he tolsme I ihave AYTPICAL absence szs. because there is more movovng aroundl I flutter my my eyes 3 time with them rolled back and tap my figers on the table during the sz,, When it is over I stiop and pici up where I left off of what ever I wwaws doing.
Totally different than the regular ones. Just to make susre of his suspicans he is going t ohave a neuro here in Hawii run an EEG and get back to him with the results. I am too bussy to fly right now and have had 4 szs in the last 1.5 days.
THe EEG patter in different than the pattern than the one for the one that everyone is familiar withl.
It is scheduled for THurday and I will know by then beucase they will tell me and then get back with my neuro.
I am just going of f of VImpat. I did not like the s/e of it and it is a schedule IV drug. something else I am or was not comfort with. IT made me sleep all the time. I took 600 mgsof it. 300 in the am and 300 in the pm.
I have 1.5 weeks lwft and will be albe to D/C it.
Those jerks you are having sound llike myoclonic szs where you have little jumps pr jerks.
But I may be wrong I am NOT a doc, but am well versed iin this stuff.
After the Vimpat goes I will be on 3 meds instesd of 4. I wiwll be on 3 mgs of klonopin, 200 mgsof Topamax and 800 mgsof Lamictal.
I also have a VNS as well. IT is set at 1.50 with a magnet swith of 1.75 amps.
qorls pretty good.
THe numbness is the anathesia they used to numb you up so you wuld not feel anything. IT takes about 6 hrs to wear off. I have had 4 rrot canals from TMJ and broken teeth from szs.
I hae had my lft jaw reconstructed 2 times frm TMJ, and till havng pain due to the szs making the pain wirse,
For those who wonder about something if you you take Imitrex, there is a new way to administer it into your body.
There are needless shots called suvenal (sp) and you can inject it in your stomach, thighs, hips. It does hurt and you have to wait 10 seconds after the injection to make sure the medicine is dissolved. It takes about 5 minutes for the medicine to work rather than the tablets taking about 30-45 minutes to work.
I know because my TMJ/headache doc started giving them to me rather than giving me the ones with needles.
just thought those with migraines with szs might want to know,
I had a something similar occur but I was alone, when it happened.
I had a car accident that was caused by epilepsy, but at the time ems and hospital personel were not looking for it or even suspected it. they did exrays thru my mouth to get to my spine and junk like that.
8 months later I did have my fisrt sz. IT was a T/C the night before my college graduation.
They got worse and worse and more and moer frequent. SO my mom complainedabout it and got me a neuro who dxd but had lousy bed side manner, so we left hum, then found another one who was an epileptologist who was way to arrogant and then some, so after he did the VEEG and other oether testing and called me a fake multiple times, we left him and that epilepsy center, Then we were referred to the one I have had for just over 6 years, I have had 3 szs in his office at different ocaddions.
It showed on the EEG along with the VEEG and the other types of EEGGs,so I had my driving taken away, I had hit a tree head on and the one I have now said that that brought out the epilspy more. I can not wowrk.
I was born on Maui,and at 5 moved to the mainland and then at 15 or soething I went to live on O'ahu. Currently at UH oso even though I can not work or drive there are still things out there that we can do.
I have Complex Partial szs out of the left Temporal lobe. Sometiems it will generalize sometimes it won't,
I was implanted with a VNS and it is really helping with the control of my szs. The doc can make adjustments at his end and you can control it at your end.
your sz type is perfect for the VNS. Talk to your neuro about the possibity of one next time. you can stop them, or shorten them.