Like Candi, the selections have erased half of my years. It will be 40 years this coming March 27 since my first seizure. It has been a roller coaster of a ride with those big dips as well as little bumps along the way.
Any questions? Is ep a part of your or a loved ones's lfe, or a simple curiosity?
People with ep can certainly have retention issues.
I sure did through my high school and early college years. High school was so frustrating. I knew the answers to tests/quizzes but couldn't recall them until that nite. The light bulb would go on later that day, and I'd kick myself for writing/saying the wrong answer.
As Candi said it can be the meds or the seizures themselves. My ep is located the lobe area that is responsible for memory. The depressant effect of the meds were also a big influence on the downfall of my short-term memory.
If you are in school, find the way that works for you in regards to strengthing your memory. Teachers and counselors can be of great support when they understand the circumstances.
I wish you well. Do your best not to become discouraged. I how it feels when you know something but it just won't come to mind at the right time.
I understand the struggles you're facing. Many people of the Black community have similiar discomforts/misunderstandings about ep. I think it goes back to my African descendants who were very spiritual in the believes about God vs the devil. These fears were brought over from Africa and continue today.
Lack of exposure and education plays a big part. Too many people are afraid/embarrassed to ask questions.
I met a girl from Liberia who has epilepsy when I lived in Mpls. Her family was terrified of her. She told me that they were afraid to use her plates, glasses, silverware, etc cause of the fear of "catching a seizure".
I have always been open to all questions about epilepsy. It is jsust a matter of finding the person who is curiosity is stronger than one's fear
I've been dealing with it since my 1st one in '75. It does hurt when people have already assumed your lot in life before they know name.
Keep putting the word out until you find someone who will listen. Simply takes one to get a conversation going. Hang in there.
This must be very upsetting and scary for you. And for your son.
Please let him know that if he were to do a self-withdrawal, suddenly stopping his meds, could be extremely dangerous. A seizure eruption could occur with many harmful results.
I do strongly feel that we are given what we can handle. The idea is to learn to handle it. We must also want to handle it so that it brings no further harm to ourselves or others. We must fight to be stronger than our over-active brain, or whatever it is that disrupts our productivenes.
Withdrawal sucks!!!! That's the politest way to say it. It definitely plays on the body and spirit .
I have experienced it a few time. A few times, it was because the meds had zoomed to a toxic level between blood checks. The body just stopped metabolising it and BOOM!!! I think the other time was due to an interaction of some sort. This was not an oversight of the doctors just one of those things that was in time.
Doctors being pill pushers? I understand what you're saying. My first neuro in Vegas simply wanted to see me monthly and did little listening. I don't think he really read my med history cause he was persistent in having me take a med that had gone toxic 2x in my past. I'm no longer with this doc but with one who listens and requests that I partake in all decisions regarding my meds/therapy. His philosophy is minimal meds with fewest seizures and side effects.
My mom still shares with me how hard it was for her to watch me go through med after med after med, and not beig able to do anything to bring me comfort. I simply shake my head in frustration. "You'll understand when you become a mom" was always her reply.
I was more troubled with how the meds made me feel than I was regarding the seizure activity. The meds isolated me from many of my peers. I lost much of my teenage yrs searching for answers and the right meds.
Does your son have any questions for us? Please ask him so that we might be able to give some relief to him. You can become his voice. I had no one to talk to who understood what it is like to have seizures or what hardships the meds placed on me.
Do keep us posted. I wish your son, hubby, and you the best.