It's sad when we actually want something bad to show up on a test, so that we can point at it and say "aha - that's what I have!" Sometimes it can take a long time to get a diagnosis though. How long have you been going through this?
One problem I see popping up is that a lot of your symptoms aren't related to digestive problems. It is possible that you could have a food intolerance (which yes, can cause really serious symptoms). While waiting to get some food tests run, starting a food/symptom diary would be a good thing to do.
Other than that I don't think that's what is going on with you. I looked up Fibromyalgia and a lot of the symptoms do match up, so it is a possibility.
Btw the next time your doctor brings up the old chestnut "stress" please point at a bruise and ask him how stress caused it. Sure stress can make things worse but it's not the cause of what's going on.View Thread
You should get a second opinion. Ulcers and inflammation aren't normal - there must be a reason for them, and IBS ain't it. As I'm sure you've read on here by now, IBS is a diagnosis of exclusion - when they can't find anything it's IBS.
You've got inflammation and ulcers, as well as a bulge in the small intestine that they haven't had a good look at (admittedly it's not the easiest to look into the small intestine). Also how do they explain the occasional blood clots in your stool.
Have you had any tests other than the CT scan and colonoscopy? There are some blood and stool tests that could be done. View Thread
I have IBD and my digestion is far more finicky in the morning, and I've seen posts that say the same is true for many people with IBS. I'd suggest testing grains later in the day and seeing how well you do with them then. It may be that you won't be able to eat grains in the morning and will have to stick with potatoes as your morning starch.View Thread
IBS is a cluster of symptoms with no obvious cause. All you've mentioned is constipation. Admittedly it's no fun but on it's own it's not IBS. Have you tried any diet changes or laxatives and stool softeners to try to have bowel movements more frequently?View Thread
Are you consuming any diet products? Some of them can be really hard on your body. Also plenty of people react badly to diet sugar. That's something to look into.
After that I'd be looking at food intolerances. Fowl smelling gas is a clear sign that your body isn't digesting something properly. A couple of the more common ones are gluten and dairy. Doing an elimination diet and/or keeping a food/symptom diary are pretty good at figuring that out.
Do you have insurance and can go to the doctor to get testing done?View Thread
I'm guessing it's not very common. I looked it up and found:
"There is little comprehensive data regarding rumination syndrome in otherwise healthy individuals. Most people with the disorder are private about their illness, and are often misdiagnosed due to the number of symptoms, and the clinical similarities between rumination syndrome and other disorders of the stomach and esophogus, such as gastroparesis and bulimia nervosa."View Thread
You might not like to talk about bowel issues but you're having them. Two years is a long time to wait due to embarrassment - now you need to get testing done, and preferably as many tests as possible before your scope on Friday. It's unlikely that you're going to get an answer immediately but at least getting tests done now means you should start getting answers next week.View Thread