First take a deep breath and calm down. I know this is scary but panicking will only make you feel worse. There are many things that could be going on and they have overlapping symptoms, which is why your doctor wants you to see a specialist.
The first thing I'd suggest you do is start a food/symptom diary. Write down everything that goes into your mouth (food, drink, meds, vitamins, etc) and any symptoms you have - even ones that don't seem like they're related. This will give the GI a good picture of what you've been going through and will help with diagnosis.
I know August seems a lifetime away, but it usually takes awhile to get in to see pretty much any specialist. On Monday call the GI's office and ask to be put on the cancellation list. Maybe you won't be able to get in any earlier, but there is a possibility you will. Other than that you'll just have to wait.
Personally I think the likelihood that you have cancer to be very very low.View Thread
These things are very difficult to diagnose and it usually takes more time than we'd like. Has she only been seen by general practitioner doctors or has she been to a specialist? I'd pref she see one in Vic as bigger cities tend to have better specialists (sad but true).
The kind of testing you've listed is more towards checking her upper digestive system, which makes sense as that's what you've written about - there have been no comments about bowel movements, which would be more lower digestive system.
I'm guessing if she asks to be tested for specific foods (like you've listed) the answer will be no. She's better off asking for blood tests to check for 'allergy serum' and vitamins/minerals. If she's having either an allergic response or an intolerance, those two tests should be 'off', showing something is wrong.
Btw at this point hopefully it's more than the doctor saying "all is normal" - test results aren't that hard to read so she could request to look at and go over it with the doctor. Sometimes doctors don't read them carefully.
I looked up the meds you listed and they tend towards short term treatment meds. I wonder (as the doctor obviously did) if the stabbing is intestinal spasms. Mebeverine (it's marketed under a few brand names) might help with that, and if that's tied in with why she's throwing up, then it might work as a maintenance med for her.View Thread
I've never heard of milk of magnesia being used for colonoscopy, but I'm not sure if having one would help. The symptoms you're listing are more upper GI while a colonoscopy checks the lower GI.
What tests has she had done? What kind of allergy testing were you requesting? What meds has she tried?
Sometimes the best way to figure out if there are food issues is to do a food/symptom diary. Every day she writes down *everything* she eats/drinks (this includes supplements, gum and anything else that goes in her mouth) and how she feels throughout the day. This needs to be done for weeks, both while she's feeling ok and when she's sick. Patterns are more likely to emerge when it's all written down, as opposed to trying to remember after the fact.
There's only one Campbell River I know of, on Van Island. I'm on the mainland.View Thread
It's sad when we actually want something bad to show up on a test, so that we can point at it and say "aha - that's what I have!" Sometimes it can take a long time to get a diagnosis though. How long have you been going through this?
One problem I see popping up is that a lot of your symptoms aren't related to digestive problems. It is possible that you could have a food intolerance (which yes, can cause really serious symptoms). While waiting to get some food tests run, starting a food/symptom diary would be a good thing to do.
Other than that I don't think that's what is going on with you. I looked up Fibromyalgia and a lot of the symptoms do match up, so it is a possibility.
Btw the next time your doctor brings up the old chestnut "stress" please point at a bruise and ask him how stress caused it. Sure stress can make things worse but it's not the cause of what's going on.View Thread
You should get a second opinion. Ulcers and inflammation aren't normal - there must be a reason for them, and IBS ain't it. As I'm sure you've read on here by now, IBS is a diagnosis of exclusion - when they can't find anything it's IBS.
You've got inflammation and ulcers, as well as a bulge in the small intestine that they haven't had a good look at (admittedly it's not the easiest to look into the small intestine). Also how do they explain the occasional blood clots in your stool.
Have you had any tests other than the CT scan and colonoscopy? There are some blood and stool tests that could be done. View Thread
I have IBD and my digestion is far more finicky in the morning, and I've seen posts that say the same is true for many people with IBS. I'd suggest testing grains later in the day and seeing how well you do with them then. It may be that you won't be able to eat grains in the morning and will have to stick with potatoes as your morning starch.View Thread