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phylisfeinerjohnson

Joined: 02/05/2010
My Story:
When I got epilepsy at the age of 14, my parents wouldn't even say the "e" word. (And my step-father was a surgeon!) I was told I would "never amount to anything" and treated like damaged goods.

Ha! I became a writer and had my own thriving freelance business for 28 years. Then after almost dying (cascading seizures, heart attack, coma, life support, the whole thing) I went into rehab where I had a lot of time to think.

I couldn't even find my keyboard for 3 months. And it took me 15 minutes to write a 2 line email. Pretty sad for a writer.

When I finally "recovered," I decided to ditch my "day job" and become a full time epilepsy advocate.

So, I'm still a writer...but one with a different focus.

Latest Activity

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Doctors Distracted by Electronic Devices
Do you know what happens during surgery? Cut,open, correct, sew. Maybe some...More
What would you do if you knew you couldn't fail?
All of us have dreams. Some become reality and some stay in our imaginations. ...More
Call Now To Get A Medicare Enrollment Extension
Federal officials are extending today's deadline for some people picking a...More
Let us be thankful…
In 5 minutes you can help feed the hungry around the world, provide free...More
Let us be thankful…
In 5 minutes you can help feed the hungry around the world, provide free...More
Epilepsy Studies: True or False?
http://epilepsytalk.com/2011/11/03/epilepsy-studies-true-or-false/ There's...More
Defined: 40+ different types of seizures
When I was first diagnosed with epilepsy, there were two kinds of seizures. ...More
Hello Generics, Goodbye Big-Name Drugs
From NPR 05:22 am October 24, 2011 by FRED MOGUL Some of the most popular and...More
Increased Birth Defect Risks in Two FDA-Approved E...
Two epilepsy drugs — Lamictal and Keppra — which are currently...More

For more information, visit the Duke Health Epilepsy Center