Joined: 07/17/2014
My Story:
I do have many other health issues I am dealing with besides my type 2 diabetes and Lilly my permanent ileostomy.

I have been diagnosed with the following: Lupus anticoagulant w/antiphospholipid syndrome. Raynaud's phenomenon. Kidney dysfunction (stone maker). Type 2 diabetes (in remission controlled by diet alone). PFO (hole in my heart). PE (pulmonary emboli) Had 6 TIA's (mini strokes). Exercise induced PH (Pulmonary Hypertension). Bronchiectasis (lung disease). Had my entire thyroid removed but Hashimoto's Thyroiditis still remains, I have spinal and cervical stenosis, 2 total right knee replacements (17 yrs. apart). Esophageal dysmotility, LVDD, POTS (autonomic dysfunction). Sleep disorder w/ brain arousal's and periodic limb movement disorder (PLMD), Fibromyalgia. due to my autonomic dysfunction I have a neurogenic bladder, PFD and venous insufficiency in both lower legs. Generalized Intestinal Dysmotility (affecting my entire GI system).

I have recently been diagnosed with chronic iron deficiency anemia. For which I now have to have B-12 shots every month and iron infusions every 6 months. I also have osteoporosis which I take FORTEO.

I also have RSD (Reflex Sympathetic Disorder). I am a 20 year breast cancer survivor. June 2011 had a 7 vertebrae neck fusion - 2 rods and 10 screws held my neck together. 4 surgeries later Sept. 2012 all hardware had been removed and my neck is completely fused together my neck does not move in any direction.

The main reason for coming here is I knew I needed an permanent ileostomy, after having a subtotal colectomy in May 2010. They removed all about 10" of my colon. Was diagnosed with pan-colonic hypo-motility issues for years. Many meds and treatments nothing worked. Then developed small bowel bacterial overgrowth, severe distention of small bowel and a stricture at the junction where the small bowel and colon were attached. To let people know that no matter what they may face all things are possible.

According to hospital records in my 57 years of life I have had over 64 surgeries to put me back together.

I am a bear collector. I have bears that are 1/4" to 3ft tall. Many are collectibles, some are stuffed bears others just sit on shelves. I have about 150 bears and all of them are gifts.

I am also a Rose collector. I had my own floral business called Artistic Designs. I used to be the full-time gardener at my church and that is where I fell in love with the Rose. I believe it is God's autograph to mankind, the perfect flower with thorns representing all the trials and tribulations we go through.

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Reply: Unknown condition for 5 years now
Hi, a small bowel follow through is a test that looks at your small intestines all the...More
Posted by debs_bears
Reply: Unknown condition for 5 years now
Have you ever had a work up done by a good gastroenterologist? There are tests they can...More
Posted by debs_bears
Reply: Vomitting 1-3 Times a Week
Sorry that you are sick all the time not a fun place to be at it must be interrupting...More
Posted by debs_bears
Generalized Intestinal Dysmotility
Originally my GI thought I had Gastroparesis - so he sent me to a specialist who deals...More
Posted by debs_bears
Reply: Generalized Intestinal Dysmotility
Thank you I just did that.
Posted by debs_bears
Types of Gastroparesis
Does anyone know anything about gastroparesis? I was diagnosed with this just recently...More
Posted by debs_bears
Reply: Types of Gastroparesis
Thank you very much for that site I have bookmarked it so I can read it later.
Posted by debs_bears
I am new to this board also recently diagnosed with Gastroparesis. Just wondering how do...More
Posted by debs_bears