I understand how you feel. I have to admit that I have some resentment towards my parents too. My mom knew how painful my periods were from the beginning. I knew that she had painful periods (and had a hysto) and my best friend did too (and later found out that she has endo also) so until I had pain the rest of the month too, I thought it was normal. But my mom never said a word about her having endo until I was booked for my first lap. Growing up during my period my dad would tell me to toughen up and that my mom couldn't get out of bed when she had her's. I just can't believe they didn't say anything.
Anyway I hope that your lap went well and that you are recovering well. It can be so frustrating to find the right doc but it sounds like you have.View Thread
So sorry that you had to have a hysto. Do you still have your ovaries? What state are you in? Maybe another member in your state can recommend a better GYN surgeon in your area. Do you mean your insurance won't cover you seeing another GYN who specializes in endo, or a reproductive endocrinologist? I hope your doc knows that they can't see endo on an ultrasound, but that could rule out something else.View Thread
Sorry to hear that you lost your ovary and that your endo has been so bad. I don't take hormones other than continuous BC so maybe some of the other ladies can chime in if that's a side effect. You may want to get it checked by your doctor though, especially if it persists. Is it tender at all?View Thread
Hi! I haven't been on here in a while but glad to see it's a bit more active then it was a while back.
Sorry to hear that you haven't been feeling well. How long ago was your recent surgery? I had my first (thankfully only) lap in 2008 and I remember it took about 3 months to feel better since my body had a lot of healing to do. I remember being disappointed at 1 month and at 2 months that I wasn't feeling better, but finally at 3 months I had a lot of relief. When I had my lap the doc used a special light that was new at the time (I think a UV light?) to allow him to better see the tiny spots. Do you know if your doc used anything like this?
I also take Evening Primrose Oil 1000 mg daily. I have been doing well with my endo since my lap and this is one of the big reasons why. I also suggest giving up alcohol if you drink at all. I haven't been able to find the link but I read a study years ago about how even 1 drink can drastically increase your estrogen levels, which feeds endo.View Thread
I haven't been through it myself, but I can certainly understand not wanting to put yourself through another m/c. My mom, who also has/had endo (she had a full hysto) had 2 m/c, had my older sister, another m/c, then me and my younger sister. I don't know how she did it but to this day it still causes her pain. I've only gotten her to talk to me about it once, and even all these years later it made her cry. Had the other pregnancies made it I probably wouldn't be here, but there's only so much that even the toughest woman's heart can take.
You are certainly not alone. I have been doing pretty well day to day, but the pain during and after sex has kept me from being in the mood in a long time. Anti-inflammatories before and a heating pad after help a bit, so maybe give that a shot.View Thread
Hi Sadie, glad to see you're still around. I haven't been on here in a long time. I was diagnosed in 2008. I'm going to try and make more time to come on and support our fellow ladies - no one should feel alone! Hope you're doing well!View Thread
I had my lap back in 2008, and I had read that it can take a few weeks to heal. A month after surgery I was still in significant pain. My doc asked me to give it a while longer, and 2 months after I had nearly no pain. So I would give it a few more weeks, and hopefully you'll be feeling better.View Thread
Have you tried Lybrel? I've been on it for 2 years and absolutely love it. It's a continuous BCP, and if you have any spotting, try evening primrose oil (they even have it at walmart). I find that that works really well for lessening cramps and controlling bleeding. Hope it works for you if you decide to try it!View Thread