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saxofone1

Joined: 03/20/2011
My Story:
My epilepsy began March 27, 1975. It was spring break from the 8th grade. I was 9 days short of being 14.

My initial EEGs were negative though seizures had been witnessed by family, friends, and doctors. Because the seizures looked like petit mal(aka absence) I was put on Zarontin. When seizure activity did show, the docs said they were not the petit mal but psychomotor(now known as complex partial.) "We have to change her meds."

The early seizures lasted only about 8-10 seconds. Sensation...seizure...headache/tired. As time passed, the seizures became more motorized. I was picking at my clothes, smacking my lips, rubbing my hands or tapping my foot.

Time to fast forward. Over the years the seizures worsened. The auras disappeared. My seizures were being followed by a period of confusion. I was aware that I was confused. Later I had no recall of my confusion. I knew a seizure had passed because of a loss of time. It was like starting at block a and suddenly finding myself at block e. No recall of blocks b, c,or d. No recall of changing clothes, taking phone messages, crossing streets,etc.

Let's fast forward again. I had a partial right lobectomy in '02. The grids were placed on the morning of my 41st birthday. Um, what a gift! From '03- to sometime in 07, I was seizure free.

For unkown reasons, the seizures decided to do an encore performance in August '07. I had made a move from Mpls to Vegas in March '07. Who knows, maybe it was the altitude or my plate slipped. Hmmm?

Though seizure activity was happening again, I have no regrets about my lobectomy in '02. Before the surgery, I was experiencing 12-20 seizures a month. Now I'm dealing with 1 about every 3.5 months. I have no reason to complain about the one that still lingers. My daily meds have been cut down from 7000mgs a day to 3500mgs/day. Great progress.

I am currently happy here in Vegas. I have a great support group at a local hosp. Plus the support of all of you!!!

angie, raidergirl79@yahoo.com

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Reply: Brain surgery for Epilepsy?
Hi Laura, I hope things are going okay for you. I strongly hope that my posts haven't...More
Posted by saxofone1
Reply: How can you tell the difference between Generic an...
Hi and welcome, I am currently taking Levetiracetam(Keppra XR) and...More
Posted by saxofone1
Reply: Brain surgery for Epilepsy?
Hi and welcome Laura, I tried replying to your post earlier but there was a problem...More
Posted by saxofone1
Reply: Brain surgery for Epilepsy?
Hi Ash, I have one regret about my lobectomy. I didn't get it filmed!!!! I I would to...More
Posted by saxofone1
Reply: Brain surgery for Epilepsy?
Hi Ash, NO, your reply was not too long. You might even have wanted to share more but...More
Posted by saxofone1
Reply: Brain surgery for Epilepsy?
Hi and welcome to the family, Ash I received and email from Candi about you. She's...More
Posted by saxofone1
Reply: I just want my seizures to stop.
Hi Panda, I quickly skimmed through Candi's and your replies. So much of it sounds...More
Posted by saxofone1
Reply: Epilepsy Misconceptions in Jamaica
Hugs and love to you, Tashi. I've been a part of this group for about 4.5 yrs. It has...More
Posted by saxofone1
Reply: How long have you had Epilepsy?
Thanks Candi, I've been busy with volunteer work. The kids are great!!! My told me...More
Posted by saxofone1
Reply: How long have you had Epilepsy?
Hi Panda, Like Candi, the selections have erased half of my years. It will be 40 years...More
Posted by saxofone1

For more information, visit the Duke Health Epilepsy Center