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ewolfe314

Joined: 08/22/2010

My Story:

Well my name is John and my first seizures started back in 1988. Then in July of 1988 after working a 12 hour shift I came home and woke up in the morning with the back of my head bleeding and laying face down on the bathroom floor. I have no idea on how I got upstairs to the bathroom or even ended up on the floor. That is when I finally went to the Dr. and he sent me to a nuerologist.

I went through all the tests,cat scans,eeg's ,mri's,blood tests. After the final MRI I was advised by my Dr. to report to the hospital the very next morning for surgery as the MRI revealed a tumor on my brain. After surgery I was in the ICU for 11 days til they regulated my meds,Dilantin and phenobarbital at that time. 150 mg of phenobarbital and 500 mg of Dilantin daily. As soon as I was released from the hospital I had to go through 6 weeks of radiation treatment every day for about 15 minutes.

So here I thought that everything was done and no more passing out from Grand Mal seizures. Boy was I wrong, the seizures kept reoccuring for a few years til they just about stopped. For the first 2 years I slept like a rock and did not have a single dream in those 2 years,I forgot things that I did when I was younger and was very forgetfull of current things.

I raised my 3 children on my own during this twin girls that were 3 years old and my son who was one. They kept me fighting through this ,if it were not for them I would have given up. There Mother left me about a year after the surgery,as it was to much for her to go through and she took my children away from me. I ended up fighting her in court and was granted physical custody and my dream kids came home with there dad.

During this time with my children now at home I was able to enroll them in Head Start and volunteered every day in school with them. I was the chair person of the Policy Council in our County and won the Volunteer of the Year Award while there.

Then came little league,which was right across the street from my house, I coached there for 6 years and then after my kids moved on up to other sports I continued volunteering for another 12 years tajing care of the field and painting, cleaning up and so on up until 2 years ago when I finally had to leave. It just got to much for me.

So 2009 it was time to do my house , First putting up a retaining wall,then a 5 foot fence,adding top soil to the backyard and finally I just finished off all the siding on my house, got my garden going,built a small pond with goldfish and guppies in it and drilled some holes through rocks and have a nice little water feature for the birds to drink out of.

Now I am trying different meds as my new neurologist has taken me off phenytoin and started me on Keppra 1500mg daily and 180 mg phenobarbital daily. SO as of now I am just waiting to see if this helps and I hope it does.

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Reply: changing anti-seizure meds

Hi Bargermom, I went through this. My Neuro Doc had it so that within 6 weeks I would...

Posted by ewolfe314

12 Replies | Reply | Watch This DiscussionReport This| Share this:changing anti-seizure meds Hi Bargermom, I went through this. My Neuro Doc had it so that within 6 weeks I would...

Reply: New Breakthrough Epilepsy Surgery!

HI Candi, Yes I am finally back and my med merry go round is over. The keppra has done...

Posted by ewolfe314

HI Candi,

Yes I am finally back and my med merry go round is over. The keppra has done wonders for me. A lot better then the dilantin that I was on. My new nuero doc did tell me that the scar tissue could be the result of me having seizure disorders. I see him again just before christmas and I'll have to ask him what his thoughts are on the scar tissue with this new procedure.

Well what have I been up to. Here we go. In March I began digging the pond. April 3rd I officially opened it up,meaning adding water and fish.I ended up building it so that it would stand up to the winter freeze here in Pennsylvania. It's 10 foot long by 5 foot wide and 4 foot deep.Got it loaded with perch,bluegills,sunfish,rock bass and large mouth bass.My wife then added 2 shubumkins (smaller koi). I first started it out with goldfish but due to the power of my filters,the filters sucked up all the goldfish. There use to be minnows in there,but the bass took care of them. Also added lots of plants such as water hyacynths,cattails among others.

As soon as I finished the pond,had to get my garden going.The tomatoes are just about finished, been pulling off one pounders,making pickles and just baked my first blueberry pie. And now just waiting on the potatoes and onions and corn. And my favorites the brussel sprouts have a ways to go,last year it was the end of October to early November when they were finished.Right now the brussel sprout plants are 4 foot high

Been out fishing quite a bit,at least 2 times per week and just baking in the sun.

As for my kids, my one daughter moved back in with us after having bad problems with her boy friend and she is now dating a State Trooper and my other daughter out in the Pittsburg area has given me the most precious grandchildren that you can ever ask for,a boy and a girl. Now don't forget my girls just turned 24 in July.

Not sure if you remember,but my son passed away last October at the age of 21 and he also left behind a gorgeous grandson who everytime he comes over all he and the other grandson say is fishies due to the fact that I have 3 aquariums in the house.. Took them outside to the pond to see the pond fish and they love it.

So other then that,everything has been fine, just keep on trying to get my wife to go fishing but thats a no-no,she's scared of bugs,lol. Sometimes I think to myself thats why God created bugs to give us men some time alone,lol.

So how is everything going with you?? I've been in here on a monthly basis but for some reason I could not post anything ,I forgot my password and just changed it the other day.

HUGS

JohnView Thread

Posted byewolfe314

6 Replies | Reply | Watch This DiscussionReport This| Share this:New Breakthrough Epilepsy Surgery! HI Candi, Yes I am finally back and my med merry go round is over. The keppra has done...

Reply: New Breakthrough Epilepsy Surgery!

I wish this was around in 1988. I had the brain surgery done and the scar tissue that was...

Posted by ewolfe314

6 Replies | Reply | Watch This DiscussionReport This| Share this:New Breakthrough Epilepsy Surgery! I wish this was around in 1988. I had the brain surgery done and the scar tissue that was...

Reply: First timer here--question about Dilantin dose and...

Hi Calvin, I am by far not a Dr. but I was first put on Dilantin And Phenobarbital. ...

Posted by ewolfe314

7 Replies | Reply | Watch This DiscussionReport This| Share this:First timer here--question about Dilantin dose and side effects Hi Calvin, I am by far not a Dr. but I was first put on Dilantin And Phenobarbital. ...

Reply: Keppra

Hi Jason, When I take my keppra in the morning, I go out like a light. Come for night...

Posted by ewolfe314

6 Replies | Reply | Watch This DiscussionReport This| Share this:Keppra Hi Jason, When I take my keppra in the morning, I go out like a light. Come for night...

I need some medical advice concerning the seizure ...

I had a brain tumor removed in 1988 and I suffer from Grand Mal seizures on occasion. I...

Posted by ewolfe314

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4 Replies | ReplyReport This| Share this:I need some medical advice concerning the seizure I just had I had a brain tumor removed in 1988 and I suffer from Grand Mal seizures on occasion. I...

Reply: Hi Everyone I am here to answer questions

Bob, I get my blood levels done every 6 months.Now the only blood they need is for the...

Posted by ewolfe314

14 Replies | Reply | Watch This DiscussionReport This| Share this:Hi Everyone I am here to answer questions Bob, I get my blood levels done every 6 months.Now the only blood they need is for the...

Reply: Hi Everyone I am here to answer questions

Hi Bob, I had a brain tumor removed on the right side of my head. Right after I got out...

Posted by ewolfe314

14 Replies | Reply | Watch This DiscussionReport This| Share this:Hi Everyone I am here to answer questions Hi Bob, I had a brain tumor removed on the right side of my head. Right after I got out...

Is there such a thing as just a seizure-disorder o...

Just as the title says. I have been on Meds for seizure disorder for many a years and not...

Posted by ewolfe314

1 Reply | Reply | Watch This DiscussionReport This| Share this:Is there such a thing as just a seizure-disorder or epilepsy Just as the title says. I have been on Meds for seizure disorder for many a years and not...

Merry Christmas everybody

Just wishing everybody a Merry Christmas and have a great holiday. Watch what you...

Posted by ewolfe314

1 Reply | Reply | Watch This DiscussionReport This| Share this:Merry Christmas everybody Just wishing everybody a Merry Christmas and have a great holiday. Watch what you...

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