Each year, WebMD's Health Heroes are announced in the pages of the November/December issue of WebMD the Magazine.
One of this year's honorees lost a son to an epileptic seizure and have set up "The Matty Fund ", providing information and resources to other families dealing with epilepsy. An excerpt from the feature and link to information about all of the 2012 Heros below.
Richard and Debra Siravo's 5-year-old year-old son, Matty, died after a prolonged epileptic seizure in 1998. Rather than succumb to grief or anger, Debra, a schoolteacher, and Richard, who owned an insurance adjuster business, decided to help others. Starting in their basement in Wakefield, R.I., they set up "We couldn't return to our jobs or daily routine," Richard says. "No one was assisting Rhode Island families dealing with epilepsy at the time." Adds Debra, 49, "We wanted to take something horrific and turn it into something positive."
I suggest that you start a brand new post with the orange "Post Now" Discussion option. The title could be something like Updated Epilepsy Resource Links - November 2012. I can then remove the 4 year old post.
Then you can add all of the links you think are important that are still viable. I'll then stick to the top of the community or put it in the Announcement box up there ^^^^^ so it is always available. I have some resources from our site and other links I'll add as well!
The "Now I Know" campaign was just launched asking "When it comes to epilepsy, what do you know now that you wish you knew sooner?". The National Epilepsy Foundation is asking those with epilepsy, their friends, family and caregivers to share through a video what they've learned, and what resources have helped them.
Candi - I'm sure you would be mentioned in many videos for being a great resource! You're such a valuable member of this community and I thank you for being here along with the other amazing "regulars" who welcome newbies, share information and give support.