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The neurologist did talk about the driving and showering and such with us. So he is a lot more willing to keep the door open. Why did you say to hang up a shower curtain?
I'm used to the sleep walking. My question is, is the sleep walking part of the seizure? Everyone asks how long the seizure lasts. The seizure is usually a minute or two but then he sleep walks right after it and that can last at least 5 minutes. Do I count the sleep walking as part of the seizure or is it separate?
Thanks for the link for the journal. It helped. I had no idea what to do so it was very helpful.
The doctor was talking about sleep deprivation as the trigger when doing the sleep study but I'm not sure if they will do another method.
Thanks AmyView Thread



The main thing/person stressing me out is his mom. I can't imagine having a child whom I had to worry about them having seizures. I understand her concern but I don't know how much is concern and how much is her controlling. Like I said, I can't even imagine her life these last few years, his seizures and her having to worry about him but at the same time I think she should back off of him a bit and cut the apron strings.
She is using the seizures and sleep walking against him and as a way to keep him under her control. For instance, she told him and I that he should move out and into an apartment because of his seizures and epilepsy. She said that he would be alone for a week and she didn't want him sleep walking out of the apartment and hurting himself or anything. I understand that but at some point she has to let him live his life. I just think she needs to let him go. No, I'm not saying cut ties, what I am saying is to loosen her grip on him. She tries to use the seizures to tell him when to sleep, be home, eat, breath, blink. She says the sleep walking his him having a seizure. I'm not sure. I know plenty of people who sleep walk but yet don't have seizures. But it may go hand in hand with him. I'm not sure. As much as I understand her concern I also think he should be able to have a life.
Isn't he capable of having a life?View Thread

To be honest I'm not sure about his meds. I know he is taking tegrotal(sp?) and he takes it 4 to 5 times a day but I'm not sure on other details. I told him the next time he went to the doctor I wanted to go with him.
He keeps talking about having surgery for it. This I know very little about. Surgery scares me because the way I understand it the surgery would be on the brain. Maybe I miss read or misunderstood, I don't know. But that scares me.
Thanks again.View Thread


Will it ever go away? Will he ever just out grow it? Does it work that way?View Thread

I have gotten to the point where I don't answer the phone or text messages. My biggest concern with not answering now is that I'm worried it may be an emergency regarding my fiancé. But I try not to answer usually.
I have read a lot on ep and am learning a lot. I don't know if it is a control thing or if it's embarrassment or both but she very rarely talks about it and if she does she is overly dramatic.
Thanks again for the advice.View Thread


I do really good at ignoring her until she texts or calls me directly and that is usually when she does her bullying stuff.
I'm trying very hard not to let her get to me but it is so much easier said than done.
Thanks for the advice and input. It is very much appreciated.
I do have to admit I did feel better after I posted this. Lol.View Thread
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