I also has a car accident in dec of 02 running off the roadway and hitting a tree head-on. I hit the steering whieel with my head due the seat belt breaking at the top from all the force feom hitting the tree. I also had severe whip-lash as well.
I was dx'd with a mild TBI and have had all kinds of comcplications from it.
My szs did not start until 8 months later the night before my college graduation so the graduation was a total wash-out for me and I remember very little of it.
I graduated with a RN degree with 2 extra yrs and minored in Psychology and worked in an EMU from 2000-2005 when my szs got bad enough they had to let me go, not fire me just let me go because I was a high risk at having my own while working.
So now I can not work and drive for the rest of my life.
I haveto retreact something from my last post to you about your break thrus. I think they might not be giving you enough meds and that may be causing them. I do not know why someone could have break thrus with a baot load of meds, unless they are ODing you on all of that stuff.unintentiionlly.
when I was in the ER they were too worried about my back and kneck and not ny head. so the X rays went in that direction.
We have finally figured out what has been causing the Drop Attacks.
I am on an TCA anti depressant that should have never been given to me at all. but because I have been having trouble with Migraines that is one of the older drugs they once used to prevent them. But it is not supposed top be given to people with epilepsy or those with a sz disorder or who have had szs in the past for any reason should not have this drug. IT can cause an OD at any dose or different szs can enter into the picture and so on. In my drug books and my Drug usage for clinical nursing book.
they were looking out for me and did not catch that. But I did and so did my Psych doc and sent a fax of stuff over to my neuro to let him know what is going on.
It has changed me and I do not like myself on it. I only take 30 mgs but psych doc said that because of eveyrthiing else itake not just the EP drugs that 30 mgs can be an OD.
so I am wairing for that phone call to happen and will keep you updated.
You are having what are refered to as scotomas spelled wrong but they occur just before a Migraines hits,
I have intractable Migraines and am getting specific treatments from several doctors about to be just one
Yes they can be very annoying but that his probably what it is especially since you followed up with the word headache.
I am not a doc so I can not dx anyone on here. I am an RN who has since retired due to my own szs. I can only offer suggestions and answers based on what I know from what I have done and my own experiences with the disorder.
Try asking your doc for something called Initrex pills or shots and see if he will look into that if your headaches are that bad. I take it and it takes the headaches away with in 30 minutes for the pills and 10-15 for the shot form
I am going to try for the first time Botox for my Migraines on the 28th and see how that goes. Mine are so bad and nothing has helped that much that they have now resorted to this. It is a last ditch effort and if it works it will be a treatment every 3 months. and boy do I need it to work, I am sick of living in pain since 95 after sufferering from Meningitis and Encephalitis together at the same time, so a 19 yr hx of this nonsense and it is getting old, so I can fell for you.
I am being taken off that anti depressant it is the cause of te Drop attacks. my Pysch is faxing my neuro some stuff today and it will probably wararant a call from their end to mine to find out what is going on.
IT has also changed my deameaner as a person as well, IT has casued a whole slew of things to happen to me that arean't me. Agitation being on top,
So fro all the agitation and everything else negative I have put everyone else on here thru I am sorry I can not help it right now. They are working at getting me off that drug but it is not going to happen until he gets the faxwith everything on it. so it make tiae a good few days.
I long distance phone call and I will probably have to go in an talk to him first.
A lot of times there is no cause found. That is then said that the epilepsy is Idiopathic meaning of no known origin/etiology.
I have NO idea if there is a connection between the bypass and szs. I Would have to do some searching to find out or ask Candi.
I Have a child as well but she just turend 18 and she has epilepsy as I do as well. She has Tonic/Clonics and also has no warnings either. I have had Drop Attacks and have falled nad broken body parts as well. But have had T/Cs that have broken me up as well that have odoccure after the inittal sz. I have broken teeth, wrists, arms, jaw, splt open my head on furoture , broken ankles mutilplle times, and so on.
I have had epilepsy all my life but tjid is a long story so Will not get into that, It was docu,emted in 2003 and I was dxd wit Complex partial szs thus resulting in many meds trials or combo trials and I am on a 3 drug combo currently soon to be 4. plus a VNS and that is because I was so bad I was given no choice and I Do get warnings so I can use the device,
You are probably having so many break-thrus because of the amount of meds you are on. That can happen sometimes. IT has happened to me in the way past. They aer making an attept at getting me off some of the other meds I am on right now because all I do is sleep and eat and do not have much of a life right now. The one med I am on is a TCA anti-depressant and it is NOT allowing me to take any of my pain pills, or some of my headache meds, or some other things because it sedates the CNS even further than it already does with the meds I am already on for epilepsy and another problem,
The anti depressant is extremely sedating so when I take it at night it knocks me out and afterI take it in the morning it knocks me out then and thus starts the sleeping,
But I take 3 meds for szs and one more added in april plus I Have a VNS implant as well.
At one point I was on 5 meds and like you was having a problem with break-thrus so they started taking me off leaving me only with Depakote and Neurontin, and it got considerably better.
ONce in a while though I still have an occional break-thru but am not controlled, either. I have Complex Partial szs and recently started the Drop Attacks due to that anti depressant.
So the doc I see for the psych stuff is going to get in touch with my neuro to see if he can get me off that drug period. That drug was given to try and get relief from MIgraines but it is not listed in the book as an unlab;labled use, Elavil is though, but none of those should be givien to people with epilepsy or those who have szs or have had szs.in the past.
I have been in ICU for that too for 9 days and then for the other time 4 days.
But remember I am NOT a doc amd cam make NO DX on anyone on here. I am just an RN and can only make sugeestions and aswer questipns and just that. I do NOT work anhy more do to my szs. I Used to work in an EMU and did from 2000-2005 then they had to let me go.
I have had several blows to my head. From GMs and Drop Attacks. Now I am experiencing the Drop Attacks again. I fell backwards into my dresser so hard that it moved it back 3 inches and I bruied my back all over and hit my head on it as well. And I have wiped out several times since then.
IN Dec of 02 I hit a tree head-on and hit my head on the steering wheel because the seatbealt broke at the top and I took a goo blow and I had really severe whip lash, broke my collar bone abd my ankle and had other injuries as well. I was taken to the nearest horpital and treated and sent home with my RN friend and was held out of work and college for 3 weeks and then had a f/u. My friend kep wathing me every 2 hrs and I was confused most of the night and neither one of us got any sleep. By the middle of the afternoon I started getting so I knew where I was and that kind of thing. My husband was already gone so he could not be there to help.
I have had a lot of head blows and concussions thru the years.
I wear a helmet now so my head can't take that anymore.
I have also broke a lot of bones as well.
teeth, arms, dislocated shoulders, wrists, split my head open and had to have it stiched up, hands, nose,ankles.
I hit my head on my dresser and then went in to a T/C. I have Complex Partial szs, but have the Atonics in the last 2.5 weeks for some reason. I have had them before when I was really sick.
IAm already on the cancellation list, but my neuro is double booked most of the time. HE usually gives up his luhcn break to see me.
I go in at 8 30 mainland time (mtn time).
I have a neuro in HI that is a headache specialist that I go to for bbotox and headache control but I do not see him until the 24th and hope that this works I go every 90 days. Then I have my regular neuro that treats the epilepsy.
So now I have 2 neuros. THe headache one was Mayo trained in Rodchestor MN. So he knows what he is doing..
I feel stupid having 2 neuros in 2 places let alone in 2 different states.
do other ppl have more than one neuro?
So the 3 docs that I have left in PHX are my TMJ doc in PHX on cave creek rd neuro for ep in Sun City, and ortho in Sun City West. Everyone else is in HI finally.
I will buy stickers that are kiddy and sticky ahd put them on my helmet. But epilepsy helmets look completely different than other helmets. But I will try what you said and see what happens.
I just feel like a freak in public.
Are there other ppl on here that have to where helmets?
I sleep ALOT and when I wake up 3 hrs later I look at the clock and see it says: say something like 4 15 pm HI time (Allutian time) and I get comefused and think it is in theevening and it itakes a second look to realize it is still either in the morning late. or in the afternoon. it is very weird,
SOmetimes I can loose a day or evne two . I can think it is MOnday and it is ie really Tuesday or even wednesay. and have to keep asking Jasyn what day it is because I forget and can not remember because somewhere along the line I have lost the day or days.
I have very severe Migraines as well and will be having Botox treatmeants for them. THey develpted as an offshoot due to Meningitis/encepahalitis I have had several times.
I can be VERY nasty as well moodiness is a nice word for me. I can be hostile and those are side effects of the druge. I do not know if those are side effects of the epilepsy.
I take 3 meds currently and will be on med #4 in April when I see my neuro. I also have a VNS or Vagus Nerve Stimulator as well and that is a long story so I won't bore you with it, You can touch my user name and my profile should come up and I do not know if that is mentioned or not in my story, I do not know if I even made one but you can try, Get back to me if there is not one and I will make one.