I've been on my Pheno's, since I was 27. I Was weaned off them once, @ age 42. But, I was weaned onto Felbatol, successfully. Recall of Felbatol & been on Pheno's since. Yes, they are bitter. I've learned to aim all 3 toward back of tongue w/ good gulp of water. Why do I stay on my meds? Cuz, I know what happens when I miss 1 or 2 days. The only way I would consider going off meds is w/ CBD Oil.
Your Dr can/will do some tests & take note of any seizure symptoms, over that 2 yr span, b4 saying yes or no to weaning. Time & Patience. Hurry Up & Wait. The Dr/test/med merrygoround ain't over yet.
As for 6 pills a day. Count yourself fortunate. I have seen others' on much more. Please, don't be embarrassed. You are doing what is rite for you. Keep in mind,,,Taking them meds on time is putting you one day closer to driving privilege. Positive Attitude. Chin Up! Hugs! I Hope you make the 6 mth goal. I Pray you will make the 1 yr goal & On & On & beyond.
Thank You for joining us. Your Journey sounds interesting. I have never heard of alternating meds this way. Very Unusual! From what I have learned over the yrs.... meds Must maintain a steady level in our systems' to work properly.
Have you informed your neuro of your change in medication routine, yet? It would be best if you called & let his Nurse know so it will be charted properly. In case you have any Issues in the near future.
Keep in mind, you are on 2 of the oldest meds out there. Both have Long Term affects you should be aware of. They may not affect You, but, it is Wise to know what to watch for.
I hope you find an OTC that works for your headaches. Headaches/migraines are considered a co-morbid Issue w/ Epilepsy. More people w/ Epilepsy have one or both, than Not! Personally, mine are Rare & 3 Ibuprofen work for me. But, please, talk to your Pharmacist about what pain relievers you can safely use w/ Dilantin & Phenos' (I am just on Pheno's. My full dose is 180mg a nite. )
I apologize for not answering sooner. I had some comp Issues for a few days. Seems to be back to norm now. Hugs! Hope you are having a Good Day.
I am a believer & Proof, that seizures can go into remission & return later in life. But, mine was re-triggered by a head blow. I do know that Stress is a Big Trigger for Seizure Activity for Many.
It does sound like a complex Partial. Those are the only ones where a person remains alert. You can find more info in the Epilepsy Health Center under Types & Symptoms. But, the only way you will know for Sure, is to see a Neurologist, who specializes in Seizure disorders or an Epileptologist (Neuro who has studied seizures 2 yrs longer than Neuros) WebMd can locate one near you. The EFA & epilepsytalk.com have a list of Drs Recommended by others w/ seizure disorders. A Good Dr will answer your questions & run the proper tests. EEG's & MRI should be done. Plus, Inform your Dr of your childhood seizures.
Suggestion. Please read Journal info in Helpful Tips. Start one today. Take it w/ you to your DR.
I would, also, ask/Insist, the Dr to run Blood work to determine Magnesium Levels. As seizures or muscle tremors can be caused by insufficient Magnesium.
Duration & severity differ for each person. A seizure can last for 1-2 seconds up to 3 minutes depending on seizure type. There is usually no need to call EMT's for those. Unless it is the persons first seizure or they injure themselves during the seizure. But, Any seizure that continues, Non-stop, for over 3-5 minutes up to 20 minutes is called a Status Seizure. EMT should be called for these. And patients are usually given a 'rescue' med if Status Seizures continue to happen over the weeks, mths, yrs.
Keep in mind that seizures can occur back to back w/ pauses in between seizure activity for 2-3 or more minutes, also. There is no need for EMT's w/ these Unless it is a first or person is injured.
As for Frequency, that can vary from one person to another. Some people may have 1 a day. Some have more than one a day. Some go weeks/mths in between. Some can go Yrs in between Seizures.
As for difference in motion. That would depend on the type of seizure activity. And again, difference in motion can vary. Like my foot could go left, but, yours would go right. To learn the different signs to watch for please visit our Epilepsy Health Center (Highlighted in Blue at the bottom of this post/reply) Or visit the Epilepsy Foundation. There should be a link for EFA in Weblinks for Epilepsy, listed under Popular Discussions on the Top rite side of this post.
Let me know if you need more Info. If I don't know the answer, I can at least point you to sites that can explain & answer your questions. Hugs
That is Good & Sad. It is Good. Becuz, the docs have found something. But, sad that they did. Good news would be if they can fix whatever they found. I would write down any questions pertaining to Options & take notes. If possible, let there be you & another person sitting in on the consult.
I appreciate your Update. I will be awaiting further news. Thank You, once again. Know I care. Hugs!
The epilepsies are a spectrum of brain disorders ranging from severe, life-threatening and disabling, to ones that are much more benign. In epilepsy, the normal pattern of neuronal activity becomes disturbed, causing strange sensations, emotions, and behavior or sometimes convulsions, muscle spasms, and loss of consciousness. The epilepsies have many possible causes and there are several types of seizures. Anything that disturbs the normal pattern of neuron activity—from illness to brain damage to abnormal brain development—can lead to seizures. Epilepsy may develop because of an abnormality in brain wiring, an imbalance of nerve signaling chemicals called neurotransmitters, changes in important features of brain cells called channels, or some combination of these and other factors. Having a single seizure as the result of a high fever (called febrile seizure) or head injury does not necessarily mean that a person has epilepsy. Only when a person has had two or more seizures is he or she considered to have epilepsy. A measurement of electrical activity in the brain and brain scans such as magnetic resonance imaging or computed tomography are common diagnostic tests for epilepsy.View Thread
International Awareness Day: Second Monday of Feb. March 26: Purple Day, November: Epilepsy Awareness Month. Wear Purple to show Support. Advocate
You told me, I think. But, Hubby should know by now that not all seizures cause us to 'drop' to the floor. Or maybe he was just saying that as Info for the doc. Keep up w/ your Daily Journal, till you figure out what's triggering them. Hugs My.
YES! Ask any Football team. Or consider our soldiers returning from war. It may increase your chance, but, it is not a given that You Will have seizures. That depends on your seizure threshold. Which Everyone Has! If it is Low than chances increase. If you are suspecting you are having seizures, please, consult w/ a Neurologist who Specializes in Epilepsy. Ask when/if you call to make an appt!