Hello, hope everyone is well. ive been doing great, no seizures for months......but for the past 4 nights in a row i have peed the bed in my sleep. Also, one time i was awake and had to urinate so i headed to the bathroom and on my way i just peed, it came out of the bottom of my pants and went all over the floor, i didnt make it, there have been many other times i have feelings of severe urgency where i just barely make it to the toilet.now mind you, i am 33 years old but i think its time to start wearing depends. i was wondering if this may be seizure related,or if anyone else has experienced this..View Thread
hi everyone, its been a while, i was just wondering about my recent seizures. apparently i was talking and screaming throughout parts of them. when the emts came they gave me something, in a shot. the 3 times this happened i was brought to the er and fine once i got there so they diagnosed me with a seizure the first time,; mental mood changes the second, and anxiety the third. ..this seems very untypical to my usual seizures, i was wondering whats going on, its it a misdiagnoses? am i rally still having seizures, or is it something else?View Thread
hello, this morning i woke up, was fine for a while, then i got blurry vision, and i tried to walk but i couldnt, one thing i was doing was taking elephant steps, or stomping my feet,( every once in a while). i had to have my fiancee practically carry me to the bed, where he said i had slurred speech and my eyes were doing weird things, he also said i flailed my arms. i remember most of this. what is going on with me?View Thread
yeah hi girl, i talk but i dont make real sounds, the weird thing is i remember some of my experiences and i think i say the most interesting things. but those around me cant understand me, like you said, i make no sense. it could be because ive been having acidosis seizures (or cardiac seizures) lately. i also collapsed today and i dont know why. i was unsteady on my feet. i was just wondering if i was possibly post ictal or it was a cardiac seizure, but i have a pacemaker/defibrillator so i dont think that was the case.View Thread
hi haylen, thanks, but so far as of right now i have my job, i got an email from my boss saying as of right now i still have a job, so im gonna take that as a win. i am on disability for my bipolar disorder because i tend to get very psychotic, its (i hate to say worse) but it jumps to psychosis very quickly. I also get medicare. but i work at an animal hospital part time because disability is not enough to live on. neither is what i make at work but luckily i have a fiancee who makes enough that we can survive but if we get married i will lose my benefits because he makes over 2000$ a month and has assets and all taht good stuff. what i make is just enough to get us by. but not if i lose my job. so i am thankful i have it as of now/.View Thread
Hi Candi, good news! i still have my job (for now) not guaranteed for the future, but im gonna take it as it comes, i am ecstatic about that. i cant go back for quite a while and i will def have notes so hopefully that will help my case. the problem is, ive been out so many times, ive had drs notes sometimes and sometimes not, but i COULD HAVE gotten them if they had asked. well anyway, nice to know i have friends here. in the hospital they only took me off my saphris which is an anti psychotic that widenens the qt interval. all antipsychotics do. i never stopped my klonopin or any of my other seizure meds. but with my condition, all psychiatrists believe (and from my past history i need to be on a theraputic dose of an antipsychotic) to maintain my mental health. those meds also lower the seizure threshold. but i have made my choice i have chosen physical health over mental health. and i had my stint in the psych ward which only made me start smoking cigarettes (i HAVE GOT TO STOP RIGHT AWAY) i am a member of the bipolar forum here but the epilepsy forum is the best one, like i tried to tell starlight, but i understand she wasnt getting her answers here. i am just so frustrated. thanks again for listening. im sure i repeated myself a million timesView Thread
Hi Haylen! sorry im late to reply, i was hoping iam starlight would reply to. i have no idea who she is (well i havent been around) but i know if she deletes her account she'll regret it (or at least its a bad idea) i know from experience and how you guys have treated me, so i left her a message.....haylen, i know everybody's all bright and shiny and talking about the weather, and im so sorry for all the things ive done and the fact that i havent been there for support of anyone that i am selfish and am only here when i need support, but you guys are all i have and i need you now. i promise to make it up to you and come around more often and read other posts and put my 2 cents in.....ok i have a long story i keep trying to post a dicussion but i keep hittingg some button which deletes it. i dont know how to make this longg story short. i'll try to make it mostly about epilepsy. 1 week ago i had status epilepticus adn almost died. it lasted supposedly 25 min and my heart went haywire. i dont belive them though. i was in icu for a week then moved to the cardiac unit. first they told me my heart problem was from my seizure , then they told me it was from my antipsychotic meds, then they told me i was born with it and inherited it from my father. they couldnt agree. they ended up putting an internal defibrilater in my chest, and sent me home quick after that. i am still in shock and think nothing is wrong with me and think they did this for nothing. now i cant go through metal detectors or mri's, but im off the subject. ive been off my antipsychotic since all this, heart stuff. i may sound fine now but it comes in waves. i went to my psychiatrist yesterday and she said with my condition (mental) i HAD to be on these meds, but every one of them are bad for the prolonged qt synndrome. she saw that i was decompensating mentally and sent me straight to the psych ward, where my doctor there(psychiatrist) was so rude he tried to say i must have caused my seizure, i must have stopped taking my meds which i most certainly DID NOT why the heck would i want to have a seizure, i was good for a long time! anyway i got mad at him acusing me i said some bad language, he kicked me out of his office and then i left ama. and i lost my job, for being out sick too much with epilepsy and bipolar episodes, which i mostly had notes for and could have gotten notes for every time, the doctor said not to worry about it. that job i LOVED and i am devastated. were they pretending to be nice to me and all along they wanted me gone? now they have an excuse? is this legal? I'm gettting myself worked up, i need to stop now.. thank you for listening, i just needed to ventView Thread
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