JesseCorlett :- Digestive Disorders Community -: Support Group

Hi Angela sorry to hear about the pain you are going through physically and mentally. ...

Hi Angela sorry to hear about the pain you are going through physically and mentally.

I am not an expert but I can offer you information from my past experiences this year.

I roughly went through all the same symptoms as you described.

Abdominal Pain
Nausea from pain
Lack of sleep
Vomitting
Diarrhea and bloody stools
No appetite

This happened for roughly a year for me and just kept getting more severe and severe until i went to my doctors and they ordered a ultrasound on my abdomin which showed a flare in my ilium (last section of small intestines).

I had to get a CT scan after that which is kinda like an x ray, basically you get a needle and hold your breathe while the machine is focused on your body.

The results came back and i had some sort of ilitis which happened to be Crohns disease which is an inflamatory bowel disease.

Basically the brain doesn't recognize a part of your body and tries to fight it which causes that part of your body to flare up and in most cases its the ilium (small intestine), but can also range from the throat down too your bowels in crohns disease.

You may have a small flare up which is slowly increasing in your intestines to be a worse flare up, hence the pain from the food passing through while its inflamed.

This may be causing the bloody stools - diarhoea and constapation.

When i went to my doctor with all these symptons she had no idea what it could be and so she ordered me to see the radiologists first to get some scans. I highly recomend talking to a doctor about your symptoms and asking them if it could be illitis, crohns disease or any other Inflamtor Bowel Disease, then going on from there.

If it gets really bad best bet is the emergency at the hospital. But then again im not from the states or anything and im in Australia so health care is free in public hospitals. So you may have to dip into some sort of funds, but i would get it checked before it gets worse.

my case I left my run late and dealt through the pain only to go to the emergency and getting surgery on my ilium, which sucked.

Good Luck!View Thread

Posted byJesseCorlett

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New Member (Introduction story and friendly hello...

Hey everyone my name is Jesse I am 22 and live in Austalia, I just recently got...

Posted by JesseCorlett

Hey everyone my name is Jesse I am 22 and live in Austalia, I just recently got diagnosed with Crohn's disease October - November this year 2012.

I just wanted to introduce myself to you all since I have read posts about all your storys and get the sense of friendlyness and understanding from all the people in the same boat as us and wanted to join the ranks in this helpful community.

My Crohn's story basically started early 2012 when i felt constantly weak stomached and barely had an appetite, I would put off going out with friends and when ever I was around them they would always tell me too man up and come party or stop acting like your sick with a little stomache ache.

On the family side of this, they just thought I was depressed and kept telling me to get councelling.

By the time July came I was getting the most chronic abdominal pain which turns out was my ileum, I couldn't eat at all around this time, constantly tried to sleep but failed through pain and had a huge lack of energy and motivation. I lived like this until late October.

Late October came and i had lost just over 12 kg since July (26 pounds I believe) my face was as white as a ghost and extremely gaunt, my ribcage poked out and i basically looked anorexic at a weight of 48 kg (105 pounds). I started feeling dizzy all the time and started throwing up, i had constant diarhoea which had blood in it.

At the time of all this my girlfriend of 2 years who I lived with also dumped me because I became too dull for her which just made me feel the loneliest I had ever been. Finally I decided to go to the emergency at the local public hospital after spewing up and passing out on the ground of my apartment.

I was in hospital for 2 weeks, turns out my ileum had severe ulcerations, scar tissue and severe flaring. I had 3 teams of doctors coming and seeing me within my hospital stay which included the medical team, gastrologists and the surgeons started seeing me after my ileum was taken out via keyhole surgery.

Also whilst in hospital for the 2 weeks I had an emergency CT scan done at night after I had a huge spasm breakout where i started sweated prefusely and shaking nonstop with a heart rate of 170bpm. The CT scan showed a small infection in my ileum called bacilli I believe. I was started on a drug called Piptaz to get rid of this.

I then had a Endoscopy and Colonoscopy which finally made the diagnosis of Crohn's Disease a few days later I had surgery to remove my ileum via keyhole surgery. After the surgery was done there was a lot of intense pain though i had a button to push for morfein which was great! though a blood vessel had broken and i had chronic blood diarhoea (sorry if this is graphic) and had 6 blood transfusions in two days to get my hemoglobin levels stable (I can barely remember these two days since I was under borderline rating in HB level - hemoglobin).

I got released out of hospital a month ago today with the drug Mercaptopurine which breaks down in the body and creates 6mp i believe, the hospital pharamacist also gave me vitamin D supplements called Cholecalciferol and Iron supplements called Ferrous Sulfate.

I am so happy to be in remission at the moment and to feel normal after this torturous year of pain, though i feel so stupid for not going and seeing the hospital earlier.

At the moment I am on a high protein/high energy diet to recover some of the weight I had lost and I have put 6 kgs back on (13 pounds).
If i get a flare up i am to go on a low fibre diet.

Anyway I have gotten way too carried away with this behemoth story when really I just wanted to say hello to all of you who read this and who understand Crohn's or any other Inflamatory Bowel Disease IBD.

I feel your pain and am here to talk with if you would like because i know how isolated and alone you can feel.View Thread

Posted byJesseCorlett

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