Lindakae, I am very happy that Angie posted her response, I knew that she would give you a very good explaination. Without insurance it can be very difficult, but I am surprised that your doctor did not request an EEG yet especially if she mentioned siezures. The EEG test is much less expensive than an MRI.
Bring this up with your doctor because she needs to be educated about procedures to find out if you the patient is having some sort of seizure or not.
I hope we get more responses to this message to give you more information to bring to your doctor.
Do you have family, friends, roomate or anyone who has visually seen you go into the possible seizure? If you have had anyone see one, please have them document it for you to give you the description of what you are doing during the time of confusion.
We are with you all the way, so please keep us posted! DanaView Thread
From what it sounds like you will need to move forward with the MRI. Did you ever have an EEG test done? The test may or may not show if you have abnormal spikes in your brain waves, but that would be the next step for sure along with the MRI.
Make sure that you are seeing a neurology specialist to review your records and tests. Scar tissue on the brain is a common factor with patients that can trigger seizures. There are so many different types of seizures that is why the tests are necessary.
Meg, My seizures were completely the same as yours. Absolutely no auras at all. It was very frustrating going from working and then finding myself wandering around , staring at a wall or on the floor from a drop seizure. It may take time for medication or combinations to get things completely under control.
Do you have a medic alert bracelet or necklace? That is one item to think about especially if you have no auras. If you are by yourself and go into a seizure that is one way other citizens or medical teams can find out more information about your medical history.
The VNS would have been my final option if brain surgery could not be done. I did have the surgery and I am very happy for the results.
Keep moving forward and asking questions to your neurologist regarding your options for other treatments. DanaView Thread
Ellen, I just heard through the grape vine about your email posting and logged on the computer to read your update. We are all very grateful that the tests went smoothly and now you can wait for the final decision.
Angie and I were reunited this past summer and I had the best time with my fellow brainster pal! I am doing well, but every surgery patient is different so just take each step one day at a time to prepare for the future of possible surgery.
Medical technology has come a long way and we all know that you have taken the journey forward with flying colors.
Congratulations! We are all happy to be here for you!
Joey, Candi and Angie are 100% correct with their advice and you are not alone. I learned from my own personal experiences after I pursued more education on the term Epilepsy and seizures. By seeking out Epilepsy Foundations you will have the opportunity to learn more and also give the information to your family, friends and co-workers.
I always explained the do's and dont's regarding my seizures to my friends, family, coworkers and any new friends such as bus drivers when getting to and from work. Your parents need to be educated about seizures because they can start having seizures also as their brains age!
Please do not give up! I almost dropped out of college tech school, but with some counseling from a local epilepsy foundation I spread my classes out over summer and regular school season to help lighten the burden on my brain.
My seizures during college years started to increase from 5-10 per month to about 15-20 per month. I did graduate with only a two year diploma, but I was pretty proud that I did not give up.
Jobs can be difficult depending on what your position is. I have been working in a medical hospital for 25 years and it took some careful persistance to educate my co-workers so i would not be fired can you believe that?
Once you learn more through foundations and hopefully a support group you will be amazed at how much information you will learn and be able to use during your daily life.
Keeping a journal and daily duties on the computer or in a notebook would be the best way to keep your memory flowing. My doctor recommended reading more to keep the brain motivated. I had to write my daily duties, activities and appointments down just in case a seizure wiped it out of my memory.
I still keep my daily routine going and it helps to not forget my medications, vitamins and any appointments. My coworkers call me the most organized employee in that office.
I also had brain surgery in 2001 after 26 years of struggling with simple, complex partial and tonic seizures. Medications controlled the tonic clonic seizures, but not the others. Since the surgery I have been seizure free for almost 10 years.
I learned to drive at the age of 38 , but I will never decrease my medications on my own and if I did have a seizure I will not drive because I will not put another lilfe in danger including my own.
I hope and pray that you will find the resourses necessary to keep your spirit motivated to move forward and put the bad experiences with the previous doctors in the past behind.
Your dog sounds like a best friend. I know that when I had seizures at home, I would find my cat staring at me and once I became aware of what happened she would settle down and relax. To this day she still watches over me, especially if I am glued to the computer screen and then she realizes that I am not having a seizure and walks away.
Dad, This is a very confusing time for you and I know as a parent medications can be scary.
I would suggest speaking to a pharmacist on the phone or face to face. Have the pharmacist print out possible side effects of this medication AND what can cause interactions with this medication such as food, cafeineother medications or even vitamin suppliments.
Also ask the pharmacist how this medication should be properly taken, with meals and what time of the day.
I work in a pharmacy office at a hospital and I have learned so much from my fellow coworkers by asking questions.
Each person can react different to medications so not all side effects are the same for each patient.
Questions will be the beginning to learning more about this new journey.
Phoenix, My story is very similar to your friends. Doctors were perplexed why my tonic clonic seizures were controlled by medications, but the complex partial seizures continued. My seizures increased with age and I have taken FDA approved and experimental medications, but was not completely controlled. I knew that I could not rely on my family and friends to make the medical decisions for me because it was my body. For 20 years I have been evaluated to see if I was a candidate for brain surgery, but was turned down every time because the starting point of my seizures could not be located.
New technology for brain mapping grid observation started and in 2001 I had this done. The doctor's gave me the option that if surgery could not be done then the VNS would be installed. I made my decision and said let's do it! Making this decision was similar to a person checking themselves into a rehab center. I had to make the choice myself. By waiting longer I would have been asking myself for the rest of my life, should I go through this or back out. By not making the decision myself I would have been living my life wondering what would have happened if I decided not to go through surgery or the VNS.
With the most recent new laser surgery breakthrough your friend will have a much better opportunity with a much easier recovery!
Your friend needs to realize that she is in charge of her body and must make the medical decisions when she is ready. If she needs encouragement that is why she can contact others who are dealing with the same confusion and fear. Get your fiend involved with a support group or involved with a Web MD discussion.
Keep encouraging your friend to keep moving forward and socialize with others who are have gone through the same situation.
Phylis, I was watching our local news station in Minneapolis two nights aga and heard that the next story was going to be regarding new technology surgery for Epilepsy. I ran to the TV, watched the story. The technology has come through for the patients who are looking into surgery. The surgery 10 years ago was not bad, but the new technology will be much safer, faster and easier recovery time.
Good luck to any patients considering surgery. It changed my life around dramatically for the best!
Kathleen, EEG tests may not always show seizure activity depending on the patient's body. I would suggest having another EEG since it has been two years.
If you have been having migraines this could happen from stress. I would recommend having an MRI to rule out a tumor. Document your migraines when they happen: after a stressful day. If you are still having your menstrual cycles this can play a big factor with your situation.
I had never heard of seizures after I was diagnosed so just take this situation one day at a time, but keep asking questions to the doctors. If you have not seen a neurologist yet, please start looking for one or get a referral from your regular doctor.
You will be amazed at how much you learn from others citizens who have walked the same path as you.