Could my post Whipple surgery reconfiguration be a cause or could there be an issue with that? The report said everything looked as it should look for a person who has had that surgery.
I keep having bouts of intense pain that comes out of the blue, either suddenly (after taking a daily medication) or gradually. It can be disabling and has caused me to miss work, so I decided to see if I could get some help with it. I have been diagnosed with reflux, but this feels like something more or something different. The pain is epigastric, mid-abdomen, and especially right below/beneath the right ribs. The pain can go through to the center of my back and wraps around my side from the right rib area.
I had an upper GI and colonoscopy Dec 5th. Lesions were noted, and on a severity scale of 1-10 (I asked) they are a 1 or 2. 2 weeks ago I had another bout of this intense pain, was immediately fatigued, became dehydrated quickly, my stool was yellow from the 3rd day to the 12th and I had diarrhea for about 2 days. The epigastric pain was constant this time and while I had no appetite, I was drinking water to try to get hydrated again. Even water caused the epigastric and rib area pain to worsen. I had labs done on the 4th day and amylase and lipase were normal as were the other labs. I had a CT a week ago that shows gas in the biliary tree, or Pneumobilia and it isn't something a normal healthy person has, according the research I've done.
I'm seeing a new GI doc at the end of March and I wonder what to expect or what more I can offer about my experience. I don't want to be written off as anxious, as my anxiety is completely under control, or as 'just' GERD/reflux because it isn't heartburn pain and I can't relate it to something I eat or drink.
I don't smoke, drink, eat salty or sweet junk food, fried foods, or drink coffee or soda.
I really want to know what's going on and particularly I want to be able to manage it, and to stop having it affect my work and my work attendance.
Any comments/suggestions/feedback is greatly welcome! Thank you in advance.View Thread
Thanks! I did email my primary and he suggests establishing with the GI doc due to my complicated GI configuration. I think that's how he put it.. lol. He is enthusiastic about the GI doc and she sounds great, so I will be going.
I'm also curious about what she thinks about the air being there. I can't imagine that air introduced during the Whipple would still be there after all this time - almost 8 years. I asked the primary "Doesn't it ever resolve??!" and he said it sometimes takes time. Okay, but that is a long time!
I am overweight again, and working successfully on that. Being overweight easily can make me blame myself in some way.View Thread
CalGal, the US and CT were ordered by my primary. I have an appointment with a GI doc next week. In the meantime, my protonix dosage was doubled and that seems to be helping a lot. So now I'm conflicted about following up at this time with the GI doc and the expenses that could include. Still contemplating.... Somehow I always think these things are my fault....View Thread
I'm glad to see you are still here helping so many.
I have been looking for specific gastroparesis diet information online. I find references to what to avoid or general information like to eat 6 small meals, avoid fiber and fats; choose fully cooked veggies and friuts. That's helpful, but is there something more detailed out there? Particularly how to get in proteins, and what is it recommended to add a non-food fiber like Metamucil?
I am once again off my good eating regimen and paying for it. I want to get back on track and plan my work meals for the week. I tend to just not eat at work and that's one thing I really need to stop doing.
I am self-diagnosed, with issues after my Whipple surgery. I also have been diagnoses with acid reflux and wonder if it is the whole problem or possibly the result of gastrparesis? Whichever, I think the gastroparesis diet would be helpful for me.
Thanks. I have lousy insurance now and can't afford doctors, but I may add some B-12 and see how that goes. I would love to lose these episodes of exhaustion.
I am finding smaller and more frequent meals helpful lately. Cooked fruits and vegetables, plain yogurt & pumpkin puree, soups that are home made and not too salty. I think job stress is also a factor and it seems unavoidable. I'm wondering if exercise would help in many areas.View Thread
Thank you so much for the link! That will be very helpful. Yes, I am considering pureeing when I'm having trouble digesting and having pain, when my appetite is low. It starts a cycle of low energy and just not feeling well.