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saxofone1

Joined: 03/20/2011
My Story:
My epilepsy began March 27, 1975. It was spring break from the 8th grade. I was 9 days short of being 14.

My initial EEGs were negative though seizures had been witnessed by family, friends, and doctors. Because the seizures looked like petit mal(aka absence) I was put on Zarontin. When seizure activity did show, the docs said they were not the petit mal but psychomotor(now known as complex partial.) "We have to change her meds."

The early seizures lasted only about 8-10 seconds. Sensation...seizure...headache/tired. As time passed, the seizures became more motorized. I was picking at my clothes, smacking my lips, rubbing my hands or tapping my foot.

Time to fast forward. Over the years the seizures worsened. The auras disappeared. My seizures were being followed by a period of confusion. I was aware that I was confused. Later I had no recall of my confusion. I knew a seizure had passed because of a loss of time. It was like starting at block a and suddenly finding myself at block e. No recall of blocks b, c,or d. No recall of changing clothes, taking phone messages, crossing streets,etc.

Let's fast forward again. I had a partial right lobectomy in '02. The grids were placed on the morning of my 41st birthday. Um, what a gift! From '03- to sometime in 07, I was seizure free.

For unkown reasons, the seizures decided to do an encore performance in August '07. I had made a move from Mpls to Vegas in March '07. Who knows, maybe it was the altitude or my plate slipped. Hmmm?

Though seizure activity was happening again, I have no regrets about my lobectomy in '02. Before the surgery, I was experiencing 12-20 seizures a month. Now I'm dealing with 1 about every 3.5 months. I have no reason to complain about the one that still lingers. My daily meds have been cut down from 7000mgs a day to 3500mgs/day. Great progress.

I am currently happy here in Vegas. I have a great support group at a local hosp. Plus the support of all of you!!!

angie, raidergirl79@yahoo.com

Latest Activity

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Reply: a questions
Hi again suzanne, My 1st seizure occurred shortly before I turned 14. I noticed...More
Posted by saxofone1
Reply: FRIENDSHIP DAY IS HERE AGAIN!!!!!
Thanks Nancy, I do feel that personal expierence has a lot to do with that "knowledge"...More
Posted by saxofone1
Reply: First Seizure 1 month ago...
Hi Tara, Stress is definitely one of the most popular triggers for seizure activity....More
Posted by saxofone1
Reply: First Seizure 1 month ago...
Hi tara, I didn't do any shaking but I certainly smacked my lips. Changed to my pjs if...More
Posted by saxofone1
Reply: First Seizure 1 month ago...
Hi Tara, So sorry about the long wait til you're able to see a nuero. Do your best not...More
Posted by saxofone1
Reply: First Seizure 1 month ago...
Hi Tara, Good to hear from you. My first seizure was at home during spring break. But,...More
Posted by saxofone1
Reply: FRIENDSHIP DAY IS HERE AGAIN!!!!!
Love you too, Candi. Enjoy the day. angieMore
Posted by saxofone1
FRIENDSHIP DAY IS HERE AGAIN!!!!!
Hi everyone, I would like to wish all of you a HAPPY FRIENDSHIP DAY. The official...More
Posted by saxofone1
Reply: First Seizure 1 month ago...
Hello and welcome to our family, The fear that you're experiencing is nothing to be...More
Posted by saxofone1
Reply: a questions
Hi and welcome to the family. I had heavy vomiting and a severe headache following my...More
Posted by saxofone1

For more information, visit the Duke Health Epilepsy Center