Update: a couple of weeks ago, having an exhausting day, we let Isaac take responsibility for putting himself to bed. The next morning, we found he had chosen to stay up all night. Later that day, he had a seizure. Obviously this was a scary experience. But we're hoping it may help to nail down his tic as perhaps epileptic activity of some form, not to mention reinforcing to him the importance of sleep.View Thread
I've got my email listed on my profile. As for the other parents, I replied to their posts, as well as sent them private messages via that forum...their contact info wasn't listed. They have not responded so far. RandyView Thread
Sorry I didn't respond sooner, I didn't get a notification of your response. I found posts on other forums about the same behavior, beginning with extending the neck back and rolling the eyes, and progressing within months to the hand-waving. In each case it affected boys 7-12. So far I haven't gotten in touch with any of these other parents. We are still seeking answers. I don't have any more information for you, but I'll update you on our progress. Please let us know how your son's doing. RandyView Thread
Reflex epilepsy seems a likely culprit (he reacts to light, and his mother has had seizures), but not for sure. The odd thing we want answered is this: he is somehow drawn toward the light, and will sometimes leave shade to go into the light and perform the tic. He doesn't want to, but is compelled to. We haven't yet found that tendency, or compulsion, whatever you want to call it, in descriptions of reflex epilepsy. That's what makes us wonder about some possible psychological explanation, or it's a tic aggravated by stress, or.....sigh.View Thread
Candi- First of all- it's "Dad"- Secondly- thank you so much! ("Mom" thanks you too.) I certainly appreciate all that doctors do, but it is frustrating when they can't at least point us in the right direction. Thank goodness for the internet! Hopefully we'll be able to get our guy some help, armed with a little more information now.
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