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Reply: type 1 diabetic 17yrs and still cant control it

I thank you for your contribution to my(my and everyone elses)cause,my roommates "voted me...

Posted by Digm70

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Reply: Need some advice

I didnt crack(go over)200 bsl for the day

Posted by Digm70

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Reply: Need some advice

Well I think thats good if that scared you this is a gorefest.Went in to eye Dr like I...

Posted by Digm70

Well I think thats good

if that scared you this is a gorefest.Went in to eye Dr like I said earlier and I had never heard a Dr use the "F" word before,but this slipped out before he thought.We did the eye dilated thing he shined the light in the right eye(mind you this is the first time he's ever looked in there)he was like WTF and he pulled back then went back for another look-see he's like we have some serious issues here,laser surgery will not work we are gonna have to replace it with a plastic insert and since you have seizures you are gonna have to be AWAKE while we do this,extremely doped up but awake.I almost tossed my cookies right there(I'm not much on things like that,very weak stomach).Left has cataracts now stage 2 on the 1-5 scale 5 being the worst.Glaucoma has come done to a 13 in left and 12 in right(thank you medical marijauna,luetin)gave me a prescript for zithromax to clear up an infection,also with some eye drops.With the help from some advice from everyone I didnt crack(unlike the right eye I have extremely cracked,like a broken windshield) 200 all day highest number was 163.Can anyone explain this,I checked my numbers 20 mins ago(10:30 pm),and I'm at 44 but I feel totally fine?Besides a touch of 80's "valley girl" speak I mean totally to the max,gag me with a spoon if your under 30-35 years of age you might not know what I'm talking about(yes I'm eating,I'm eating and drinking tons of water working on 5th 52oz ampm cup of brita filtered water for the day)78 and stablizing I'll check in an hour and see were i'm at.Thats what I mean some times I'm at 60 and I'm jellylegged like this morning,other times 38 and I feel fine doesn't compute.I dont want everyone to think I dont take this seriously cause I do I'm sick of being depressed so I bring a little comedy to the mix.My reg Dr didnt realize I didnt know how to determine my insulin useage he thought/assume I knew and didnt want to work at it.I was like wtf I told'em countless times I've had no insurance to afford reg Drs' visits or specialist plus my numbers are totally outta wack what would you think plus everytime I ask what to take I get the standard "well everyone is different,there're different variables blah,blah,blah"I'm like I understand that but at least give me something to work with.(To quote Dr Evil"will someone throw me a fricken bone here")So now we have a endo/nutr type person I get to consult with.I think the reason he thought I didnt care was my roommate/caretaker works at the clinic I go to and he's probably hearing her b@#ch about me and figured I dont care,she's been upset about my low BSL episodes.To change the subject does anyone know what a ketone is?Have a good night.Digm70View Thread

Posted byDigm70

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Reply: Feelings of anger/loneliness

Do I know how you feel .......HELL YES.Nutrijoy is spot on and so are you.You have to deal...

Posted by Digm70

Do I know how you feel .......HELL YES.Nutrijoy is spot on and so are you.You have to deal with all aspects when you deal with a disease like this.Family/friends are there to be nosey and of course the natural reaction is to go into defense mode,close doors,become a hermit.I'm the only one in my family going back 60some years that has it,so of course with me I was like WHY ME?,WHAT DID I DO TO DESERVE THIS?My brother(older)was the jerk,did drugs,skip school,got poor grades why not him(my attitude towards my brother has since changed)plus I would now never wish this on anyone even my worst enemy).Since I was a driver(the only one with a perfect driving record I might add)and was responsible for upto 4 people at some times as well as many more on the road,I had a simple vow anyone who wanted to know my BSL if I was driving just ask and I would show you right there.This I found helped two fold (if not more)it reassured all passengers that I was ok and a reference point if something went"wrong"later(i.e. low blood sugar("well at 2pm he was at 147 he showed me on his meter" and its 4:30 now he's at 46).I admit I'm terrible at controlling my BSL that was the title of my first blog,type 1 diabetic for 17 yrs and still cant control it.Like all of us we have good days and bad(for some its weeks,months,years good for them(I'm stickin my tongue out for the people that are good,envious hhhmph)but we keep fighting.I have been depressed(still am)about it but I know the reason why my friends are nosey is because they CARE.Sure its intrusive but look at the other side of the coin,what if they didnt ask.My friends who I live with(they wont let me live on my own)they have"saved me" countless times 22 low BSL(since June)and countless seizures(there's nothing like waking up with a iv in your arm garbled radio transmission"42yr old male unresponsive"soaked with sweat paramedics over you asking the same-ole-questions"do you know where you are""do you know your name")I feel I let everyone down,friends have to miss work or sleep,firetrucks and paramedics blocking the street,nieghbors all out inquiring whats going on,so my mission is to get to the point(and stay there)where I dont give them a reason to ask only if in casual conversation.One of the things I like about these blogs is there is always someone worse than you ( not that,thats a good thing)(feel sorry for that person if they're worse than ME,YIKES)or can relate with you on topics and you can give feedback or read others.I'm not half full or half empty...I'm the get a cup that fits I'll do the extra dishes person.Cause I'm a bubblegum chewing,a@@kicker and I'm all outta bubblegum.So watch out diabetes I'm coming for ya.Good luck to you.Digm70View Thread

Posted byDigm70

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Reply: Need some advice

5:30 in the a.m. here fasting sugars 58 alittle wobble in the legs but can walk and type...

Posted by Digm70

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Reply: type 1 diabetic 17yrs and still cant control it

I wont bother you with all the hub-bub you can read my messages through Nutrijoy and...

Posted by Digm70

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Reply: type 1 diabetic 17yrs and still cant control it

Thanks for the response I attached my response to all you guys who gave me info to...

Posted by Digm70

Thanks for the response I attached my response to all you guys who gave me info to MrsCora.Also thanks for the links and freebies extremely helpful.I dont eat like I described all the time esp now,cant really go anywhere.I use to walk a little each day from just a couple of blocks to now about a 1-3 miles each day(thats there and back combined)at different times each day(usually because of weather damn Seattle rain)so I'm not a couch potato.At 6ft and 180lbs I'm actually less in weight and waist size(242lbs and 34inch waist at 18,180lbs and 27in at 42)than high school.As for the not eating sometimes I'm so depressed I cant eat,even without eating I would throw-up or so nauseated I cant eat.Depressed cause I cant control or I see how my friends have that is he going to have an incident tonight look on their faces.Its the same when I would work and my co-workers wouldnt want to work with me for fear of working with the "diabetic".I'm giving diabetics a bad rap,but I know with control I can avoid these fears but even when I had a little better control I would still have an hypo incident and as soon as that happened everyones' thought processes changed.Worked at a company for 3yrs had no incidents for 1st 2 of those yrs(no low sugars)into the 3rd year had a low blood sugar event and everyones attitude changed I was avoided like I had the plague.Ironic I never missed a day of work in fact I had only missed 6 days of work total in 17yrs.The other healthy workers missed more time in one year go figure.I dont blame them,scares the hell outta me,lack of education on their part and I tried to explain to them and told them to look up stuff and educated themselves on diabetes(advice I should've followed up on as well).Even though some co-workers did and understood a little better I still was treated differently not in your face different but different never-the-less which led to many "oh you messed up this so we're gonna have to let you go" "since this is your 3rd offense" written documents,when other employees I found out much later were excused from this with much worse offenses.It's like I was late for work by 3mins cause of traffic or a accident write up,didnt clean out the van well enough write up,things like that 3rd write up sorry your gone got a paper trail to justify it.No un-joyment dont let the door hit you on the way out.Its like I've alway said this is something I wouldn't wish on my worst enemy.The reason why I don't have any children for fear I may pass it on to them.Hence probably the root of my depression.I know it's not all doom and gloom but I really do wish(and dont think I'm suicidal)if it is going to take me then do it quickly and with less pain than what I'm experiencing now esp with friends/family.I know they are there and show great support and understanding but it really hard on them as well and I really am trying to work this out but there are times when I do give up and give in to my "dark side of the force".Its like well I've been having low blood sugars(there goes the paramedics again) the iv in the arm the"do you know where you are?" " what your names is" I figure if I'm going to damage to myself might as well enjoy myself and eat.Thats the mentallity I SOMETIMES have and truthfully after having a MONSTER MEAL I feel alot better about myself usually followed with a nice dose of insulin and after those monster meals I've NEVER had a low blood-sugar usually drop to about 150-225 range go figure and thats with guess work.Like I said not trying to be doom and gloom but thats my way of thinking and I must stress this is sometimes usually after a series of hypo.I thank you guys for all the advice and knowledge and hopefully I'll be able to apply this in my everyday life,and lifestyle changes.Thanks once again Digm70View Thread

Posted byDigm70

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Reply: type 1 diabetic 17yrs and still cant control it

Thanks for the response,as for the points you brought up I dont have the slightest idea.I...

Posted by Digm70

Thanks for the response,as for the points you brought up I dont have the slightest idea.I haven't not been educated to these points.Insulin to carb ratio,sensitivity factor,cant test as much as I would like,on state assit and medical and they will cover only 50 test stips per month(what a joke)I only get $197 a month of which rent is $110(thank you roommates/friends).I'm on a "R" and Lantus regime(insurance wont cover the pen/solostar just the vial) sliding scale on the insulin but no set amount for "R"(which I think is your point), Lantus is now at 30 units of which I take at 8pm everyday.Dont see an endo/nutr for meal planning,cant drive due to license taken away (blindness)and with roomies at work and dealing with my issues cant take anymore time off to drive me to appointments.I walk 6 miles to my Dr's appointments(so at least I get a little exercise when I have appointments LOL)There is no readily accessible Diabetic clinics around my area everything is pretty far to walk(I shouldnt be walking as far as I do right now the neuropathy is killing me)I will look into the books that you and other people have responded with and I have been looking at various websites(I love the term "looking" esp with me,keeping the levity up LOL)That seems to be at the core of my issues is the basal rate, I'll work with my PCP and see if we can cut through some of this BS red tape(not blood sugar,the other BS) and see if the insurance company will cover a specialist. Its weird havent had insurance most of my life and since my onset and now that I have it I'm going through so much "stuff"(like to use a different "S" word here but lets keep this "G" or at least tv14 here)and in fighting between this,that and the other thing its almost a joke.Trying to get S.S.I/Disability been fighting with them for 4 months had to finally get a attorney had to quit my job due to seizures(Dr's orders I was a driver but my license was taken away from me so I couldnt get un-enjoyment they (un-enjoyment) told me to go to S.S.I/Dis and state assit.I was before my exit from work using walmarts' side kick tester and Seamar clinics to get my meds(the pay adjusted sliding scale with certain Dr's not to many speciallists)like I said earlier hit and miss(hadnt had a A1C in almost 2yrs until last June)I'm at the point now to where I'm "chasing" my numbers because of the low blood sugar levels I've been having I know thats not right but with limited resouces I would rather chase than what has been happening.I never take insulin w/o eating or checking my blood sugar levels I just dont know what to take and get confused when I go to bed at 10:30pm at 93 and wake up at 7am and I'm at 392 when I last ate at 5:30pm.I have heard about the "dawn effect" and know the liver dumps carbs(at night)but even that was hit and miss some times I'm high other times right on and at worse extremely low this has been with Lantus even(started Lantus at 20 units and now progressively up to 30 units)it still is a rollercoaster.I've looked up websites and webMD for meal planning and what to avoid as well as what to eat(high fiber foods and wheat grains,exchanges,carb in take,3 main meal plans and snacks throughout the day,low sodium,lots of water and I mean lots.Cut out lots of things including fast foods and processed food(ie tv dinners,breaded meats, sugar based cereals)and more importantly what I do eat fish,skinless chicken,and pork not some much of red meat but a little,tons of freebies like carrots and celery,salad with lite virgin olive oil based dressing and apples those I put in my snack menu.Yes education is key and I try to learn as much as possible but some of the brain damage I have already suffered I think is hindering me.I have to keep refering to your post to remember what you guys typed in but THANK YOU Mrs Cora01,Nutrijoy and Auriga1.I will look into the links provided cant really buy any books and there isn't a library for miles around here.THANK YOU guys once again DIGM70View Thread

Posted byDigm70

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Reply: wildly swinging sugar levels

I hear you I'm the same way just a little different.I understand the depression as well.To...

Posted by Digm70

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type 1 diabetic 17yrs and still cant control it

I first have to say I have recently got insurance(from the state)I havent had insurance...

Posted by Digm70

I first have to say I have recently got insurance(from the state)I havent had insurance since my onset.Everything has been OTC meds and from clinics with pay adjusted fees.I have had diabetes for 17yrs and I'm only partially better at controling it than when diagnosed.Actually I'm alot better than when diagnosed a record at Edmonds hospital in Wa my blood sugar levels were off the charts 1666.I had lost weight,very "hollow" looking I thought I messed around with the wrong girl.I had gone from 242lbs to 157lbs in a little under a year with no diets constantly peeing and constantly drinking(little did I know the drinking of reg Pepsi was adding to the problem).After my diagnoses of diabetes I've been trying to deal with it,hit and miss to say the least.I use the word "crash" for blood sugar level drop(anything under 60 for me)followed by a visit from paramedics.I'm blind in my rt eye(cataracts,retinopathy)constantly have seizures(esp with crashes)but now they are independant(occuring on their own)I know that everyone is different and injectable insulin will affect people differently but it would be nice if I had some sort of a guide to when bsl are this then take this amount.Meal planning for me is a joke I sometimes dont eat or eat WAY TO MUCH(dont take me to an A.Y.C.E. I'll eat everything including your plate).I'm 42,6ft'er,and180lbs my last A1C was 9.4 down from 10.6 in Sept and 14.8 in June(yes it is coming down but with no less than 28 crashes and 17 seizures since June)so no it is not under control.My question? Am I alone in this?Is this "normal" when trying to control bsl?Is there going to be unrepairable damage?My friends have been caring for me and their patience is wearing thin to many paramedic visits after crashes(it scares the hell outta them)my most recent crashes were today about 2 hrs ago and thursday,today 27 and on thursday 33 bsl.I just started taking GABAPENTIN for neuropathy and seizures.I have been a little down lately cause I cant control my diabetes and it is hitting hard on my friends(missing work to take care of me etc.)Any advice on getting a grip on this?Thanks Digm70View Thread

Posted byDigm70

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