I found out that I had endo over a year ago (last April was my lapro). It was on my bladder, bowels, both ovaries, and had my appendix stuck up under my right ovary. Before the procedure, I felt a lot of pain especially if my bowels were full (before a BM or if I had gas). There were some times I would shoot straight up because it felt like someone rammed something up my anus. Other times I would labor-like pains and had to breathe through them. I went to the doctor repeatedly thinking I had a bladder infection, but i didn't--I guess the endo on my bladder irritated it and made it feel like I had to urinate.
I did some research on the internet and discovered that in about 85% of the cases, the endo comes back w/in a year. I have been taking the pill back-to-back to prevent me from cycling, but I am still in pain. My lower back hurts almost all the time. I have 2 boys and am done having children. I am now thankful that I didn't have any girls, because I wouldn't wish this on anyone!
I just turned 41. I have scheduled a complete hysterectomy for July 17th. I am tired of the pain. I have talked to several women with endo who said that a hysterectomy was the best thing they ever did.
I would definitely ask your doctor. I got pregnant twice before I realized I had endo. The first time was more difficult because I had PCOS and wasn't ovulating. I was given Clomid and progesterone to get things going, and was fine from that point on.
The best advice I have is to relax and to not let yourself think that you can't get pregnant. It might take a little longer, but generally isn't impossible.View Thread
The only way to know for sure if you have endo is to have a laparoscopy. For me, nothing showed up on the ultrasound, but when they looked inside, I had endo all over. If the source of your pain is something else, the doc will be able to tell.
If you already have 3 kids and might eventually want a hysterectomy, I recommend having the procedure done in a hospital. You can let your doc know that if they find extensive endo, to go ahead and remove whatever parts they feel would be beneficial. That way you are only under anesthesia once and have to recover once and you can avoid unnecessary pain in the future.
This might seem radical, but my neighbor is 50 and has endo. She has had 2 lapros to clear out the endo and one ablation to make her periods lighter. She is still suffering, but she is so close to menopause they don't want to operate on her. In about 85% of the cases, the endo comes back w/in a year of the lapro.
I found out I had endo last year when they did a lapro on me. I tried b.c. pills to lessen the pain, but just over a year later, I am scheduled to have a full hysterectomy. I have lost so many days due to pain. Not to mention the strain on my marriage. I am ready to be done with it. I have talked to several women with endo that said the best thing they ever did was have a hysterectomy. Even a few that wished they had done it sooner.
I would recommend that you find that a gynocologist who is experienced in dealing with endometriosis, tell them your symptoms and your family history and request a laparoscopy. I have endometriosis and that was the only way to confirm it. Nothing showed up on the ultrasound. If there is something more going on, cysts, cancer, you name it, then they will be able to identify it. Chances are it is endometriosis and at least you will know. Before my laparoscopy, I had extremely painful periods, bouts of constipation and diahrrea, and severe abdominal and back pain. I was able to have two children, but now I'm 41 and I'm scheduled for a hystercetomy soon. Good luck to you!View Thread
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