I hope you can access this site. It is New FDA Warnings on Keppra. Some of the warnings are already well known, just haven't been noted as a warning??? In the past. Please copy the URL & show it to your Neuro. If you have to, please insist/demand the doc ween you off & place you on a new med. Changing meds is the Pitts. But, you won't know what will work til you try it. Keep in mind What works for one, may not work for another. And No DR can predict how anyone will react (seizure control or Side effects). Love CandiView Thread
Feb 9th International Awareness Day. In the future:Second Monday of Feb. March 26 Purple Day is still Epilepsy Awareness/Education Day everywhere. Wear Purple to show Support, Advocate, Educate!
I commend you for thinking of & taking care of your Mom & others' First. But, as a member who I feel is now a part of my 'family' I want you to know that I will be Worried about you & Yours. The way I see it...Who will be there for them if you don't take care of Your Health needs?
I am Hoping the Drs will at least get some tests done to see where you stand on the surgery issue. But, if surgery is out of the question for now, I am Hoping you at least find a med/treatment that will control your seizures. I did not note you mentioning what meds you are on. Or if the Dr suggested a change in meds/dose or other possible treatments. ie: Diets, exercises &/or other alternatives. Are you keeping a Daily Journal, too? Please read Journal Info in Helpful Tips. This is more than just tracking seizures & the Info you note may help you & your Dr a Lot!
Know I care & I will be thinking of you. Keep on asking questions. Keep on Learning. Lots of Hugs & Give your Mom a few of them Hugs for me, too.
If she showed Low Blood sugar, even w/out flu symptoms, that can trigger seizure activity! Keep up w/ her Journal & be sure she is eating properly. Hard to do w/ a kid in school. But, I think if you keep her informed of this possibility, she will hopefully eat/drink properly.
I'm glad to hear she 'bounced back' so quickly. I know it would take me days to recover after my 'episodes'. Thanks for letting us know how she is doing. If you have more questions, please Ask! I don't consider any 'question' about seizures 'dumb'. Hugs to both of you. Here is Hope! Hugs
I realize it must be tough dealing w/ your Epilepsy & your Mom. But, I wouldn't advise postponing anything! Why? Because my Daughter was eligible for surgery. Then, somehow, the hospital lost her records that confirmed surgery. By the time she was re-tested a few yrs later, the seizures had Spread to include her whole brain, not just one particular location. She was no longer eligible for surgery & had to stick it out w/ the drug merry-go-round. They have, Hopefully, found a med that works for her. But, like me, it took them 10 yrs to do so.
Dana's comment on EMU's is correct. Your stay at the hospital would be 2-10 days depending on any seizure activity.
Here is Hope that you can find an open MRI. I'm sure glad I ain't claustrophobic. Been in more than 1 of them machines. I just close my eyes & 'doze' till it's over. I sure hope you don't have to travel to far to find one. Keep asking questions & Thank You for keeping us up to date. Hugs!
I am Fine. Was just taking a sabbatical from all my Groups. I'm not sure what happened to do That. I do know it started after I had a Nitetime Sleep Mode. Wake up! Crash!. Wake Up! Crash. At least 3-4 times.This usually only happens during the day. But, it left me pretty drained. I logged in, read one post & logged out w/out replying. Now, you know me. I don't 'Normally' leave a post un-replied to.
Angie, you got reasons to Celebrate! Congratulations! I only know the Yr I became seizure free. But, that is easy to remember, since my son was born that yr, also.
Yes, My has already told me & I have shared the News w/ others' on Facebook. About the NV Chapter & the Epilepsy Walk. I think I heard about the conference, also. But, will check my account & post a reminder to those who mite be interested, on FB.
Thank You Both, so much, for helping Tim. I can see he appreciates both of you answering his questions. I have Reason to have Faith in you Ladies. I am Proud to have you Both w/ me.
I wouldn't trust an ER opinion. Ask your Dr for a referral to a Neurologist or an Epileptologist (seizure specialist w/ 2 yrs training in Epilepsy)
Tests: next would be a CT Scan or an MRI, another EEG or possibly a portable EEG she can go home w/ for 24-72 hrs. I would, also, have her estrogen levels checked. She is at an age where Hormones are changing. Levels of Estrogen & Progesterone fluctuate & can trigger seizures in a person w/ a low seizure threshold. These are known as Catamenial seizures. There is more info in Helpful Resources.
I know these 'episodes' were pretty far apart. But, it is said that seizures don't discriminate as to how often, when or where. Suggestion: Start keeping a baby monitor w/ sound/video in her room to be sure nothing is occurring while she sleeps. Showers Only! Unless bath is 'supervised'. Start keeping a Daily Journal. More Info in Helpful Tips. If possible, if/when another 'episode' happens...Try to Video the 'episode'.
As to headache, nausea, vomiting..these are 'normal' to post-ictal seizure activity. But, I am not a Dr & there are other possibilities. Please keep us updated. Keep asking questions. Learn Proper Seizure First Aid Response & inform family & Teachers of what to watch for & what to do. Here is Hoping it is Not Seizure Activity. Get Second Dr Opinions! Hugs!
Hello Tim, You will know this soon. But, the test you had sounds like an EEG. Depending on the results, you may be scheduled for a stay in an EMU (epilepsy Monitoring Unit) for further testing. I think you are 'talking' to 2 of the Best Ladies I have ever met. I Know they will be here for you, for as long as you need them or Longer. I do Hope you will continue to post us w/ updates, whenever possible. Know we care. Hugs!
I don't discredit any injuries when it comes to seizure activity. But, question? Do you recall any Head injury/concussion?
Here is a related article from a site I trust. It has a lot of tech words but, if you can read between the lines it helps. From what I noted, yes, neurological issues can arise from such injuries. Mentioned is neurological deterioration, which Could mean possible seizure activity. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3162686/
I do hope you are seeing some good Drs for this. I would consider a Chiropractic Specialist/surgeon, if possible. If you reply, I will post a link to someone who may be able to help. Hugs
Unfortunately, all our meds have side effects. But, it depends on the individuals system as to whether they will adapt easily or Badly to any of them. Or if they will control your seizures. But, then again, you have a Right to Quality of Life. If those meds continue to affect you Badly after 2-6 weeks, you can & Should demand another. Some side effects can decrease or be eliminated by eating nutritiously, too.
Obviously this doc ain't listening when you ask for Mono-therapy. Which is a sign of a Bad Doc. You want a doc who Will listen. And they can be Hard to Find.
Yes, I have a suggestion. Check into alternatives. epilepsytalk.com has articles about Diets, too, if you are Interested. But, it may take a Homeopathic MD/Naturalist to get you started & monitor your progress. Unless you can find a Neuro/Epileptologist (seizure specialist) that agrees.
Keep us updated & if you have any more questions, I will try to point you in a direction for answers. Hugs!