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saxofone1

Joined: 03/20/2011
My Story:
My epilepsy began March 27, 1975. It was spring break from the 8th grade. I was 9 days short of being 14.

My initial EEGs were negative though seizures had been witnessed by family, friends, and doctors. Because the seizures looked like petit mal(aka absence) I was put on Zarontin. When seizure activity did show, the docs said they were not the petit mal but psychomotor(now known as complex partial.) "We have to change her meds."

The early seizures lasted only about 8-10 seconds. Sensation...seizure...headache/tired. As time passed, the seizures became more motorized. I was picking at my clothes, smacking my lips, rubbing my hands or tapping my foot.

Time to fast forward. Over the years the seizures worsened. The auras disappeared. My seizures were being followed by a period of confusion. I was aware that I was confused. Later I had no recall of my confusion. I knew a seizure had passed because of a loss of time. It was like starting at block a and suddenly finding myself at block e. No recall of blocks b, c,or d. No recall of changing clothes, taking phone messages, crossing streets,etc.

Let's fast forward again. I had a partial right lobectomy in '02. The grids were placed on the morning of my 41st birthday. Um, what a gift! From '03- to sometime in 07, I was seizure free.

For unkown reasons, the seizures decided to do an encore performance in August '07. I had made a move from Mpls to Vegas in March '07. Who knows, maybe it was the altitude or my plate slipped. Hmmm?

Though seizure activity was happening again, I have no regrets about my lobectomy in '02. Before the surgery, I was experiencing 12-20 seizures a month. Now I'm dealing with 1 about every 3.5 months. I have no reason to complain about the one that still lingers. My daily meds have been cut down from 7000mgs a day to 3500mgs/day. Great progress.

I am currently happy here in Vegas. I have a great support group at a local hosp. Plus the support of all of you!!!

angie, raidergirl79@yahoo.com

Latest Activity

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Reply: jessica
Hi taz Welcome to the group. As Candi says, feel free to share your concerns and don't...More
Posted by saxofone1
Reply: Hello Everyone!
Hi Panda, Good to hear from you. Yahoo on that seizue-free period !!! It's great that...More
Posted by saxofone1
Reply: Still trying to get used to all this
Hi millyg We all need to ramble from time-to-time for whatever reason. In short, do...More
Posted by saxofone1
Reply: Carbamazapine
Hi Ronda, Glad to hear from you and know that I didn't unnerve you. If you're like my...More
Posted by saxofone1
Reply: Sudden Epilepsy
Hi Joe, aka Bulldog, I've read alll the posts that you and Candi have submitted. ...More
Posted by saxofone1
Reply: Carbamazapine
Hi Ronda Hope things are going okay and that we have been helpful to you. I also hope...More
Posted by saxofone1
Reply: Carbamazapine
Hi Ronda, My initial seizures looked like the petit mal, aka simple seizures, when all...More
Posted by saxofone1
Reply: Carbamazapine
Hi Ronda, Yes, that is me in the turban. Dana is standing beside me. My mom is still...More
Posted by saxofone1
Reply: Carbamazapine
Hi Ronda, and welcome to the family, Like Candi I'm not a doctor but have much...More
Posted by saxofone1
Reply: Getting frustrated
Hi rtothnj, I too would like to welcome you to the Community. Like Candi, I'm no doctor...More
Posted by saxofone1

For more information, visit the Duke Health Epilepsy Center