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saxofone1

Joined: 03/20/2011

My Story:

My epilepsy began March 27, 1975. It was spring break from the 8th grade. I was 9 days short of being 14.

My initial EEGs were negative though seizures had been witnessed by family, friends, and doctors. Because the seizures looked like petit mal(aka absence) I was put on Zarontin. When seizure activity did show, the docs said they were not the petit mal but psychomotor(now known as complex partial.) "We have to change her meds."

The early seizures lasted only about 8-10 seconds. Sensation...seizure...headache/tired. As time passed, the seizures became more motorized. I was picking at my clothes, smacking my lips, rubbing my hands or tapping my foot.

Time to fast forward. Over the years the seizures worsened. The auras disappeared. My seizures were being followed by a period of confusion. I was aware that I was confused. Later I had no recall of my confusion. I knew a seizure had passed because of a loss of time. It was like starting at block a and suddenly finding myself at block e. No recall of blocks b, c,or d. No recall of changing clothes, taking phone messages, crossing streets,etc.

Let's fast forward again. I had a partial right lobectomy in '02. The grids were placed on the morning of my 41st birthday. Um, what a gift! From '03- to sometime in 07, I was seizure free.

For unkown reasons, the seizures decided to do an encore performance in August '07. I had made a move from Mpls to Vegas in March '07. Who knows, maybe it was the altitude or my plate slipped. Hmmm?

Though seizure activity was happening again, I have no regrets about my lobectomy in '02. Before the surgery, I was experiencing 12-20 seizures a month. Now I'm dealing with 1 about every 3.5 months. I have no reason to complain about the one that still lingers. My daily meds have been cut down from 7000mgs a day to 3500mgs/day. Great progress.

I am currently happy here in Vegas. I have a great support group at a local hosp. Plus the support of all of you!!!

angie, raidergirl79@yahoo.com

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Reply: Keppra question/appetite

Hi Kim, Welcome back! I never had the appetite problem with Keppra. Like Candi's...

Posted by saxofone1

3 Replies | Reply | Watch This DiscussionReport This| Share this:Keppra question/appetite Hi Kim, Welcome back! I never had the appetite problem with Keppra. Like Candi's...

Reply: switching seizure medicines

Hi Jen, If you want to continue this in another conversation let me know where to find...

Posted by saxofone1

44 Replies | Reply | Watch This DiscussionReport This| Share this:switching seizure medicines Hi Jen, If you want to continue this in another conversation let me know where to find...

Reply: period off and sweating

Hi invincible, I love your screen name. You are a fighter! I had similiar troubles...

Posted by saxofone1

5 Replies | Reply | Watch This DiscussionReport This| Share this:period off and sweating Hi invincible, I love your screen name. You are a fighter! I had similiar troubles...

Reply: Why am I in such a bad mood all the time? Keppra?

Jason, I do hope you're not a Steelers or Cowboys fan. We west coast people despise...

Posted by saxofone1

17 Replies | Reply | Watch This DiscussionReport This| Share this:Why am I in such a bad mood all the time? Keppra? Jason, I do hope you're not a Steelers or Cowboys fan. We west coast people despise...

Reply: switching seizure medicines

Hi Jen, Thanks for your concern about my being "alone." I have had a steady flow of...

Posted by saxofone1

44 Replies | Reply | Watch This DiscussionReport This| Share this:switching seizure medicines Hi Jen, Thanks for your concern about my being "alone." I have had a steady flow of...

Reply: switching seizure medicines

Thanks Candi, I also shared this news with Dana and other friends, and they are simply...

Posted by saxofone1

44 Replies | Reply | Watch This DiscussionReport This| Share this:switching seizure medicines Thanks Candi, I also shared this news with Dana and other friends, and they are simply...

Reply: switching seizure medicines

Hi J, I don't know if there is a particularly med that is for the younger crowd. You...

Posted by saxofone1

44 Replies | Reply | Watch This DiscussionReport This| Share this:switching seizure medicines Hi J, I don't know if there is a particularly med that is for the younger crowd. You...

Reply: switching seizure medicines

Hi Jen, The appointmemt this morning went well. Thanks for your support. Jessica(the...

Posted by saxofone1

44 Replies | Reply | Watch This DiscussionReport This| Share this:switching seizure medicines Hi Jen, The appointmemt this morning went well. Thanks for your support. Jessica(the...

Reply: switching seizure medicines

Hi Jen, Thanks for your support regarding Monday's appt with the elementary school. I...

Posted by saxofone1

44 Replies | Reply | Watch This DiscussionReport This| Share this:switching seizure medicines Hi Jen, Thanks for your support regarding Monday's appt with the elementary school. I...

Reply: switching seizure medicines

Hi Jen, Sounds like you'll be okay with the rest of the med changes. If I could find...

Posted by saxofone1

44 Replies | Reply | Watch This DiscussionReport This| Share this:switching seizure medicines Hi Jen, Sounds like you'll be okay with the rest of the med changes. If I could find...

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