before lunch. [80s> High sugar before supper. [200-390> High sugar upon retiring. [240> Last A1C was 7.1 My doctor was concerned that 6.0 that I had kept it at was beginning to be too low, leaving my brain with less than desired blood flow.
Exercise other than walking short distances is not something my Doctor wants to see me doing.
I have only a few tiny seepage points in the Macula in my eyes. However, My eye specialist says that is not a concern. I am corrected to 20/30 and I have lens implants in both eyes due to cataract removal.
Total calories per day = 1,400. If my blood sugar upon retiring is less that 200, I bottom out in the morning.
Other items that may affect proper control. [All are treated medically> Thyroid gland has gone south. My gall bladder has been removed. COPD Anxiety Arthritis in Hips, knees and hands. Easily contract Sinus infections Dry Mouth Ulcer on left foot, nearly healed...has taken 14 months of treatment. Heart angiogram - No blockages, Proper size. however the lower central nerve misfires on occasion. Must sit 5-10 minutes till recovery.
I carry my meds and testing equipment in a briefcase along with my journal. My blood sugar meter is a One Touch VerioIQ.
I check my Blood Pressure twice a day or more if my heart acts up. My Cardiologist says my heart does not require a pacemaker at this time.
Is their any thing else a man of my age can do? Specifically, concerning my Blood Glucose readings. I would like to see my Grandchildren become adults before I pass. They are 8, 6, 5, 3 & 20 Months. The 3 year old has CP and Scoliosis.View Thread
OK...I made a mistake on item 1 of my previous report. Lispro is HUMALOG, a fast acting insulin which needs to be taken within 15 minutes of eating a meal.
The long acting insulin that I indicated was "Lispro" is made in Germany, and is called "Lantus."
Do not mix these insulins together. The action of Lantus is not stable if it has any amount of any other insulin in it. This is critical. Even using one type first, and drawing Lantus up later in the same syringe will contaminate Lantus making it unstable.View Thread