Hi everyone! I was diagnosed with endo about 6 years ago (i was 16) after two laps i was still is constant pain/discomfort so through this wonderful group i was connected to a pelvic pain specialist in my are, he has been so wonderful. He diagnosed me with pelvic inflammatory disease, which is usually caused by an std but i don't have one so they aren't sure yet what is causing it. As well as intercistal cystitis, which is basically the lining of your bladder is weakened and causes lower back pain. There's a bunch more but i'll add that later, lol I was just curious if any of you ladies have been diagnosed with the same thing? and maybe it could help some of you, if your still having pain maybe one of these could be contributing!!View Thread
Most of my close friends know I have something going on with my bladder, so they are pretty cool with it. I'm not dating right now so that kind of makes me nervous when I do start dating someone, I don't want them to think I'm broken lol.
I haven't heard of Prelief, I'll have to try it!View Thread
Thankfully my I.C isn't that bad anymore, or should I say at the moment. lol. I was going about once an hour. But now I'm at about every 2 and a half to 3 hours. It is frustrating to go through, especially at my age, I was diagnosed with I.C at 21 so it's hard to follow the diet, but I do my best. The P.I.D I really question because from everything I've read and heard it's caused by an STD, which I don't have. So I don't know how I can have that if I don't have an STD. But the symptoms are sooo frustrating. Add that to the endo and I.C and I'm a ball of fun!! lol. I know a girl who has I.C and got the TENS and she's had so many issues from it I would be to afraid to even consider it. She has permanent nerve damage from an infection she got and had to take heavy duty pain killers everyday. Another lady I know (I work in a pharmacy so I've met several women with it) who was diagnosed like 20 years ago, and now has a catheter, which really scares me. I asked the dr I was seeing how often that happens to women with I.C and he wouldn't answer me. That was another reason I stopped going to him. I need to find a good urologist in my area, I actually haven't seen one yet, the Dr who was treating me was a Pelvic Pain SpecialistView Thread
I follow the diet really well, except the soda.. which doesn't actually flare me. I've noticed that it's more fruit juice's that do, and alcohol. I have taken Elmiron but didn't notice that much of a change and because of the cost I stopped taking it after several months.My doctor also had me do some kind of physical therapy to strengthen my bladder and pelvic floor muscles. I had one instill and that seemed to really help for about 2 weeks, but there again you get into the cost issue, and now I need to find a new doctor because I stopped going to see the one I was using because we didn't see eye to eye on most things. I do have flares, sometimes I don't know what causes them, and sometimes it's because I drink something I shouldn't. But I'm young, so it may sound bad, but I am going to go out and have a drink sometimes, I just know I'm going to pay for it later.View Thread
I went to a new doctor today and I really really liked him! He is sending me to physical therapy for my pelvic floor muscles, and I have to go back to his office to get some test done where they are testing my bladder (I can't remember what the condition is called) So i'm excited because he seems to think that if i do the p.t and they find out if i have that bladder condition my pain will get much better!!!View Thread
I posted a few weeks ago, it looked very diff, so im guessing they changed the layout? But any way.. I was recomended to a new doc who is a gyno pain specialist and is supposed to be very good with endo!! I'm looking forward to my appt next week, he seems to take it very serious, as i had to fill out 21 page packet about my pain and such before i even knew if he would see me! So fingers crossed he's as good as i've heard!!View Thread