phylisfeinerjohnson

Joined: 02/05/2010
My Story:
When I got epilepsy at the age of 14, my parents wouldn't even say the "e" word. (And my step-father was a surgeon!) I was told I would "never amount to anything" and treated like damaged goods.

Ha! I became a writer and had my own thriving freelance business for 28 years. Then after almost dying (cascading seizures, heart attack, coma, life support, the whole thing) I went into rehab where I had a lot of time to think.

I couldn't even find my keyboard for 3 months. And it took me 15 minutes to write a 2 line email. Pretty sad for a writer.

When I finally "recovered," I decided to ditch my "day job" and become a full time epilepsy advocate.

So, I'm still a writer...but one with a different focus.

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Memory Tips You (Hopefully) Won't Forget!
I have a confession to make. I'm the queen of "Post-Its". I have Post-Its on...More
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Make sure no changes are made to your medicationsâ...
This letter has been created by the Epilepsy Foundation to make explicitly sure...More
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LATE BREAKING NEWS! KEPPRA XR GOES GENERIC!
MORRISTOWN, N.J., Sept. 13, 2011 /PRNewswire/ Watson Laboratories, Inc. has...More
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South Carolina Epilepsy Support
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“Epilepsy Meetup” — Support Groups Around the Worl...
If you're looking for a support group — or if you want to start your own...More
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Very cool new epilepsy poetry book
There's a very cool new book of poetry out by Maggie Mendus. It's called...More
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