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I find it weird becuase that normally do not happen.
I just do not know hat casued this.
I can not spell, stutter when I talk which in NOT normal for me. I rarely do that.
Ican no think of the words that go to things. Example: tonight we eere coming back from voting and I could not think of the name sidewalk so I tried to find a word that WOULD work. weird huh?
what was going on?
hula_dancerView Thread
Looking for some information for my fiance, who is currently on Depakote and Keppra for nocturnal seizures.
We have heard that antihistamines are a no-no when you are being treated for seizures. Is this true? The fiance has had some trouble sleeping lately, and we were trying to find something he could take to help, is there anything you guys use?
Also, can you tell me if you have had any short term memory issues on your medications? The fiance is a full time student and he keeps feeling like he has to work a lot harder now to get his school information INTO his brain. If you have had some memory issues, how did you work around them?
Thank you!View Thread
Any questions?? Let me know.
HUGS
November is National Epilepsy Awareness Month.. Love CandiView Thread
Should I be worried about those "dizzy"spells I get?
I get or am dizzy when I am sitting, standing, and walking.
I can not walk in a stright line, fall down, crash into stuff and fall down some more.
Today this monring I had another episode with that dizziness. I tryed to play on my Wii a bowling game and do quite well at it. But I could not see to read things. I knwew the game so I could play some.
I s topped, and tried to read abook and I could NOT get my eyes to get focused. EVERYTHING was all blurry and I had my glasses on.
My eyes must have been ALL the way open or something. I know my eyes dilate when I have szs becuase I have been told that.
but how much I di not know.
Could this be a sz? I see my neuro on the mainland on the 15th of this month.
I did use a maagnet on my self and swiped myself 3 times.
By the time I got to church which was an hr later I was still feeling the aftermath of it but seemed to get better as the day wore on. Stii a bit on the grumpy side.
hula_dancerView Thread
Iwas sitting in the living room with my daughter and husband abd while I was watching Tv I had a weird sz. I was listening to my CD player while watching the TV. My had kind of git "stuck" in one position and woul not move no matter how hard i tried, I was going to open and change the CD but couldn't
What t ype was this. It lasted 30-40 minutes and then was over as if nothing had happened.
to me weird!
hula_dancerView Thread
hospital, No answers! family is concerned that the drug lipitor, started
one day prior to seizure, may be the cause. i have found one pharmacist who told me that "caution should be exercised prior to using lipitor for those patients with seizure disorder". others, including doctors, can find no such precautionary warning. it is not a listed side effect on the pharmacy literature nor is it listed as a side effect on webmd. i am in the initial stages of my search for answers. does anyone have any prior experience with lipitor and seizures or can anyone point me to an authoritative source?View Thread
Let your voice be heard, too.
Share w/ Friends, Local stores, radio stations, newspapers & even your Local Library. Ask them to show their support &/or put up a poster or leave a card in visible site.
Include: contact efa.org for more Info on how to: Raise Awareness. 
Stay Strong! United we Can 'Shout It Out' & Spread the Word! HUGS & Have a Great Month!
Love CandiView Thread
And hello Candi, so glad to see you are still a constant on this board. You may not remember me but I certainly remember you. I believe it was you who got my name about 10 years ago when we did a "secret" santa one year on this board and you sent me some very cute elephant figurines.
I've been in and out of this board over the past 13 years. When things have been really rough I found great solace in my friends here. And so I come to you again now.
Amazingly enough I had been seizure free for the past three years and off my medication for the past two up until this past July when my auras returned. (I have partial complex seizures that affect my right arm. They happen usually in my sleep or in the early morning and last about 15 seconds. Doctors have never been able to tell me what causes my seizures.) About a month ago I had a seizure while at the airport and discussed this with my neurologist about two weeks ago. He suggested I go back on my Topamax which was the last drug I was on and the one which had worked the best for me. I have now worked my way up to 100mg twice a day in the past weeks.
I immediately noticed side effects of stomach bloating and IBS type symptoms as well as dry mouth and just constantly feeling thirsty. In hindsight these side effects occurred when I was previously on the medication but I never realized they were actually a side effect because it took them quite a while to develop. (about a year)
I think for me what is the most frustrating is that for a couple years I actually thought I outgrew the seizures and that they were a childhood disease. I'm just now coming to terms that this is something I have to manage for the rest of my life.
At any rate I just wanted to check myself back in to the board here and for any newbies out there let you know you aren't alone and that this board is a great resource and support system.
-LaurenView Thread
maybe THIS is the reason why I'm irritable who knowsView Thread
due to the office personal my "so-called" advocate and I clash and she didn't send out the correct paperwork for my meds so I was w/o them for literally months. so now I'm finally back on them for about 10 days and I've noticed that they make me irritable and grouchy I have no patience for things but only on some days not all. I don't like it.
I asked the manufacturer and Nothing no email no call nothing.
i'm on the outs with my neurologist because of her office personnel lied to me about the paperwork AND lied to the Director of the local chapter of the Epilepsy Foundation and refuse to admit it. so I told my advocate to go Boink herself and I'm NOT coming back for the next appointment which WAS at the beginning of last month. anyway I can't ask the dr because there will be trouble if I go back so I'm not. I have no other alternative but to ask the question here. is the irritability a symptom of this med and what should I do about it ? I've been on SO many already nothing seems to work.View Thread
if you look under the post about "auras with out szs" I put alot of stuff in that about HI without thinking abouot it. It tells alot. I put in the wrong spot.
hula_dancerView Thread
JasonView Thread
the cruise was alot of fun. However Idid have a cast on for 2 weeks to try to stablize it did not work ,now into therapy for 6 weeks.
currently in another boot for my ankle adn after PT will have a revsion of ankle, but can not worry aboutt hat right now.
it is 3 hrs earlier that what you have if you ae in the Pacific time zone.my mom ;eft today and my left as well. my aunt is a RN for ICU babies.
I just thought I would let you know I am back.
hula_dancerView Thread
View Thread
We're happy to announce the launch of a new tool here at WebMD that we think our members will enjoy -- WebMD Answers .
While community is a place to get to know your fellow members and experts on a deep and supportive level, sometimes folks just want to ask a question and receive an answer. That's what WebMD Answers is all about.
Do you have friends that you've tried to get to join you here in community, but they feel they don't have the time to spend? Maybe Answers is a tool they can use for quick access.
Anyone can ask a question, and anyone can answer a question. Experts, partner organizations, staff and moderators will also be responding to some questions.
We invite you all to go in and check it out today. If you have any questions about this new tool, post them here and we'll try to help you out.
The WebMD Community Staff
View Thread
I've been suffering with Epilepsy for approximately 14 years (late adolescent onset). My seizures are consistent; grand mal, no aura, generalized.
I suffered two seizures a couple of weeks ago on the same day, which is not normal for me. The first did not involve convulsions, but was witnessed at work. The second was in line with those described above.
My question is around auras. I've never had them in the past (and didn't on the occasion mentioned). That said, when I reflect back over the year, there were a couple of scenarios where I had a feeling that very much felt like an aura (or as I've seen/heard them described). The symptoms included a general feeling of something "not being right", extreme nausea and dizziness. During these scenarios I sat down, head between my knees, and the feeling soon passed. I didn't suffer a seizure (that I'm aware of), and people were around. I suspect these as auras, as they were different from anything I've ever felt before (in terms of dizzy spells, nauseousness, etc.)
Has anyone else had a sudden onset of auras? Is this normal? Unfortunately I just met with my Neurologist, and neglected to mention this (as I hadn't put this all together).
Any thoughts or suggestions? Any help would be greatly appreciated!View Thread
As Candi pointed out in a post, one of our discussions was featured on the WebMD Facebook page yesterday:
If you have epilepsy or care for someone who does, the members of our Epilepsy Community suggest keeping a journal to track your health. So, what would you track besides seizures? Learn more. Do you journal? http://forums.webmd.com/3/epilepsy-exchange/forum/2115/6
The post received 100+ "likes" and a comment from our own Jeanne Phelps. The WebMD Facebook page has 162,000+ fans so this exposure might reach others who could benefit from this smart and supportive community
Have a great day everyone!
Haylen
p.s. If you are a "facebooker", be sure to "like" WebMD here: https://www.facebook.com/WebMDView Thread

Love CandiView Thread
Especially when there is still no evidence that any of these so called treatments have any effect at all.
But do in fact only demonstrate (measurably.... ) that they do in fact have innumerous harmful and permanent irreversable "effects".
Shut me up somebody please.
With intelligent scientific answers.
You wouldn't put Warfarin in your leach farm would ya?
Troubled by Pharms
View Thread
Let's check in!
Your location/current weather: Raining! The first rain in ages. I
Plans for the weekend? Kids activities - swimming and brownies and parties. I'm trying to take 10,000 steps a day using a pedometer so I'm going to try and get the family to take a hike with me.
Most favorite dessert Pumpkin anything! Pie & ice cream - yum! Trader Joes has pumpkin breakfast bars that are great. The local Yogurtland just debuted pumpkin frozen yogurt. I could eat 10 pounds
Who is next?
Haylen
View Thread
View Thread
This is leading up to sharing with you that I have been able to begin living indepently again. I gave up my apt in Mpls to move to Vegas with my parents in '07.
With the help of the Southern Nevada Center for Independent Living(SNCIL) and Accessible Space, Inc(ASI), I recently moved out of Sin city into Henderson, NV, just east of Vegas.
The SNCIL and ASI are two organizations who work with people with disabilities to assist them with housing, employment, counseling, state assistance, etc. These two groups share our beliefs that a disabitliy is no reason to quit searching for your own dreams.
I'm sharing this news with you because I want you to feel that it is possible to acheive what you want. You simply need to be strong and determined, and find the right support team. Don't give in to those who wish to keep us in a box because they doubt that we are able to do, or to be a productive person in society.
The first step is always the hardest and the most important whether it's to return to school, brain surgery, or to reclaim your life from your family. It is possible. Think about it.
angieView Thread
A sudden pause in what he is doing, usually during something tedious like folding laundry (and in his sleep), he begins smacking his lips like he is sucking on his own mouth, staring off, and moving his right thumb in circles or rubbing his thumb and fingers together. He sometimes responds during these episodes, which do not last very long, but doesn't remember anything after.
He is currently taking Lamictal, which has controlled his episodes pretty well even at low doses. The problem is, each time he has breakthrough episodes, they increase his dose a bit and it works for several months only to breakthrough again, increase the dose, repeat.
I am wondering--why? What is going on in the head that his body "gets used to" the medicine and the episodes come back.
Currently they are very brief and very few. Tonight it occurred as he was putting a trash bag in the container. I heard the plastic rustling and his mouth going. I walked about to him, put my arm around him and asked if he was okay. He said yes, that he felt weird though. He came around quickly but behaved oddly--which is the usual way it goes.
I'd like to understand it. I plan on calling his dr., who will likely raise the dose and we will do this again in a few months...View Thread
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