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I have been to several neuros, had many EEG's MRI's, sleep deprivation eegs, portable, 24 and 72 hour, was even at the Mayo clinic and kept the damn things on for 3 days. No luck.
I really hated the last neurologist I saw before I stopped going to Dr.'s completely. She wouldn't put me on meds because she didnt feel comfortable putting me on anti-seizure meds or diagnosing me with epilepsy since it wasn't a regular occurrence.
I have been seizure free for over a few years and I do drive, but worry I shouldn't.
Recently I've had a few small moments when I have been reading or driving that I feel a sort of weird feeling that makes me think I might be about to have a seizure. I didn't but it makes me nervous. It just brought all this fear and uncertainty to the forefront of my mind and I don't know how to deal with it. I've only had 4 or 5 seizures in the past years so I don't want to overreact, but it definitely impacts my life. Makes me nervous, scared, feels like I have no control over my life.
My husband recently asked me "Do you think there will be a time when you won't worry about having another seizure or will you always worry about it?" And I felt immediate sadness. Although these are not daily episodes and they're not completely ruiining my life...the fear and uncertainty is. I dont think I'll ever be able to put that worry out of my mind forever
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I just wanted to see if anyone was in a similar situation, since I haven't really gotten any good answers for this.
I'm 24/female. When I was 15 years old I had what the doctors tell me was a grand mal seizure. I was reading at night before bed and it felt like my jaw was trying to "unhinge" itself (very hard to describe so sorry if its a poor analogy) and I made a weird groaning sound. Next thing I know, I wake up with paramedics in my house. I had these 3 nights in a row, all times, i was reading (connection?). The doctor did all sorts of tests, you know the drill. What he came to the conclusion of is that it was an anti-depressant (wellbutrin) that I had recently been put on. They changed my medicine, I had more tests, saw more neurologists, etc. But the seizures went away. I eventually stopped taking anti depressants altogether. I didn't have another seizure until a few years later. out of the blue. Talking on my porch with my fiancee (at the time). the same weird jaw sensation and groaning noise and I fell forward next thing I knew I woke up in the living room. I had bitten a huge chunk out of my tongue, could hardly remember my daughter, and any of the events of the day. After these seizures my memory feels out of sorts...like all the pieces of the puzzle are there, I just can't put them together. I am told I jerk quite a bit, stop breathing now and then, bite my tonge, etc. I have never had one recorded on monitors so I have never been officially diagnosed with epilepsy therefore never on any anti seizure medications. My concern is that I wonder how it could be the medication if I haven't been on ANY medications in several years, and also at the time of my last seizure. Also, I have a daughter now who is 5 and the constant fear of me getting into some kind of accident, or the pure stress of not knowing if/when I may have another seizure again. What will I do if my daugher is home alone? should i even drive? Have these types of random grand mals happened to anyone else? Please help, any advice would be greatly appreciated.View Thread
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