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phylisfeinerjohnson

Joined: 02/05/2010
My Story:
When I got epilepsy at the age of 14, my parents wouldn't even say the "e" word. (And my step-father was a surgeon!) I was told I would "never amount to anything" and treated like damaged goods.

Ha! I became a writer and had my own thriving freelance business for 28 years. Then after almost dying (cascading seizures, heart attack, coma, life support, the whole thing) I went into rehab where I had a lot of time to think.

I couldn't even find my keyboard for 3 months. And it took me 15 minutes to write a 2 line email. Pretty sad for a writer.

When I finally "recovered," I decided to ditch my "day job" and become a full time epilepsy advocate.

So, I'm still a writer...but one with a different focus.

Latest Activity

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Ground-breaking new research on origins of adult e...
In a ground-breaking new study which appears online in the Annals of Neurology,...More
A neurologist talks about his own epilepsy…
In this eye-opening article from the New York Times, a neurologist talks about...More
Brain Food for Your Health…
Please understand, I am NOT saying that these supplements will cure, treat or...More
Protect The Medicaid Program…NOW!
Both the US Senate and House are back in DC and in session this week. Now is...More
Reply: on the map
After 12 schools in 12 years, I finally found a home of my own when I got...More
What everyone with epilepsy should know about thei...
Touch your neck, right above your collar-bone, and you'll find a little gland...More
Tell Republican extremists in the Senate: Stop att...
40 Republican extremists in the Senate voted to end Medicare as we know it. ...More
Adult Epilepsy Support Groups
Do you have any Adult Epilepsy Support Groups near you? I'm trying to...More

For more information, visit the Duke Health Epilepsy Center