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saxofone1

Joined: 03/20/2011
My Story:
My epilepsy began March 27, 1975. It was spring break from the 8th grade. I was 9 days short of being 14.

My initial EEGs were negative though seizures had been witnessed by family, friends, and doctors. Because the seizures looked like petit mal(aka absence) I was put on Zarontin. When seizure activity did show, the docs said they were not the petit mal but psychomotor(now known as complex partial.) "We have to change her meds."

The early seizures lasted only about 8-10 seconds. Sensation...seizure...headache/tired. As time passed, the seizures became more motorized. I was picking at my clothes, smacking my lips, rubbing my hands or tapping my foot.

Time to fast forward. Over the years the seizures worsened. The auras disappeared. My seizures were being followed by a period of confusion. I was aware that I was confused. Later I had no recall of my confusion. I knew a seizure had passed because of a loss of time. It was like starting at block a and suddenly finding myself at block e. No recall of blocks b, c,or d. No recall of changing clothes, taking phone messages, crossing streets,etc.

Let's fast forward again. I had a partial right lobectomy in '02. The grids were placed on the morning of my 41st birthday. Um, what a gift! From '03- to sometime in 07, I was seizure free.

For unkown reasons, the seizures decided to do an encore performance in August '07. I had made a move from Mpls to Vegas in March '07. Who knows, maybe it was the altitude or my plate slipped. Hmmm?

Though seizure activity was happening again, I have no regrets about my lobectomy in '02. Before the surgery, I was experiencing 12-20 seizures a month. Now I'm dealing with 1 about every 3.5 months. I have no reason to complain about the one that still lingers. My daily meds have been cut down from 7000mgs a day to 3500mgs/day. Great progress.

I am currently happy here in Vegas. I have a great support group at a local hosp. Plus the support of all of you!!!

angie, raidergirl79@yahoo.com

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Reply: Interview Request
Hi college student, How is your research coming? I hope some of the info that has been...More
Posted by saxofone1
Reply: Interview Request
Hi, I woud be happy to help you. Please read my story. You might find some answers...More
Posted by saxofone1
Reply: Complications
Hi Meg, Be sure to mention those twinges to your doctor. Think about asking your...More
Posted by saxofone1
Reply: Complications
Hi Meg, so good to hear from you. Sorry about the injury due to the seizure. That is a...More
Posted by saxofone1
Reply: I need serious help
Welome to the group. Candi has expresed many of my thoughts. She's wonderful. I...More
Posted by saxofone1
Reply: need help finding an answer
Hi ladies, how are you doing? High sugar? Definitely. Years ago, somewherre in the...More
Posted by saxofone1
Reply: need help finding an answer
Hi dackb, seems like you've been doing some deep detailing of events that might be your...More
Posted by saxofone1
Reply: need help finding an answer
Hi ktex, I had a reaction to cigarette one day. I was visiting a neighbor who happened...More
Posted by saxofone1
Reply: temporal lobe resection
Hi designia, I have no regrets about the lobectomy. Well, I do have one. I regret that...More
Posted by saxofone1
Reply: need help finding an answer
Hi dackb and welcome to the family, Candi has shared with you what general info I could...More
Posted by saxofone1

For more information, visit the Duke Health Epilepsy Center