
Venting...kind of long
This is a rant. I'm so mad at that woman I could scream. I saw him this weekend and things...
Posted by amyrmca
This is a rant. I'm so mad at that woman I could scream. I saw him this weekend and things were great. His mother upset him because she decided to talk to him and I like a dog. I didn't say anything to him or her about it as I didn't want to cause any problems. I just went on and pretended I was okay, even though I was fuming mad. Later, she asks him to do something for her, which he does and then she gets mad because he didn't do it fast enough, by this time I was so mad at her I couldn't stand it. So I went and played on the computer for a little bit to calm myself down. Then I go back in the room and she starts telling me that I need to tread lightly with him because he is quiet which means he is going to have a seizure.She is that way with anything when it comes to him. For instance, if he blinks to much he is or is going to have a seizure. If he is in a bad mood, he's going to have a seizure. If he talks to much he is going to have a seizure. I'm sure some of you think I"m being a drama queen when I say that but I'm seizure. She told me once that he was talking a lot, which she said isn't like him so he would have a seizure that night.
That evening I ask him if he is okay and if he needs anything. He wants to know why and I told him I was just checking. Sunday night I went home and she calls me Monday morning telling me that she doesn't know what I did but he had a seizure and she told me to tread lightly and stop telling him about my day and asking him questions about the wedding.I hung up so mad I couldn't think.
He told me that she told him she didn't want us to get married because she didn't want to lose him and that I wouldn't take care of him well.
How am I supposed to take care of him when she is constantly on my back about stuff?!!!?
I understand she is worried. I understand she's been with him since day one. I get she's seen the seizures more that I have. I get that she's sat with him in the hospital. I get all of that. And I can't imagine what it is like for her or any parent to know that your child has seizures and could possible hurt himself. I can't imagine. I can't imagine having seizure. I can't imagine losing blocks of time. I can't know what it is like to have to take meds all the time just so you don't have a seizure. I can't know what it is like to have to remind your child to do this. Or to lose sleep because you never know if your child is okay.
I get where she is coming from in a way. I get she is worried. I do. I don't want to trivialize her time and heartache and such. I don't mean to. I know it is hard on her to watch her child hurt. I can't imagine.
BUT he is my husband in 58 days. Yes, in 58 days he will be my husband and I wish she'd grow up and stop blaming me. I'm truly trying to learn about epilepsy and seizures. I've read more articles about it than I can even count. I've posted more posts on sites like these trying to learn. I've asked questions until I'm blue in the face. I've got more community groups than I've ever had before. I'm trying!!!!! And I wish she'd back off me and him. I wish she'd stop blaming me. I wish she'd stop treating him like a dog and a 5 year old. I wish she'd back off and give me some credit for even trying to learn. I know a lot of people who wouldn't even try. So wish she'd back off.View Thread
Posted byamyrmca
That evening I ask him if he is okay and if he needs anything. He wants to know why and I told him I was just checking. Sunday night I went home and she calls me Monday morning telling me that she doesn't know what I did but he had a seizure and she told me to tread lightly and stop telling him about my day and asking him questions about the wedding.I hung up so mad I couldn't think.
He told me that she told him she didn't want us to get married because she didn't want to lose him and that I wouldn't take care of him well.
How am I supposed to take care of him when she is constantly on my back about stuff?!!!?
I understand she is worried. I understand she's been with him since day one. I get she's seen the seizures more that I have. I get that she's sat with him in the hospital. I get all of that. And I can't imagine what it is like for her or any parent to know that your child has seizures and could possible hurt himself. I can't imagine. I can't imagine having seizure. I can't imagine losing blocks of time. I can't know what it is like to have to take meds all the time just so you don't have a seizure. I can't know what it is like to have to remind your child to do this. Or to lose sleep because you never know if your child is okay.
I get where she is coming from in a way. I get she is worried. I do. I don't want to trivialize her time and heartache and such. I don't mean to. I know it is hard on her to watch her child hurt. I can't imagine.
BUT he is my husband in 58 days. Yes, in 58 days he will be my husband and I wish she'd grow up and stop blaming me. I'm truly trying to learn about epilepsy and seizures. I've read more articles about it than I can even count. I've posted more posts on sites like these trying to learn. I've asked questions until I'm blue in the face. I've got more community groups than I've ever had before. I'm trying!!!!! And I wish she'd back off me and him. I wish she'd stop blaming me. I wish she'd stop treating him like a dog and a 5 year old. I wish she'd back off and give me some credit for even trying to learn. I know a lot of people who wouldn't even try. So wish she'd back off.View Thread
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Thank you for the link. It helps me a great deal.
Posted by amyrmca
Thank you for the link. It helps me a great deal.View Thread
Posted byamyrmca
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Yes, Dancer/Candi, it is me on both. Lol. His mom is trying to scare me off and I know it....
Posted by amyrmca
Yes, Dancer/Candi, it is me on both. Lol. His mom is trying to scare me off and I know it. She has never had to share him and I don't think she likes it. At first she was just teeing to be mean to me and be controlling to me but I stopped it and now she is trying to scare me off by using his seizures. He has never really lived away from her and I think she is freaking out. His family treats him as a child. They act as if he is incapable of taking care of his self.
Are there any links that I can look up partial complex seizures at? I looked it up and didn't find much.
Yes his mom doesn't treat him as normal.
Thanks for the advice.
AmyView Thread
Posted byamyrmca
Are there any links that I can look up partial complex seizures at? I looked it up and didn't find much.
Yes his mom doesn't treat him as normal.
Thanks for the advice.
AmyView Thread
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Reply: New here, question about seizures and fiancé, plea...
Thank you. I'm his first real relationship so I don't think she has ever had to share him....
Posted by amyrmca
Thank you. I'm his first real relationship so I don't think she has ever had to share him. I also think she is competing for him with me. She is very controlling and the whole family does what she says so now I'm in the picture and things have changed. She has done everything she can to drive a wedge between him and I and now her new tactic is to scare me. His family treats him like a child. He is 29 years old and they talk about him and to him as if he is a child. He is the oldest of the kids and his younger siblings tend to be treated better than him.
I have quite a lot of questions. He is having partial complex seizures and i've looked it up but I'm not sure I'm looking in the right spot because I'm not seeing a lot of info about it. He only has them at night when he is asleep. After he has a seizure he is really tired and doesn't remember much at all but seems ok or at least as well as could be expected. He is currently taking Tegretol for them and I'm not sure it's working. No he has never lived away from home and I think his mom likes it that way. She depends on him for a lot of things, almost as a second husband, the emotional support, fixing things around the house.
I looked it up but I'm not sure I'm looking in the right places as I'm not finding much info about it.
My number 1 concern is that although he is taking meds and the seizures don't last long they are becoming even more frequent. When he has one it only lasts a few minutes but now he is having one quite often. I'm concerned that they may start to last longer and become worse. Is that a possibility?
My next thing is, I'm not sure what I'm supposed to do to help him. As stupid as it sounds are there things I shouldn't do or say around him or do I treat him as I would another person.
Lastly, we are going on our honeymoon in August and we are going on a plane. Are there any things I need to be prepared for with him on the plane?
Thanks again.View Thread
Posted byamyrmca
I have quite a lot of questions. He is having partial complex seizures and i've looked it up but I'm not sure I'm looking in the right spot because I'm not seeing a lot of info about it. He only has them at night when he is asleep. After he has a seizure he is really tired and doesn't remember much at all but seems ok or at least as well as could be expected. He is currently taking Tegretol for them and I'm not sure it's working. No he has never lived away from home and I think his mom likes it that way. She depends on him for a lot of things, almost as a second husband, the emotional support, fixing things around the house.
I looked it up but I'm not sure I'm looking in the right places as I'm not finding much info about it.
My number 1 concern is that although he is taking meds and the seizures don't last long they are becoming even more frequent. When he has one it only lasts a few minutes but now he is having one quite often. I'm concerned that they may start to last longer and become worse. Is that a possibility?
My next thing is, I'm not sure what I'm supposed to do to help him. As stupid as it sounds are there things I shouldn't do or say around him or do I treat him as I would another person.
Lastly, we are going on our honeymoon in August and we are going on a plane. Are there any things I need to be prepared for with him on the plane?
Thanks again.View Thread
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New here, question about seizures and fiancé, plea...
I'm new here and I'm looking for some advice. First and foremost please know that if I ever...
Posted by amyrmca
I'm new here and I'm looking for some advice. First and foremost please know that if I ever say anything wrong or that you think is meant meanly, I don't. I'm learning about epilepsy and seizures as I go so I haven't learned all the terminology and such yet. So please bear with me and know I don't mean any disrespect in any way.
Here is a little back story. My fiancé and I have been together for 2 years. He has epilepsy and often has seizures, which doesn't make me love him any less. Over the last few years I have done everything I can to learn and educate myself. His mom isn't a lot of help to me as she just doesn't want to let him go even though swe are getting married in a few months. Ive been told by her countless times I'm the reason he has seizures and epilepsy, even though he was diagnosed in high school before we met. I've done everything to avoid stressing him out. I very rarely tell him how my day is unless it's been a good one. I walk on eggshells because I don't want him to have one. I do what I can to keep him from having one. His mom is of the mindset that no matter what happens to him it is my fault. He gets a paper cut and somehow she finds a way to blame me. He isn't close to her and never has been, his words not mine, and he has told me that she stresses him out and that basically I'm her scapegoat because she is losing control of him. He told me she is trying to scare and upset me so I will leave and she can be in control.
Last night he had a seizure and the next thing I know it's my fault. I didn't do anything to my knowledge to cause this but yet she has somehow found a way to put it on me. So now I'm upset and wondering if I'm really to blame. I love him dearly and want to spend my life with him BUT I don't want to be with him if I'm causing it especially if I'm causing his pain. I didn't know that one person could cause seizures. I don't what to do. Please help!!View Thread
Posted byamyrmca
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