have never had the night sweats other than when i was on lupron. i am not sure why your doctor is administering it the way he/she is.
it is not meant to be used that way and definately should not be used for a prolonged period of time. at most it would be once a month for 3-6 consecutive months.
the purpose of lupron is to put your body into a pseudo menopausal state where you are not producing hormones because it has temporarily shut down your ovaries, therefor your endo has nothing to feed off of. it is not for pain mangement. like a muscle relaxer would be.
i would honestly attribute your night sweats to that and your claminess. did your doctor explain what lupron does and the potential side effects to you? are you taking any addback medicine for the night sweats or the depression it could cause or naseau or anything?
it really concerns me if they are doing what you say they are doing. not saying i don't believe you but if that is the case i would get a second opinion and find a new doctor... i am not trying to worry you but like i said this does worry me and specially if they are acting like there is no explanation for what is happening to you.View Thread
Oh that is horrible the way these doctors are treating you.. i think i would have smacked them already unfortunately the only cure for adeno is a hysto. but i think you have more than that and also even more technically speaking the only way to firmly diag. adeno is by hysto.
i can sometimes sound like a broken record but i always always suggest seing a reproductive endocronologist.
they primarily specialize in fertility issues so they have the most experience in anything that would hinder that. my regular gyno first found my endometrioma but i had my first lap and he removed it and about half of my right ovary and that was it. i still had pain it came back same side and i went to a RE and had another lap. and he found all kinds of crazy stuff. fused organs adhesions on my bowel bladder kidneys etc. the issue with alot of regular doctors is they honestly just may not know what to look for or what they are looking at which is why you should find one that specializes in endo/adeno.
the two diseases are similar in the way they attack and function they are just occur diferently. adeno is usually due to a previous surgery like a c-section where the endometrial lining beings to grow through the incision out side of the uterus and causes pain and inflamation where endo just happens and no one yet knows what causes it. continous bcp's is currently one of the only non invasive way docs try to control it and you would have to take it continuously. if you allow a period it causes it to flare when the body is trying to shed the lining which is why are periods are soooooo horrible. i do think like i said that yours is not just what they are saying and for a doctor to just let you be in pain is inexcusable. their job is to provide relief and assitance. if they do not want to be bothered they need to find a new proffesion. i am not sure where you are or how willing you are to travl but i can try to help you locate a more useful doc. that would be more empathetic to your issues you are having.
please let me know how i can help. you can email me if you want my email is in my bio.View Thread
never like to hear of women being on it this long. my specialit would only do a 6 month max and the montly shots.
i do not like the 3 month shots because it is a grey area on how long they last some womens bodies process it slower and some have the issue that it is all filtered before they even get their next shot. plus month to month can be controlled better. you can stop it if you need to etc.
also i know it can cause bone loss so you should be geting a bone can to check for that as well as taking additional vitamins and addback therapy if needed.View Thread
first i always say endo is not a no baby diagnosis. there are many women who have endo that have children heck they say most women have some form of it but are never in enough pain to ever think anything is wrong.
and i know eactly how you feel. my first lap was my first surgery and i had all the same concerns. you just have to tell yourself you are doing it to get better. my suggestion is ask your doc as many wuestions as you can. be your own advocate. find out if he is only doing exploratory surgery or if he has a plan of attack if he gets in there and actually finds adhesions? how does he plan on removing them? burning hich is the most effective or cutting? will he be able to supply you a copy of the surgical photos and records? does he video tape his surgery? if so can you have a copy? how long your recovery time is? note there are some before and after lap helpful hints under the tips section on the right hand side of this forum.and feel free to ask. how he handles the excess gas because they inflate your abdomen to look around? does he let it naturally release which it will or does he go out of his way to get as much out prior to closing? if he finds alot on say your ovaries make sure he know expressively that you do want children so to take all measures in trying to ensure that is still a possibilty post op. also get with your boyfriend and decide when and if you want children together. if so the best time to try is right after you finish healing from the lap because it is when you insides are the "cleanest" if not make sure your doc has a birth control plan to try and keep it from coming back as fast.
like i said i know it seems like alot but the only way you will be calmer is if you feel completely informed and know what is going on with your body. and rememebr that if you start to feel like a pest to your doctor. he is YOUR doctor you are paying him to provide a service for you and it is your future and your health in question and if he isn't cooperative and can't answer what should be those simple wuestions than he is not the right doctor for you. i hope this helps some. and also for your boyfriend there is an endo letter on here somewhere i think if you search the discussion on this forum it should be posted. let your bf read it. it really is a little insite as to what we go through daily that most people don't realize/View Thread
unfortuantely there is not a "cure" for endo so anything you do is considered a temporary fix. surgery will help "clean you out" and lupron is meant to cease growth. my surgeries only worked for about a year at a time and i found out i was pg before i had my third shot of lupron so needless to say about 4 months after having my son i started having pains again. i know some women do get bad side effects from lupron but you can always request, and we do suggest this, getting addback meds to help with the hot flashes and possible depression. there are pro's and con's to both. it is just a matter of what you have already tried. i always suggest lupron as a last resort. when surgery doesn't help and bcp's don't help. alot of women try bcp's and you have to remember it is a rtial and error thing with them. just because the first kind doens't work doesn't mean another one won't. i chose lupron due to the extreme amoun of endo they found during my last lap. it was all over on my bowel kidneys bladder my ovaries were fused as well as part of my intestine was in my culdesac are fused. so it was literally the last ditch effort and it was still only taken until i was scheduled for my next surgery because they didn't want it getting any worse before then. none of choices mean you can't have children. heck i did it while on bcp' through a surgery and while on lurpon and the little booger was determined. not sure if i helped but it really is up to you andhow much you are wiling to deal with,View Thread
sorry to hear your troubles. i am glad that you founf out what was wrong because now you have opened up your options.
you can read my bio for most of my journey although mine did take 6 years it was well worth it. i did have 2 miscarriages but don;'t be discouraged by that because i now have the best little chunky 11 mo. old. he is perfect. my concption with him was really crazy also since i was in the middle of endo treatment (lupron) and going in for my 3rd lap when i found out i was 18 weeks pg. so needles to say many doctors appt's with specialists and what not to have a a pretty uneventful pregnancy. little hiccups but nothing catastrophic. and labor was a breeze(with the epidural) lol all 12 hours of it ha ha. and even with all the iui's and medication and hormones and testing all 3 of my pg's were natural conception. but feel free to email me seperately or post any questions you have and i would be happy to help. just let me jknow what yall have already tried or are willing to try.View Thread
great im glad you found someone and don't let the insurance lady get you down. just stay on them. that is their game if they can keep you from trying and pushing the subject they can save themselves the money. squeeze in as much as you can. View Thread
i don't normally like when they do the 3 month shots or anything longer than 6 months but since you are in the middle of it it's a little late ha.
i would just say get all your other ducks in a row. so as soonas your doc gives you the go ahead you start trying. even if he doesn't have any fertility issues i always suggest the male fertility pills. they sell them at gnc its honestly called fertility blend for men and have him take extra vitamin C. the better you can have him the better your chances because it can help compensate for some of your issues.
did they do anything to try and fix the blockage in your tube? are you scheduled for any follow up surgery?
there are alot of little natural things you can try like eating popcorn is supposed to help the consistancy of your cervical mucus(CM) to allow his guys an easier trip also taking a fertility blend vitamin yourself and i am not sure if you are doing avulation testing but i would strongly suggest you do especially right after you get off lupron even though you won;t be trying just to figure out your cycle and if you are cycling properly.
i am sure i can give some more advise since i have been where you are and tried to do things as natural as possible with the exception of my rounds of lupron.
that sucks that you are having all these issues \ and you are right you are technically in prime baby making age. and it is your choice. if my doc ould have said that i would have smacked him. i know there are quite a few docs out there and there is one specialist i will have to try to find his name again but he is pretty expesive but they will work with you.
my first suggestion is to seek a reproductive endocronologist who specializes in endo. then you will not be going for fertility you will be going for a systemic disease which causes chronic pain. it's all in how you request it.
my insurance would not cover anything fertility related so my doc coded everything under endo treatments where he could to get them to cover it.View Thread
good i am glad someone listened to you. i would make sure you set ground rules prior to your lap.
for instance what they are going to do in the case that they do find endo. how will it be removed if at all. ask for pictures or even if they video the surgery. no good doctor should have a problem with this request. just in case you see another doc that tries to question the diagnosis and for your own personal records. also get a copy of the surgical report.
the only reason i mention setting ground rules is because i have a recourring endometrioma on my right ovary and since i wanted children i made a firm request that the ovary not be removed unless there was literally no other option so they did end up having to remove about half but made it a point to save as much as they can and in my second lap they found endo all over my bowel and bladder and kidneys but cleaned as much as they could and closed me back up until they could schdeule a new lap with specialists to avoid any complications.