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phylisfeinerjohnson

Joined: 02/05/2010
My Story:
When I got epilepsy at the age of 14, my parents wouldn't even say the "e" word. (And my step-father was a surgeon!) I was told I would "never amount to anything" and treated like damaged goods.

Ha! I became a writer and had my own thriving freelance business for 28 years. Then after almost dying (cascading seizures, heart attack, coma, life support, the whole thing) I went into rehab where I had a lot of time to think.

I couldn't even find my keyboard for 3 months. And it took me 15 minutes to write a 2 line email. Pretty sad for a writer.

When I finally "recovered," I decided to ditch my "day job" and become a full time epilepsy advocate.

So, I'm still a writer...but one with a different focus.

Latest Activity

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When you first told someone you had epilepsy, what...
When you told a relative, friend or lover, that you had epilepsy, how did they...More
Do You Know Where Your Charity Dollars Go?
These days, because of Federal budget cuts, virtually EVERY non-profit is...More
Epilepsy Foundation Applauds EEOC for New Rules Un...
When I went to the Philadelphia "Town Hall" meeting for the EEOC, it was very...More
Contamination Responsible for Topamax Recall…
Just when you thought you were safe, yet another AED is being recalled for the...More
What’s Closed (And What’s Not) In A Government Shu...
Entitlements And Financial Services — From NPR 4/8/2011 If you're...More
Medicare rise could mean no Social Security COLA
From Associated Press -- 3/27/11 ...More
Epilepsy Advocacy Letter -- Part #1
I've been stuffing mailboxes in my area, trying to make a dent in epilepsy...More
Epilepsy Advocacy Letter -- Part #2
(Second Sheet:) Epilepsy Myths Live On… Just when you thought today's...More

For more information, visit the Duke Health Epilepsy Center