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saxofone1

Joined: 03/20/2011
My Story:
My epilepsy began March 27, 1975. It was spring break from the 8th grade. I was 9 days short of being 14.

My initial EEGs were negative though seizures had been witnessed by family, friends, and doctors. Because the seizures looked like petit mal(aka absence) I was put on Zarontin. When seizure activity did show, the docs said they were not the petit mal but psychomotor(now known as complex partial.) "We have to change her meds."

The early seizures lasted only about 8-10 seconds. Sensation...seizure...headache/tired. As time passed, the seizures became more motorized. I was picking at my clothes, smacking my lips, rubbing my hands or tapping my foot.

Time to fast forward. Over the years the seizures worsened. The auras disappeared. My seizures were being followed by a period of confusion. I was aware that I was confused. Later I had no recall of my confusion. I knew a seizure had passed because of a loss of time. It was like starting at block a and suddenly finding myself at block e. No recall of blocks b, c,or d. No recall of changing clothes, taking phone messages, crossing streets,etc.

Let's fast forward again. I had a partial right lobectomy in '02. The grids were placed on the morning of my 41st birthday. Um, what a gift! From '03- to sometime in 07, I was seizure free.

For unkown reasons, the seizures decided to do an encore performance in August '07. I had made a move from Mpls to Vegas in March '07. Who knows, maybe it was the altitude or my plate slipped. Hmmm?

Though seizure activity was happening again, I have no regrets about my lobectomy in '02. Before the surgery, I was experiencing 12-20 seizures a month. Now I'm dealing with 1 about every 3.5 months. I have no reason to complain about the one that still lingers. My daily meds have been cut down from 7000mgs a day to 3500mgs/day. Great progress.

I am currently happy here in Vegas. I have a great support group at a local hosp. Plus the support of all of you!!!

angie, raidergirl79@yahoo.com

Latest Activity

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Reply: At the breaking point and need some answers
You're quite welcome, Candi. I didn't know that ep could trigger early Menopause. Wow,...More
Posted by saxofone1
Reply: Complications
Hi Meg, Yes, unfortunately good things sometimes do come to an end. Start back at...More
Posted by saxofone1
Reply: At the breaking point and need some answers
Hi Anna, If you are PG, then I send you, your hubby, and the unborn my best. I wish you...More
Posted by saxofone1
Reply: At the breaking point and need some answers
I'm glad you found us too. I was on the Internet seaching for info when I found this...More
Posted by saxofone1
Reply: Complications
Hi Meg, Maybe you should be next yr's costume now. Walk around your neighborhood and...More
Posted by saxofone1
Reply: Complications
Meg, Glad you have been having good days. I hope they are continuing. The last few...More
Posted by saxofone1
Reply: At the breaking point and need some answers
Hi Anna, Welcome to the group. The people who participate in the discussions are...More
Posted by saxofone1
Reply: Complications
Hi meg, Thanks for your wishes. I did have a good day. A kindergartener keeps...More
Posted by saxofone1
Reply: Child's Epilepsy
Glad to hear that she is doing okay in school. The location of her seizures plus the meds...More
Posted by saxofone1
Reply: Seizures not showing up on EEG
Hi Tibb Welcome to the site. I had many EEGs that showed no signs of...More
Posted by saxofone1

For more information, visit the Duke Health Epilepsy Center