Skip to content

phylisfeinerjohnson

Joined: 02/05/2010
My Story:
When I got epilepsy at the age of 14, my parents wouldn't even say the "e" word. (And my step-father was a surgeon!) I was told I would "never amount to anything" and treated like damaged goods.

Ha! I became a writer and had my own thriving freelance business for 28 years. Then after almost dying (cascading seizures, heart attack, coma, life support, the whole thing) I went into rehab where I had a lot of time to think.

I couldn't even find my keyboard for 3 months. And it took me 15 minutes to write a 2 line email. Pretty sad for a writer.

When I finally "recovered," I decided to ditch my "day job" and become a full time epilepsy advocate.

So, I'm still a writer...but one with a different focus.

Latest Activity

Filter by:
Adult Epilepsy Support Groups — Updated
I know that starting a support group is definitely not for everyone. However,...More
Teen Epilepsy Support Groups
In recent years, support groups that cater specifically to teens with epilepsy...More
Responsive Neurostimulation (RNS) Shown to Reduce ...
The idea that we can implant a Star Trek-type device that will detect seizures...More
Medical Marijuana — It’s Here To Stay
Let's face it. The time has come. Even the FDA has opened its eyes with new...More
Memory Tips You (Hopefully) Won't Forget!
I have a confession to make. I'm the queen of "Post-Its". I have Post-Its on...More
Was this Helpful?
YesNo
2014-2015 Comprehensive List of GOOD Neurologistsâ...
This is a compilation by website forum members who have had positive...More
Was this Helpful?
YesNo
Adult Epilepsy Support Groups -- Updated
Here's a list of Adult Epilepsy Support Groups across the country that I've...More
Adult Epilepsy Support Groups — Updated
Here's a list of Adult Epilepsy Support Groups across the country that I've...More
Was this Helpful?
YesNo
Top Doc Update
It's time to complete the final update of 2012 List of GOOD...More
The definition of FEAR:
F = False E = Evidence A = Appearing R = Real Phylis Feiner Johnson ...More

For more information, visit the Duke Health Epilepsy Center