Hey everyone. I just ordered this DVD on Amazon, and wanted to share it with everyone. I have not tried it out yet (just got it in the mail yesterday), but I showed the videos to my physical therapist and she really liked it. Knowing that exercise can help pain, I'm really trying to start something. (I also have lost 77 pounds in the last year, and have some firming to do!) I will repost after I try it out, but I wanted to go ahead and share it. You can order from their website, but you have to register first and I never got a response, so I just ordered from Amazon.View Thread
Just wanted to share with you all my blog. I have moved it to blogspot from Live Journal. It is about my journey to get a diagnosis for my chronic pelvic pain. I hope you or someone you know can benefit from knowing you're not alone.
Erin, I can't comment about if this could be IC or not because I myself is wondering about all the symptoms. I have found this website that has some really helpful information on it. Even though it is made by a pharmaceutical company, it has great information. There is a self-assessment and a comparison to other conditions that cause pelvic pain.
Well I did some of this last night and really enjoyed it! Unfortunately, my dogs thought the mat was for them to lay on and then when I got on the floor they thought I was there to pet them and play with them. So what I got done between dogs licks and nudges I enjoyed! (I probably got more of an exercise from laughing so much!)View Thread
I'm just curious if anyone on this board has IC? I have been trying not to self-diagnosis myself before going back to the doctor after surgery, but I am very curious about IC. Just wondering what you had to go through before being diagnosed? I know endometriosis has to be found or ruled out before this diagnosis can be made (and it has been ruled out in my case). I tried this (http://www.orthoelmiron.com/your-ic-symptoms/ic-self-screener.html) and scored a 19. I don't want to have something stuck in my head again, as I did with endometriosis, but I am so frustrated with constantly being in pain.View Thread
I just don't want to get something stuck in my head again. After my surgery I did have really painful urination, but I just assumed it was due to the catheter. I don't think they did anything with my bladder during the surgery. I have started keeping a pain journal along with what I'm eating and the number of times I urinate during the day, so if nothing else I'm more aware of what is going on. I have had recurrent UTIs - I think about 5 last year. It's usually said, well you're a teacher, so that makes you "high risk." I did the IC self-assessment on one of the websites and scored a 19, my mom got a 1. This is why I thought about bringing the topic up. I did mention to my doctor that I felt that I urinated a lot, and will bring it up again at my next appointment. I'm just frustrated by being in pain and not knowing what it is or how to treat it. I know many of you understand that frustration.View Thread
Congrats! It's so nice to find a doctor that your really like. I am doing physical therapy for pelvic floor muscles as well. At first I thought my doctor was crazy, but I realized I needed it! It helped, but didn't help the pain. It sounds like the test is for IC, but may not be. I hope you find some relief soon!View Thread
Talked to my doctor Thursday about my surgery the previous Friday. He said the biopsy said it wasn't endometriosis and actually asked me if I was okay with that. (I think because I just kind of hesitated when he told me this.) Well yes, I'm okay with that, because that's wonderful, but why in the world am I in so much pain?! Which he said he knows, and made sure I had a follow up appointment scheduled. He told me to remember the we were still going to use this as useful information. I more than okay with not having endometriosis, although I've done so much research on it in the past year because I was told by my previous doctor that is what it was that I could be an expert on it (as I'm sure most of you could). I'm also very very upset that I did the Lupron injections before having surgery. Why did my previous doctor think this was okay, which a medication that can have such adverse side effects? They made it seem like to me that if you had pelvic pain, you had endometriosis. I only recently really figured out that pelvic pain does not necessarily mean endometriosis. I don't know what will happen now, but I hope to find out why I'm in so much pain. But I guess that explains why the Lupron didn't help.
Monday I am supposed to go back to work. The nurse said for me to take this week off. She didn't say that I would absolutely be ready to go back, but just said that is what I would need at the least. Well I know physically I'm not ready. Except now I can't tell what is from the surgery and what is my same old pain. I can't afford not to go back to work. Since I'm out of sick leave, I get charged $50 a day that I take off. And since I'm a teacher, I still have to do sub plans ahead of time and grade papers, so I'm never really "off." And even if I make it an "easy" day, I still ends up being choatic because you still have to manage the kids. I'm just very frustrated at this point. All I want to do is stay in bed, but I have no option but to go back to work. Sorry to make this into such a vent, but I know you'll understand.
Thanks for reading. If you're the praying type please say a prayer for me.View Thread
Has anyone tried an IUD for treatment of their endometriosis? During my pre-surgery appointment my doctor and I discussed this as a treatment. He said it has been shown to work in women with endometriosis after surgery. I also looked this up online and found some positive articles about it. It has been brought to my attention though that some women with endometriosis cannot use IUDs though because they are so painful. This makes a lot of sense to me, but it had not occurred to me before. I just had the Mirena put in after my surgery on Friday, and so far I am attributing the pain and bleeding to my surgery. Just wondering if anyone else has had experience with this?View Thread