I had a reaction to cigarette one day. I was visiting a neighbor who happened to be a chain-smoker. I became very nauseated and had a bad headache later. One or two days later, I had a seizure. I mentioned this to my nurse who said that the smoke likely caused an interruption of oxygen to the brain. This interference most likely caused the seizure.
Like you said, "anything is possible". I simply logged that episode in my book and avoid smoke as much as possible.
I have no regrets about the lobectomy. Well, I do have one. I regret that I didn't have it filmed so that I could watch the procedure.
I had no unusual pains during, or after the surgery. The head bandages were uncomfortable in the beginning. Occassional headache that focused around the incision. Overall, I was very comfortable during my stay.
I did have to take an extended LOA from work due to a temporary bout of confusion. That passed too. It was frustrating not being able to return to work as the docs and I had expected but it worked out well.
I do have an occassional seizure still. But I will take 1 seizure a year against 20/month. Prior to the surgery, I was taking 4 AEDs. I am now on two!!! I was never expecting complete seizure-freedom. Didn't want to set myself up for a disappoint. The 99.99999 decrease in activity is simply wonderful.
Have you started any testing to find out where the seizures begin?
I'll contact a friend who had the lobectomy some months prior mine. We had the same med team who thought I would benefit from her experience. It worked out very well.
Candi has shared with you what general info I could give you right now. So I simply say "TAKE HER WORDS SERIOUSLY".
My seizures came out of nowhere 39 yrs ago. It was a shock to the family. The docs made a connection of meningitis to the appearance of my seizures. I had meningitis as an infant.
Your mention of bleach reminded me of an episode I had a few times with a McDonalds' fishburger. Shortly after I had eaten it, I had a seizure. Was it the fish, tartar sauce, or just a coincidence? The second incidence was similiar to the first but yrs apart. I simply mentioned it and keep moving foreward.
My seizures were real(and witnessed by family/friends/docs but nothing showed on the tests for about 2 yrs. As Candi said, timing can be an issue when searching for answers.
Good luck with this new journey. Do keep us posted on how you're doing...this includes your emotions too. Rant when you need to. Always ask questions.
I'm recovering from an acute respiratory infection that had me down the entire month of Feb. I finally feel good enough to return to my volunteer job at a nearby elementary school.
No snow here in Vegas but we do expect some rain. I can handle that.
Yes, that is me with the head wrap. Dana(clarinet2) is standing beside. This pic was taken the week of my lobectomy in April '02.
My seizures are 99.999 gone. I had a breakthrough earlier this year that was due to a hit in the head by a special needs kid. I quickly removed myself from that classroom. I laugh about it cause we're never too old to learn.
Candi emailed me about your concerns. I've been dealing with a respiratory infection for about a month and simply had no energy. Lost some weight too. Time to shop.
I had a partial right lobectomy in '02. I had a bout of amnesia for a while which delayed my returned to the classroom. At that time I was working at an elementary school with a pre-k class.
I started working with kids in the mid-80. They never had a problem with my ep. I broke it down to them using words that they understood. One kindergartener was concerned that I was contagious whereas another was concerned that a seizure would hurt me. Once I answered their questions, things were okay.
How to handle post-surgery is an individual thing much like the seizures are. What helped me was to get away from my familiy who jumped at every move I made. Idefinitely kept a notebook on all concerns, questions, or anything that was out to the ordinary for me.
Don't treat your friend as an invalid. That is most annoying!!! Whatever your friend can do for him/herself that does not bring damage to hte healing side of the skull or risk one's health, PLEASE BE SUPPORTIVE.
Do be aware of anything that you feel is out of the ordinary. Keep your own notes. Possibly go to the next appt if you can. outsiders views can be very helpful.
Was your friend able to get a PCA for the heavy work around the home. You know, mopping the floors, doing the laundry. Ctivies that require lifting or bending. I had one and she was of great help. Visitied me twice a week until I was cleared to do it myself. I think it was shortly after the staples were removed. Was I happy to be able to clean my apartment again.
The amnesia I experienced did delay my return to work It was my decision to extend my LOA. When I fetl comfortable returning to work, I had already released my position at the school. I was then invited to do some volunteer work at a previous school site until I found a new position.
That was a great move on my part. The kids were my daily therapy. I was very appreciative of the teachers who were aware of my ep and surgery cuz they gave me the room to do the work that they knew I could but stayed distantly on the alert in case of an emergency. The kids did the same.
Despite that period of amnesia, I think I had a fine recovery because I stayed active. I found something productive to do that didn't threaten the surgery outcome. I was also surrounde by positive people who gave me encouragement to keep moving forward but reminded me that I didn't have to do everything at once. I also had a great medical team in my corner.
I'll get in touch with a girlfriend who had the same surgery as me a few months earlier. I met her throught my epileptologists. She walked me through the entire procedure.
Yes, Candi, I'm talking about Dana(aka clarinet2). She is still recovering from her respiratory infection too.
Hey Wahoo, click my pic and read my story. I think with love and support your friend should be fine. Thanks for your concern.
Those VEEGs are really boring but very necessary for some of us. Try not to fret about being off your meds cause having a seizure while on video is great for the docs and you. Being able to see and catch a seizue on tape as well as the EEG can lead to the missings answers.
I was on Vimpat for a couple of yrs. The side effects were terrible for me. I hope you have an easier time with it. If however you start to feel too out of sorts, let your doc know. We are their teachers as to how meds work.