Hope you could help me finding out what my options are. Anything that comes into your mind, please post. To me this is end of the road, so anything is going to help! Sorry for long post ...
Had fundo twice, still suffering. Daily life like 50%, social life bare minimum.
Relufx problems began during my mid 20s. As with many others suffering from reflux, I've experienced pain and discomfort while having meals, after eating, even with not eating at all my stomach would rebel and moan for now obvious reason. Sound seemed both grotesque and funny (like slapstick movies).
Disease put my social life to a halt. No going out. Pain instead, problems with digestion and bad breath (like acid and rotten meat). In such state, I've been an unbearable guest with any kind of event.
After things got worse on its own, and I've woke up in my puke in the middle of the night, surgery was acknowledged. (Antacids where both expensive and useless, plethora of side effects, made my life worthless!) Just to be clear: pain, bad breath and lots of side effects ... never again!
Finally surgery (Nissen fundoplication late 20's, hiatus hernia fixed during surgery).
After first surgery, pain was pretty much gone, I could live like 50% of my life, no pills, no midnight puke, yet I still could not eat properly and reflux was still there with bad breath and upset stomach / belly (better than before surgery though!)
Re-fundoplication just weeks ago, appears the first Nissen fundo had loosened, resulting in 180Â°. Fixed "bad" fundoplication, now floppy Nissen-Rossetti 360Â°. Now in early 30's, fundo twice, problems persist:
Bad breath is that one issue that makes my life worthless (no job, no girl / sexuality, no sports, hardly any going out, not that I could enjoy it at least ...). Pain? HUH! Bring it on! Won't stop me. If I'd still feel that much in my chest (nerve cramped?). Issue got better, but not gone.
Eating (calories!) became more like planning and logistics, I need to eat fast food and sweets like people get really jealous why can that guy eat crap like that and loose weight! Reduced stomach volume.
Everything seems to be OK, until I eat or try to move more than average, lift stuff, laugh or cough (!), bending down, banter / girls, do sports, chores, fool around (sitting at a desk and typing this hardly causes problems, say playing basketball would)
Whatever I do that could be considered living and moving and fun, even after fundo twice, as soon as I try, contents of my stomach still comes back, causes little pain, but bad breath and discomfort. Sometimes food will not go all the way down. Thus, no social life. No life at all. Just sit and wait the day to pass. Read more books. Boring. Useless. A cripple. F... up. Worthless. Sit and wait. Talent wasted. Life wasted. Like open air jail, go anywhere, don't do anything. Sit, wait, hope, don't move.
Doc says to wait, but really ... that's what I've been told like 7 years. I am tired of that.
Please let me know what comes into your mind, I need to know how to go on. You are welcome to share your story and thoughts. Thank you!View Thread