I was just diagnosed this past Monday with temporal lobe epilepsy, which I now realize has been presenting for several years with what I just thought was spacey moments on my part. My neurologist said that I have been having complex partial seizures. His findings were bore out by an abnormal EEG and an MRI that shows deformity of my frontal lobes. He has put me on Lamictal XR, and I desperately hope that we can get this under control. I have also been dealing with chronic pain due to spinal stenosis and fibromyalgia.
At least I am going in the right direction now, and I look forward to meeting everyone here!View Thread
Thanks Hula Dancer...wow...living on O'ahu...that must be beautiful!
I hear you on the mental health thing. I had a very abusive father who routinely beat me senseless...and when I hit my 30's I began to suffer from massive recalls, depression, anxiety, PTSD. Years of therapy and medication did nothing, and last year I ended up having 16 sessions of ECT (electro-convulsive therapy). It wiped out huge chunks of my memory, and the depression seemed to vanish, but now it seems that my deformed frontal lobes may have had something to do with this whole nightmare. I am so blessed that my beloved husband of 31 years and my two adult sons stood by my side through all of this,
I hope to learn as much as I can...but I must get this pain reigned in first!View Thread
Kathy 52 year old married mom of 2 in CT. Dx with Temporal Lobe Epilepsy 9/24/2012 after years of complex partial seizures that went unnoticed by other doctors. Love my Neurologist!!!
Wow, Angie...I am in total awe of you! I am just now experiencing the drawbacks of this condition...not being able to drive by myself is really rubbing my fur the wrong way! But you, having dealt with this for so long...you are amazing! I guess my first question would be regarding medication. Have you had much trouble in getting the meds nailed down? I have chronic pain and for the past 4 years have worn 100 mcg. fentanyl patches and taken various narcotic oral meds for breakthrough pain. I have to be constantly rotated because I get tolerant to medications so fast, and I wonder if that is going to be the same with my epilepsy meds. I want to thank you for responding to me so fast, and I am truly looking forward to knowing you better!View Thread