Welcome to our Family. I Welcome caregivers. Caregivers are my 'heroes'. You have a rite to be concerned. You do not have to Fite this Battle alone. You are not alone. So Many others' have experiences such as yours or worse.
Your son needs to see a neuropsychologist. ASAP! Ask your Primary Doctor & his Neurologist. Next, Call his Neurologist & Inform him of your son's Issues. Insist if you must to take him Off his Keppra. And the Prozac! ( Use our Drug Tool above & Learn more about the side effects. Under the sSide Effect Info box is a Question. Clik on it. Read more about what is common to rare. side effects others have experienced on these meds. Seek a Second Opinion. Or Third Or Fourth! Whatever it takes. There are other meds out there. But, DRs cannot predict how they will work for anyone. Depression can be caused by meds &/or Seizure Disorders. If his meds affect the Quality of his Life, though, yes, he should ween off them. Try something Else! OR he could stay on Keppra at a lower dose??? If it is controlling his seizures. Personally, from what I have heard Mood Swings can be eliminated w/ Vitamin B6. But due to the severity of his reaction he will still need extra help.
I would also like to recommend On-Line support groups for Teens! There are several on Facebook. Living With Epilepsy is for Teens & their Parents. epilepsy.com has a group too, I think. It Helps to have others' to Share your Journey with. To read their Journeys & Information. Sharing, asking questions, learning, venting, supporting!. It IS what our Families on-line are about!
I am not a Dr. so I can't tell you which meds to take. But, we All go thru a 'trial & error' phase. It took 10 yrs for me to find control. I Know it's hard, but, you are your son's own best advocate. As an advocate, I would appreciate it if you read our Journal Info in Helpful Tips. Plus, clik on my profile pic & read my Journey.
I do Hope you found this Helpful. I Hope you will keep us updated. Know we care! Hugs * Prayers to you & yours.
Welcome to our Community. First: your Hubby has had more than 1 seizure, so he does have Epilepsy AKA Seizure Disorder. But, finding them on tests can be tough. Drs never did note anything on my tests. Sometimes seizure activity is not happening at the time of test so nothing is recorded. Other times, the seizure focal point (origin of seizure) is buried too deep in the brain to be recorded.
My seizures were mainly nocturnal, also. And it took me 10 yrs to find a med that worked for me. Unfortunately all our meds have side effects. Some ppl experience them, some don't. Side effects can be mild or they can be Horrible. But, most side effects will diminish or be eliminated w/in 2-6 weeks. A Healthy, nutritious Diet Helps! But, Finding the rite med is a process of 'trial & error'. Drs can't predict what will work for your Hubby. The only way is for him to try it.
My Sis refused to take meds after her first experience w/ Meds, too. The seizures, eventually, took a toll on her heart & she suffered a Stroke. She still refused meds. Then yrs later, she started having Daily Suicidal thoughts (depression can be a side effect of seizures &/or meds) She confessed to her Homeopathic MD about her seizure status & Depression & started 'natural' alternative treatments. IE: Diet, acupuncture, & now Cannabis Oil. These are all 'trial & error' too. But, she prefers them to taking meds.
OK, Hubby has had tests. But, have they ever done a 24-72 hr Portable EEG? Have they ever placed him in an Epilepsy Monitoring Unit for 5-10 Days to be tested? Please read, if you haven't already, the article Phylis posted Comprehensive List & see if there is a Neuro, Epileptologist (seizure specialist) in your area. The Drs listed in her article are all recommended by others' w/ Epilepsy/seizure disorders. Or consider finding a Homeopathic MD. Another alternative Dr: A Chiropractor Specialist. www.stateoftheart.com has more info. If that URL doesn't work let me know.
Advice: for now, start a daily Journal. See Info in our Helpful Tips.
Please, keep us posted. Keep asking questions. Please, keep looking for answers. Knowledge Is Power. So, keep Learning! Hugs
Chaddy, I still have no clue as to Where my Focal point or points are. I do know they Started as Gran mals. Went into remission & re-triggered 25 yrs later by a head blow. I have, w/in the past 10 yrs developed other types. Absence, Once that I know of, abdominal, at least 2-3 times a yr & now the Continuous Wavy Line Syndrome, which May have been there all the time, just never detected.
I Think I went thru at least 7 meds & various doses when they were re-triggered. I do know it took 10 yrs to find a med/dose that worked to control them.
Chaddy, it could be possible that you are having Epileptic seizures & non-epileptic seizures. You Can have Both. Unfortunately, if you do have pseudo seizures, too, None of our Anti-epilepsy drugs will work. The only Help for pseudo seizures is a Neuro Psychiatrist.
So, keep an Open Mind to that possibility! Call your doc & discuss your latest Seizure. I forgot to ask in your other post. Is there anything different that you have eaten/drank or done w/in the past week or so?
Prayers! I'm so sad to hear this. I do hope you do better today. Are you keeping a Daily Journal? I know I probably suggested it b4. But, look in out Tips on the rite & be sure you are including all necessary Info! It's more than just keeping track of seizures. How long have you been on Aption? When was your Last seizure? Did you call your Dr? You may need to up your dose.
Good to see you posting again, Phylis. Thank You So Much! HUGS & Lots of them, Every Day!
Personally, I think the AMA is not jumping on board cuz there is no money in it for them, yet. Hopefully the FDA clinical trials will change their minds. FDA, yep, they noted Colorado Income from Sales & the flood of PPL moving to Colorado for Help! So, of course they Finally showed Interest! Kinda strange though that Washington State & California didn't spark the interest Long Ago. Oh Well, Better Late than Never.
I apologize for not responding sooner. Here is hoping all is OK since the VNS work yesterday. Glad to hear you are getting your foot taken care of. Get that knee taken care of ASAP! ENJOY your mini-vacation in Phoenix. Hugs.
I already found out what Continuous Wavy Line Syndrome is. I expanded my wings to support others' on Facebook & got my answer there. I have seizures in my sleep. But, different then Nocturnal gran mals. Seems these seizures have no apparent activity. My brain is firing, but, no Physical activity.
The new Neuro is Nice. She knew what abdominal seizures were. None of my other Docs did. She, took time to talk w/ me, like none of my previous docs did. I'm thinking she Assumed I already Knew what CWLS was. I really shouldn't be mad anymore. When previous neuros wanted to change my Pheno's I went back to my Old Neuro & met her. She is his Assistant. Fresh from School. Or was back then. She agreed w/ me! If it ain't broke, don't fix it.! So, I got to stay on my Phenos. Reason other docs wanted to change: It's addictive. DUHHH! 20 yrs on a controlled substance, of course it's addictive. Possible Liver damage. Well, I know several meds do the same. But, I keep up w/ my blood work. 3rd reason was, been on them tooo long. Well, others' have been on worse or just as bad of meds for as long or longer. I saw no point in jumping on the med merrygoround just becuz, of their Opinion!
So, that updates you a bit more. Hope you had a great day. Lots of Hugs. Thanks for your suggestion.