Endometriosis
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It is been a while since I post anything here... so I am guilty of abandoning you all. Been really busy with school/work/summer but there is no excuse!
So as a recap... I was on Lupron for about 9 months, on June my Gyno switch me to BCP because the Lupron affected my bones (got osteopenia) and I am now taking bone medication. Anyways, after 9 months of bliss (read no pain), I had since 2 horrible "periods". The first time was my "fault" because I went on a mini-vaca for 3 days and forgot my pills. Got some spotting and strong sharp pain, that went away 3 days after I caught up with the 2 pills I missed.
July was fine, no spotting, no pain. This week my cramps came back. I havent miss a pill, but I have spend 3 horrible days of pain, nausea, cramps, backache, stomache, pain while urinating and while going # 2 and NO period. The pain was such today that I had to stay home from work. And I dont even have pain med anymore, so have been taking Naproxen and over the counter stuff.
I do not know when is my "period" time, since I havent had a "normal one" in over a year and the BCP I take I do so skipping the placebos to avoid having the periods as much as possible.
I do not know what to do... Should I make an appointment and see my Gyno or accept this as the normal thing in my life??View Thread

Brandi I am glad the Lupron's side effect are not as bad for you. Sorry about the knee pain... I got those as well...
Things are calm in this side of the US. Spring is slowly but surely getting here... I have some abdominal discomfort and BM problems but nothing serious... still waiting for AF to get here since I am back on the pills...
Peace and Health,
AngieView Thread

I am done with my last run with lupron. This will be my 3rd time with it. I usually have about 2 years of "normal pain" when the full blown pain returns with vengeance. Right now I haven't had my period yet so IDK what will happen. The point is that we always say everyone is different. Lupron is not helpful for a lot of people and I am sure some of the girls here will tell you their story. It does seems like what you are experiencing is something your GYN should know and check.
Meanwhile now that you are not alone... Endo affect us all and this support group is a place to vent and find "comfort".
We all are different but we are all going through this. So feel free to vent....
Like I said probably other girls will weigh in and tell you their experience!
AngieView Thread

Thanks for sharing that! It all started 3 years ago when I began to have pain in my right heel. I got therapy for that until they discovered it was my hip/back. I got therapy for about 8 months and got a lot better. Like a year ago I started having horrible pain in my left elbow. I used a brace for a while and it went away. Then my firgers started to hurt and get swollen and I notice it was more recurrent when I spent time in the sun. My dr. said to just lay off the salt : {
Now my hips and knees are hurting. My shoulders and neck as well. Is like a twisted game, everyday something different. Right now I only take Excedrin Back and Body. I am allergic to ibuprofen and Aspirins (at least pure aspirin). So pretty much the dr just sent me to a physical therapist and that's it. She said I am just very inflammated due to endo but nothing else. Somehow it doesn't seem to be just that!
I have family history of Arthritis and Fibromyalgia... so IDK.
I just feel like a hypocondriac right now! So IDK. I have been under lots of stress lately... due to school/work and NAvy husband's crazy schedule! So the dr said that with me being overweight (20lb) and stress is a bad combination with the inflamation as well. It just bother me that they don't seem to care that I am the one going through this! I mean she didnt even offer medication to help with the discomfort she just said take Tylenol... I mean TYLENOL???? that doesn't HELP!!!
Oh well... we'll see what happens.... but thanks for the info though!
AngieView Thread

How is everyone doing? I have been having this horrible joint pains (hips). I went to see the doc cause I thought it could be arthritis or something like that (besides the osteopenia). Well she told me the labs only show a lot of immflamation on my body and she thinks is due to the Endo and that that is why I have so much joint pain. So I guess my joint pains are also part of the Endo symptoms. I ask the doc what could I do? and she said sorry just take Aleve and watch your diet but that is it
So I guess I would have to wait until I see the GYN again and talk to him about it.On a happier note... my libido is back and my DH could not be happier jajjaa (TMI IK) soooo I guess is good that I am back in the bcps. I havent had a period yet so I am dreading it... MY biggest complain is does damn joint pains....
ANyways... hope everyone is feeling better...
PEace and Health,
AngieView Thread

Hope everyone is enjoying the weekend. Well went to my GYN appt on Thursday and after he checked my Dexa Scan... (which by the way he had for 6 months and never gave me a call about it) he said I have Osteopenia. DAMN LUPRON! well apparently is a combination of the 3 rounds of Lupron and family history... so I am on Boniva now, with calcium supplement and back on BCPS.
Is sooo annoying how one thing would help the Endo and hurt something else!! The doc said that as long as I keep the treatment and follow his instructions that I should see an improvement soon. Yet it is still annoying! Oh and by the way... Boniva is a pain in the ass because you take it monthly but have to take it with an empty stomach and stay in upright position (without eating anything) for an hour. Plus getting pregnant while on Boniva or a few months after taking it is a nono because they dont even know the side effects on babies.. (since this med is mostly used with menopause women)...
YIPPEEE I feel soo down today... I refuse to let this ENDO thing beat me but some day it really SUCKS!!!View Thread

I dont do dairy products because I have IBS and diary products upset my stomach. I am definitely going to start exercising more, although the doc advice against jogging/running so I will be lifting weights and doing aerobics. I know this is not the end of the world... but it is one more thing to think about!View Thread

Brandy 2 hope ur surgery goes nice and easy as you hope. Brady 1 glad to hear you are taking a "break" from the hectiness of your job. Hope you feel better soon.
I am going to the GYN today to see what is the next step after Lupron. I am putting my feet down and not going to have the Mirena, but instead will push for bcps again.
Other than strong joint pains I have been feeling well. I do hopw the pain with AF do not come with full vengance...
Peace and Health,
AngieView Thread

1. The illness I live with is: Endometriosis
2. I was diagnosed with it in the year: 1998
3. But I had symptoms since: 1995
4. The biggest adjustment I've had to make is: Accepting my limitations.
5. Most people assume: I am a healthy person.
6. The hardest part about mornings are: Getting out of the bed when my body wants to sleep more.
7. My favorite medical TV show is: ER
8. A gadget I couldn't live without is: laptop
9. The hardest part about nights are: my night sweats
10. Each day I take 2 pills & vitamins:
11. Regarding alternative treatments I: feel skeptical
12. If I had to choose between an invisible illness or visible I would choose: visible
13. Regarding working and career: I try hard to manage it.
14. People would be surprised to know: I am in pain (one or another) everyday.
15. The hardest thing to accept about my new reality has been: that there is no cure for it.
16. Something I never thought I could do with my illness that I did was: go for my Masters and have a happy marriage.
17. The commercials about my illness: what commercials? No one talks about it!
18. Something I really miss doing since I was diagnosed is:
19. It was really hard to have to give up: food like lactose and coke
20. A new hobby I have taken up since my diagnosis is: scrapbooking
21. If I could have one day of feeling normal again I would: enjoy it to the fullest, run around the park and enjoy!
22. My illness has taught me: How strong I really am
23. Want to know a secret? One thing people say that gets under my skin is: when are u gonna have babies? You been married for 5 years already!
24. But I love it when people: Complement me and my husband.
25. My favorite motto, scripture, quote that gets me through tough times is: this too shall pass...
26. When someone is diagnosed I'd like to tell them: I'm so sorry and give them a hug
27. Something that has surprised me about living with an illness is: how little people know and care about it.
28. The nicest thing someone did for me when I wasn't feeling well was: my husband always takes care of me and helps me to feel better.
29. I'm involved with Endometriosis Awareness Month because:
30. The fact that you read this list makes me feel: HAPPY!!!
View Thread
Just passing by to say hi. Everyone seems to be doing okay so that's good! I am feeling well. Got my gyn appt on Thursday to see what we are going to do after Lupron... I dont want to do the Mirena so gonna push for bcps... my joints are kicking my behind they are so stiff lately.... oh well...
Hope everyone keep feeling well...
Peace and Health,
AngieView Thread
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