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Newly diagnosed? Visit the Epilepsy Health Center, check out community tips and review resources.

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Adult Epilepsy Support Groups -- Updated

Here's a list of Adult Epilepsy Support Groups across the country that I've compiled. Hopefully...

Posted by phylisfeinerjohnson

2 Replies | Reply | Watch This Discussion Report This | Share this:Adult Epilepsy Support Groups -- Updated Here's a list of Adult Epilepsy Support Groups across the country that I've compiled. Hopefully...

unknowledgeable couselors

I am feeling pretty discouraged working with my counselor. He thinks I am having "pseudo seizures" and really...

Posted by JudieSue

2 Replies | Reply | Watch This Discussion Report This | Share this:unknowledgeable couselors I am feeling pretty discouraged working with my counselor. He thinks I am having "pseudo seizures" and really...

New Seizure Med

Has anyone had any experience with a new seizure medication named Potiga? If so please let me know what...

Posted by TxAdvocate

1 Reply | Reply | Watch This Discussion Report This | Share this:New Seizure Med Has anyone had any experience with a new seizure medication named Potiga? If so please let me know what...

Low Glycemic Index diet for epilepsy?

I am looking for information on the success others with Tonic Clonic seizures have had with a very modified...

Posted by An_250487

3 Replies | Reply | Watch This Discussion Report This | Share this:Low Glycemic Index diet for epilepsy? I am looking for information on the success others with Tonic Clonic seizures have had with a very modified...

No seziures for years then 3 in 7 days

Hi, I really need some advice, I have myoclonic Epilepsy and have been fit free for a number of years and am...

Posted by An_250480

2 Replies | Reply | Watch This Discussion Report This | Share this:No seziures for years then 3 in 7 days Hi, I really need some advice, I have myoclonic Epilepsy and have been fit free for a number of years and am...

Newly diagnosed and need advice

I was recently diagnosed with epilepsy at 56 years old. I also have MS and lupus, and diabetes. I was...

Posted by willowwoman77

32 Replies | Reply | Watch This Discussion Report This | Share this:Newly diagnosed and need advice I was recently diagnosed with epilepsy at 56 years old. I also have MS and lupus, and diabetes. I was...

medication

Hi all. on the 12th I went to see my neuro ( am back in Hawi'i) and he put me on Topamax and...

I live on O'ahu in the Waikiki district of downtown Honolulu.

Posted by hula_dancer73

Hi all.

on the 12th I went to see my neuro ( am back in Hawi'i) and he put me on Topamax and isincreasing it little by little and when the Vimpat hits 100 in the am and 100 in the pm the Topamax will be at 200 mgs to maintain and stay at the dose. 100 in the am and 100 in the pm indefinaltely.

He is killing 3 birds with only one stone.

It will help me lose weight, prophylactic migraine treatment and sz control all rolled into one thing.

I did well on it before, but went from a 14 to a 4 in pants size. But got to wear alot of things that I was not able to wear in a very long time that I wanted to wear that I couldn't,

PRoblem is that the the vimpat is still at 100 in the am and 200 in the pm and the topamax is at 50 in the pm. It is causeing a little bit of trouble that is unecxpeted. Is it the add-on of the new drug? I have taken it before so shouldn;t my system be sued to it even though it has been more than 3 years since I alst took it?

However I had a sz tuesday night the night I saw him. I was already back in HI by that time.

Did the topamax casue that? The VNS was checked but not changed. The Lamictal was also left alone at 600 mgs, so was the Klonopin at 3 mgs.

I do not like being on FOUR AEDs at ONE time along with the VNS, but he told me he has several pts that take more than me and have the VNS. I looked at him funny and he said he wasn't kidding. I just can not imagine that. 4 is bad enough but more than that?!

Then next time I go in in 3 months he will remove the rest of the Vimpat.

I can see why Angie did not like the drug. It was great in the begining but got worse the longer I took it and the s/e picked up too.

Thanks for the heads up about your experinces with it angie, That is what made me s tart talking to my neuro about it months ago.

I took in the book I am reading with very large print and the kind of word search puzzles I have to do that are VERY large print that I have to do in order to see so I do not have to close one eye to see or hold ot really close to my face. The other s/e were also getting to me as well. THe sleep thing was reallybad.

HE had me taking it 4 times a day 4 hrs apart from each other. So before I could recover from the first dose that made me sleep I took the second dose and continued to sleep and so on untill the day was over. Drove Jasyn nuts becuase all I did was sleep mpost of the day or was really groggy from it. It is also a Schedule V controlled Substance and that bothered me becuase I did not want to be hooked on that crap. Doc did not like my thought on that so that is another move to remove me from it.

NancyView Thread

I live on O'ahu in the Waikiki district of downtown Honolulu.

Posted by hula_dancer73

1 Reply | Reply | Watch This Discussion Report This | Share this:medication Hi all. on the 12th I went to see my neuro ( am back in Hawi'i) and he put me on Topamax and...

OT; HAPPY MARDI GRAS!!!

HI everyone. There is NO Mardi Gras in HI but there was when I was in Louisiana until I was 30, then...

I live on O'ahu in the Waikiki district of downtown Honolulu.

Posted by hula_dancer73

0 Replies | Reply | Watch This Discussion Report This | Share this:OT; HAPPY MARDI GRAS!!! HI everyone. There is NO Mardi Gras in HI but there was when I was in Louisiana until I was 30, then...

Sick Child With Epilepsy, Help!

Please help, I have a daughter who has Epilepsy. She takes Zonegran 50mg's at bedtime, she is only 4 years...

Posted by klht86119

4 Replies | Reply | Watch This Discussion Report This | Share this:Sick Child With Epilepsy, Help! Please help, I have a daughter who has Epilepsy. She takes Zonegran 50mg's at bedtime, she is only 4 years...

Question about redness

My husband has recently been diagnosed with petit mal seizures. Don't know if it is a coincidence, but it...

Posted by sharid814

1 Reply | Reply | Watch This Discussion Report This | Share this:Question about redness My husband has recently been diagnosed with petit mal seizures. Don't know if it is a coincidence, but it...

Onfi/Clobazam

My 11 yr old son has Complex Partial Seizures. Onfi is basically our last chance before...

Posted by beautifulbeautifulbeautifulboy

6 Replies | Reply | Watch This Discussion Report This | Share this:Onfi/Clobazam My 11 yr old son has Complex Partial Seizures. Onfi is basically our last chance before...

Confused

My fiance had a seizure last night at a friends house last night it lasted about a minute to a minute...

Posted by SoontobeMrsYork

2 Replies | Reply | Watch This Discussion Report This | Share this:Confused My fiance had a seizure last night at a friends house last night it lasted about a minute to a minute...

headaches and szs

HI all, I was just curious as to headaches being szs in and of themselves? I get alot of headaches...

Posted by hula_dancer73

5 Replies | Reply | Watch This Discussion Report This | Share this:headaches and szs HI all, I was just curious as to headaches being szs in and of themselves? I get alot of headaches...

comments are 2 years old?

I was reading comments about epilecy and all comments are very old.

Posted by An_250213

1 Reply | Reply | Watch This Discussion Report This | Share this:comments are 2 years old? I was reading comments about epilecy and all comments are very old.

im new

hi im amy , i found out i had seizures when i was 12 years old.im now 33 and yes i still have them they have...

Posted by 1madgal

3 Replies | Reply | Watch This Discussion Report This | Share this:im new hi im amy , i found out i had seizures when i was 12 years old.im now 33 and yes i still have them they have...

when started

I've been having seizers my whole life, the first time when I was born. Don't have them any more so I...

Posted by DanielleCrook

1 Reply | Reply | Watch This Discussion Report This | Share this:when started I've been having seizers my whole life, the first time when I was born. Don't have them any more so I...

Uncontrolled Urination

Hello, hope everyone is well. ive been doing great, no seizures for months......but for the past 4 nights in a...

Posted by kittyqqq

2 Replies | Reply | Watch This Discussion Report This | Share this:Uncontrolled Urination Hello, hope everyone is well. ive been doing great, no seizures for months......but for the past 4 nights in a...

Understanding Lamotrigine and Seizres

In September I saw a neurologist for having the same conversation twice with no recollection of the second...

Posted by Keely357

4 Replies | Reply | Watch This Discussion Report This | Share this:Understanding Lamotrigine and Seizres In September I saw a neurologist for having the same conversation twice with no recollection of the second...

I do not understand dosages for first time seizure

In September I saw a neurologist for having the same conversation twice with no recollection of the second...

Posted by Keely357

1 Reply | Reply | Watch This Discussion Report This | Share this:I do not understand dosages for first time seizure In September I saw a neurologist for having the same conversation twice with no recollection of the second...

First time seizure increased dosage I do not under...

In September I saw a neurologist for having the same conversation twice with my roommate and having no...

Posted by Keely357

0 Replies | Reply | Watch This Discussion Report This | Share this:First time seizure increased dosage I do not understand In September I saw a neurologist for having the same conversation twice with my roommate and having no...

How can you make a denying epilepsy patient start ...

How can you make a denying epilepsy patient start taking medication or control of his disease? My father has...

Posted by djmast04

3 Replies | Reply | Watch This Discussion Report This | Share this:How can you make a denying epilepsy patient start taking medication or control of his disease? How can you make a denying epilepsy patient start taking medication or control of his disease? My father has...

Can Exposure To Materials Used in Old Homes Cause ...

I live in a house that is at least 100 years old, I don't know if or how much asbestos, lead paint, mold or...

Posted by Anon_35109

2 Replies | Reply | Watch This Discussion Report This | Share this:Can Exposure To Materials Used in Old Homes Cause Seizures? I live in a house that is at least 100 years old, I don't know if or how much asbestos, lead paint, mold or...

I have been taking depakote ER

I been taking Kepraa ER since 2005 then my level was not right so the doctor change me regular strength...

Posted by An_249910

3 Replies | Reply | Watch This Discussion Report This | Share this:I have been taking depakote ER I been taking Kepraa ER since 2005 then my level was not right so the doctor change me regular strength...

vimpat

I already wore out something aobut this but it is nowherei nsite on here so i am goingto do it again and...

Posted by hula_dancer73

2 Replies | Reply | Watch This Discussion Report This | Share this:vimpat I already wore out something aobut this but it is nowherei nsite on here so i am goingto do it again and...

Confused newbie....

Ok I'm new to health problems in general so it gets confusing. On Jan 6, 2012 my optomitrist did his exam with...

Posted by 5frogs

25 Replies | Reply | Watch This Discussion Report This | Share this:Confused newbie.... Ok I'm new to health problems in general so it gets confusing. On Jan 6, 2012 my optomitrist did his exam with...

Vitamins

Im basically going through the same thing though I was involved in a car crash and had head trauma. Reason...

Posted by KiddMarshea

1 Reply | Reply | Watch This Discussion Report This | Share this:Vitamins Im basically going through the same thing though I was involved in a car crash and had head trauma. Reason...

first and only seizure hopefully, my story

On December 10th of this year I was shopping at Wal-Mart when I suffered a seizure. I remember none of the...

Posted by cdking

On December 10th of this year I was shopping at Wal-Mart when I suffered a seizure. I remember none of the event, I know I started not feeling well and I remember wanting to call my husband and a faint memory of looking at my phone, then I woke in an ambulance outside Wal-Mart. The EMT explained that I was at Wal-Mart and had a seizure, I had bitten my tongue and had a large bump and cut on my head. I also did make the phone call to my husband, he said I was whispering and he could not hear me then the phone went dead, and I have no memory of speaking to him. I was then taken to the hospital where I was given blood tests and 2 CT scans one without dye and one with, as I am on blood thinners they wanted to rule out bleeds or clots right away. All test came out normal, I was told I could not drive for three months and was referred to a neurologist, I was then booked in for an EEG and a MRI, I recently had the EEG, and yet to get the results and have my MRI in one week. I am aware that there are many people who have a one and only seizure and hoping I am one of those. But I have a few worries that it wasn't a one-time deal. I had a really weird experience about two weeks before, I was out Christmas shopping when a was looking at magazines when I started getting slightly confused because I would be looking in one spot when something would happen and I would be looking at other part of the rack (it almost felt like my head did a little jolt, but sure it just felt that way) and then I would have to think hard at what I was looking for, I would finally remember and look again then it would happen again, I started feeling warm and a little scared so I decided that I would grab the ink I needed and leave, but when I got to the isle with ink it continued I would find the ink number I was looking for then I would be looking somewhere else and have to think really hard what number I was looking for, this continued for a while and I started really sweating. I finally got the ink and went to the till to check out and I started feeling better. I remember thinking that I was lucky that if I passed out I was in a good place, as the mall had a clinic and lab and a diagnostic lab. I don't remember how I felt before the seizure but I remember a thinking it feels like when I was shopping before, but I cant verify this. So I recently had the same feeling again while shopping and am afraid to tell my neurologist, what if I am just over reacting and its nothing, and I don't want to delay getting my licenses back. My sister has a panic disorder and I am afraid I am just having a panic attack. Has anyone had close to the same feelings and is there a reason I have to do a MRI when my two CT scans came out normal? I am a 33 y o women with 3 school aged children, and my family has had to readjust to a lot and I want to give them back their normal routine. I am on warfarin for having two pervious PE's and synthroid for hypothyroidism. Anyway that's my story so far thank you for reading!
View Thread

Posted by cdking

3 Replies | Reply | Watch This Discussion Report This | Share this:first and only seizure hopefully, my story On December 10th of this year I was shopping at Wal-Mart when I suffered a seizure. I remember none of the...

I'm Back....

Yes I have returned.. After a lengthy absence which I have been doing well but very busy. Hope all of you...

Posted by BlazingTiger

2 Replies | Reply | Watch This Discussion Report This | Share this:I'm Back.... Yes I have returned.. After a lengthy absence which I have been doing well but very busy. Hope all of you...

Seizures

I saw this discussion on seizures, and couldn't help but post my own. My son is going on 30 years old. Has...

Posted by An_249758

2 Replies | Reply | Watch This Discussion Report This | Share this:Seizures I saw this discussion on seizures, and couldn't help but post my own. My son is going on 30 years old. Has...

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