Tyr74, it's from watching the progression of the gluten issues in those that we work with at the office and in talking to those who have finally been diagnosed with gluten issues.
It's also the experience of those who previously posted on the WebMD boards before they changed the formats several times over the last few years. The older posters drifted away, which is a shame. Let me go back and see if I can find an older post by Kris that mentions what she went through. It might be 'enlightening' for you.View Thread
My husband is gluten and dairy (casein) intolerant, and I work with individuals almost every day who have food intolerance issues among other physical maladies. Food 'allergies' are becoming more recognized as a real issue.
If you had a biopsy of the duodenum done and nothing showed up, the doc was looking for true celiac disease. But full-blown CD is not the only issue that can result from gluten ingestion. Another form of 'gluten-sensitivity' - one that doesn't show up on the standard biopsy - is also being seen. And it can cause just as much misery as can CD.
The other problem with the biopsy is that it can take up to 10 years for a biopsy to show the damage that is specific to CD. Meanwhile a person can have all the symptoms and continue to be miserable while being told 'you're fine.' It sucks, big-time.
My husband used the fecal antibody test developed by Dr. Ken Fine at Enterolab to finally find out what was wrong. When he changed his diet and got off gluten and casein it changed his life.
Wildwyo, you're going to have to be pushy to get this fully checked out if your doc just brushes you off. The nausea could be related to a digestive issue, but it could also be the result of something other. You're probably going to have to start with a GP, have some basic tests run, and then get referred out to whatever doc/specialist seems proper.
What labs have you had run to date?? Any other symptoms, however low-grade, that you might not have mentioned???View Thread
Also, if diary is the issue, it may also be (or perhaps instead be.....) one of the major proteins in the diary - casein. Many react to this protein and it can produce a variety of symptoms. In addition, a large percentage of those with gluten issues cross-react to casein, so it may be necessary to take both gluten and dairy out of your diet. My husband had to years ago and it literally gave him his life back. Don't discount the 'damage' supposedly good food can do.
You may want to consider doing some food intolerance testing. Genova has a decent test that will look at about 90 different 'regular' foods/components that most ingest.View Thread
Cleaner, you said you went GF and all the bloating and heartburn stopped. How long were you GF? Did you return to the gluten? How do you know you don't have a gluten allergy? There are more forms of gluten issues than an allergy, so how were you tested? Many have food intolerances and in some cases it can take a full test panel looking for numerous issues to find out and correct the problem. Have you had that done?View Thread
TChap, it could be the amount of the fiber in the beets that's of assistance in helping you evacuate. Evidently the amount in a single beet is fairly high. The fiber would absorb a fair amount of the fluid in the fecal material and add 'bulk.'View Thread
Queenhif, go back to your doctor and have his office work to push through his recommended medication. In some instances the insurance company can balk at a specific medication, but your doc can change to another brand the insurance company WILL approve, or they can say that nothing else will work for you and push the issue.View Thread
Kimina, it's possible you could be producing an allergic reaction to those specific foods. It's not unheard of. You may want to check with an allergist and ask for some IgE/IgG testing - not just the usual IgE testing alone.View Thread
dwood, it's possible the casein in the dairy is the culprit. If you're having a problem with that component you'd have to cut out cheese completely because the reaction is not similar to the one you have if you're 'allergic' to lactose. With a casein reaction, you produce an antibody reaction which can, over time, cause a myriad of other symptoms more problematic than constipation or more frequent bowel movements. Some food testing might be able to straighten out the issue.View Thread