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Endometriosis

Open content for all who have questions or comments on woman's health issues, ... more

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endo2002

Joined: 08/22/2010

My Story:

My Name is Tabitha. I was dx with Endo in 2002 at 19 years old. I started my period extremely early at age 9. My pains and problems didn't get really bad until I was put on the birth control pill(ortho tri cyclen) at age 16.My monthly period became very heavy( use of tampons and pads everytime) The pains were so bad I was in the fetal position daily. When I did make it to school I could barely handle the pains. I did my school work and went to sleep in every class. My job at work suffered at first but as long as I was busy I was able to forget the pains. I suffered for 3 very long years with pains that doubled me over or made it to were I missed school. I was told I might have IBS but the meds made me sick. I had upper and lower GI's.The GI doctor never found an answer for my problems. I had bladder problems but was never given a referral to a urologist.

It has come to my attention in the last month that my OB of 10 years has lied to me every step of the way.

My lap reads that I had endo along the entire Cul-de-sac. ( not my right ovary like my doc told me)After my surgery I was forced to Lupron depot in the 3 month shot without addback.( forced- I woke up and told I was given the shot without my father's permission) I suffered from horrible hot flashes, insomnia, mood swings, back pains, joint pains,and gained weight( 30 pounds in 4 months). My OB never gave me any info on Lupron or the side effects. I tried the depo provera shot for 3 months and then tried a few different bcps. My lap reduced my pains from being a constant 10 to an constant 6. So my lap helped alittle. As for all the different meds, being on each one at different times raised my pain level back up to 8's and 10's. So I decided in August of 2002 to give up on bcps and see what my normal pains would be without meds. My daily pains without any meds were a 3 to 5 pain level. Well It's been 8 years since my surgery and my pain levels are now back to a 7 to 8 daily. I have very few days that it hits a 10. My OB wanted me to try Yaz back in May and the 3 months I was on Yaz gave me 3 months of pain that topped a 10 daily along with mood swings and made my hot flashes even worse. I went off of Yaz in late July and My pains have returned to a 5 to 8 daily.

I deal daily with bowel problems, bladder problems, my endo pains, and emotional problems. However I am stronger then I have ever been thanks to this disease. I have been on the Endo diet and Atkins since January 2010. I have noticed alot of foods I can't eat.

We are planning lap number 2 for April of 2011.

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Reply: Endo and cancer:::: any link or risk?

Thank you ladies for all your input. I am still doing lots of research on it. My aunt is...

Tabitha

Posted by endo2002

6 Replies | Reply | Watch This DiscussionReport This| Share this:Endo and cancer:::: any link or risk? Thank you ladies for all your input. I am still doing lots of research on it. My aunt is...

Endo and cancer:::: any link or risk?

Hello there, Sorry I haven't been very talkative the last few weeks. So much as gone on....

Tabitha

Posted by endo2002

6 Replies | Reply | Watch This DiscussionReport This| Share this:Endo and cancer:::: any link or risk? Hello there, Sorry I haven't been very talkative the last few weeks. So much as gone on....

Reply: update: Had my 6 week post op

Thanks ladies. It's been rough but I am hanging in there. Still trying to take it super...

Tabitha

Posted by endo2002

8 Replies | Reply | Watch This DiscussionReport This| Share this:update: Had my 6 week post op Thanks ladies. It's been rough but I am hanging in there. Still trying to take it super...

update: Had my 6 week post op

Well ladies. Sorry I have been absent for the last 3 weeks. I have had a very stressful 3...

Tabitha

Posted by endo2002

8 Replies | Reply | Watch This DiscussionReport This| Share this:update: Had my 6 week post op Well ladies. Sorry I have been absent for the last 3 weeks. I have had a very stressful 3...

Reply: Bowel endo: What to expect from this point on?

am feeling alittle better. I have had so much stress on me the last three weeks. I really...

Tabitha

Posted by endo2002

4 Replies | Reply | Watch This DiscussionReport This| Share this:Bowel endo: What to expect from this point on? am feeling alittle better. I have had so much stress on me the last three weeks. I really...

Reply: good morning ladies

Welcome back. Glad to hear the Lupron is going ok so far. Sorry to hear about the knees...

Tabitha

Posted by endo2002

6 Replies | Reply | Watch This DiscussionReport This| Share this:good morning ladies Welcome back. Glad to hear the Lupron is going ok so far. Sorry to hear about the knees...

Reply: Bowel endo: What to expect from this point on?

Thanks Julie. I hope everything goes will on Wednesday and a Hystyerectomy isn't needed. ...

Tabitha

Posted by endo2002

4 Replies | Reply | Watch This DiscussionReport This| Share this:Bowel endo: What to expect from this point on? Thanks Julie. I hope everything goes will on Wednesday and a Hystyerectomy isn't needed. ...

Bowel endo: What to expect from this point on?

So my l-scope last week confirmed that I do have endo on my bowels. So I figured you...

Tabitha

Posted by endo2002

4 Replies | Reply | Watch This DiscussionReport This| Share this:Bowel endo: What to expect from this point on? So my l-scope last week confirmed that I do have endo on my bowels. So I figured you...

Reply: Tuesday Roll Call

Doing better today. Ac went out on Saturday almost had a big fire from it. My recovery...

Tabitha

Posted by endo2002

3 Replies | Reply | Watch This DiscussionReport This| Share this:Tuesday Roll Call Doing better today. Ac went out on Saturday almost had a big fire from it. My recovery...

Reply: 2 days from surgery and spotting.. why?

I was having a lap for endo. They were gonna postpone the surgery if I was bleeding...

Tabitha

Posted by endo2002

3 Replies | Reply | Watch This DiscussionReport This| Share this:2 days from surgery and spotting.. why? I was having a lap for endo. They were gonna postpone the surgery if I was bleeding...

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