Thank You for joining us. Here is an article w/ the newest Treatments. I would like to suggest you save/bookmark epilepsytalk.com & browse thru her some of her articles. When you have time. She has an article about Diets that you will want to read, too.
I hope you will reply. I have some questions. What meds/dose are you on now? I'm assuming you have been on the Dr/med merrygoround for some time. Have you seen a Seizure Specialist/Epileptologist? (If not look at the Menu on epilepsytalk. There is a list of Drs suggested by others' w/ Epilepsy.) What type of seizures do you have? How often? What about your tests? Have you ever been admitted to an Epilepsy Monitoring Unit?
Most Important, in my book Do you keep a Daily Journal? Please read the Journal Info in our Helpful Tips to insure you are including all necessary info. This is more than just tracking seizures.
Another consideration...Cannabidoil. You can Google for more Info. But, this is truly helping Children & adults. My daughter (43) & Sister 56) use it & says it does Help.
You can read more about me by cliking on my ID or profile pic. Hugs
First, I want to assure you & your daughter that you are not alone. With Education & Support, you & your daughter can Learn to Face your Fears. Visit the Epilepsy Health Center & learn Proper Seizure First Aide. Tell others' what to watch for & how to Respond. Plus visit efa.org (link in our Helpful Tips) & learn about her Rights as a person w/ Epilepsy. Her rights are Important, as they apply to Medical & Work Issues.
I have never witnessed a seizure, but, I do know from what others' who are caretakers' say. And yes, we Look & maybe, even sound scary. But, we are still 'normal' people & we Need you to look past what we are doing & just know that we have no control over that. What is Happening to us Is 'Normal' & Caretakers need to remain calm & take Control. So,Take a Deep Breath & proceed & talk to the person, as calmly as possible. It is said that we can feel your Stress & that could stress us even More. Which isn't Good. Keep in mind that we, normally, don't feel anything. Our seizures will, usually, stop w/in 2-3 minutes. Post-ictal (aftermath) symptoms vary among each of us. Tired, confused, Chewed tongue, bruises, etc, & sore all over, w/ possible headache/migraine. Sleep is usually mandatory. Which is good. Our brains & bodies need to recoup. How long we sleep varies, also. I know my Brain/body demanded several days in bed. While others' recoup w/in hrs. Although they may still feel like they got run over by a mac truck.
Please, read Journal Info in Helpful Tips. This is very Important Info for you & your daughter. Learn about her medication & what to watch for. Keep in mind that meds we take can affect each of us differently. And it takes 2-6 weeks for an individuals system to adjust. There may even be More seizures Until the adjustment period is over. If seizures do not respond to this med, she may have to add on another or be weaned off & try another. She may want to do some 'homework' about 'alternatives', too. Yoga, breathing exercises, meditation, exercise, diets & so much more.
As Angie said, it ain't unusual to have 'normal' tests. But, Normal CatScan/MRI is Good news. No abnormalities such as tumors. cysts, lesions. So, what to do next? Find a Good Neuro! You can use WebMD or efa.org or check out http://epilepsytalk.com/ link. Drs recommended by others' w/ Epilepsy located in the Menu. Please, bookmark/save this page for More articles that you should browse when you have time. Including Diagnostic tests that are available. No need to join. Just use her Search Tool for different topics. One I suggest... Medical Terms!
I don't wanna overwhelm you w/ everything I have learned the past 30 yrs. So, please, let me know if you have any further questions. BTW: I would Love to talk to your Daughter, too. I know she could probably use the support of others' w/ Epilepsy. In fact, I Highly recommend you & her check out your State Epilepsy Foundation & see if any Live Support Groups are in your area. If not, then go the 'social media' route. Best place ever....NSDF Support Center on Facebook. Or Google the National Seizure Disorders Foundation. Please read my Profile by cliking on my picture or ID. Friend me on FB, if you wish.
BTW: efa.org has Info on a new product. A bracelet that detects seizures & warns caretakers. Another consideration...a seizure response animal. Some (not All) dogs & cats are said to be able to sense seizures b4 they happen. Animals cannot be trained to Sense seizures, But, Any dog can be Trained to Respond.
Hope this Helps. It will take Time & Patience to get answers & to find a treatment that works for your Daughter. Stay Strong. Keep Moving Forward! Never Give Up! Have Faith! Stay Positive! Hope for a Cure! The Mantra of Epilepsy Survivors' & Caretakers.
Donna, this is the most recent study done on concussions regarding depression symptoms. I realize they are focusing on Sports, but, this is True of Anyone w/ concussion. I've been thru depression several times. But, have always pulled myself up w/ the support of family/friends & Never Giving Up!
Of course they don't mention any treatments. But, i Know Depression can be alleviated in many ways. From, foods to supplements. From counseling to just one on one w/ my BF. I know lots of people w/ Epilepsy/seizure disorders suffer from Depression, too. Sometimes, it is just the knowledge of the diagnosis. But, Research has proven those w/ seizure disorders have little to nil Vit D, too.
From what you have said, It sounds to me like you are already getting better. At least as far as noise & lights. Just don't be driving. And always wear them Sunglasses. Prescription Strength Polarized glasses are recommended for those who have Photo-sensitivity Seizures. BTW: Lights & Noise are common triggers for some. Fluorescent lights, Emergency or cop flashing lights, Or just light flickering thru trees. Noise varies, too. This is 'need to know' info.
A chiropractor is Good. But, they should be Specialists. Who deal w/ head traumas & seizure disorders. Massage therapy can be helpful, also. Just, keep in mind that different essential oils they use.... the scent can trigger seizures, too. In Some People.
I see no reason you can't go outside, now. But, maybe you should take a friend w/ you. My son is 6 weeks post concussion & hasn't slowed down a lick. But, still makes me nervous, when I hear him kick the wall or move around while asleep. Course I'm gonna worry from now till whenever. He is my Son.
I realize the article I posted wasn't much help. But, truth is there is very little research being done. Epilepsy/Seizure Disorders & all aspects concerning either...well, our money for research is lower than 5 well known disorders. W/ Cancer leading the way. But, then cancer has been working on everything from research to public awareness for over 80 yrs. We are the Oldest known Disorder & have been put on the back burner for TOOOO Long.
BTW: If you would like More Feedback/support, you can find groups on Facebook, too. I'm not trying to get rid of you. I Can answer almost any questions you have. But, Extra Support/'listening', can/will Help. I Love my Home here at WebMD, but, have 'lost' so many members over the yrs. Thanks to the popularity of FB.
Welcome to our support group. I, too, developed a seizure disorder, after a traumatic head blow. clik on my ID to read my Journey.
Head blows/concussions, can be tricky. You may never experience another. But, unfortunately, seizures don't discriminate as to when or where or how long in between. No Matter the cause. I am on pins & needles w/ my son, who just suffered a concussion, a few months ago. As far as we know he didn't seizure afterwards. But, there were no witnesses following his accident. But, I know for a fact, that sometimes seizures may not happen, till a yr after the concussion. Even Military & Sports are becoming more aware of concussions & Seizure activity.
I suggest you learn All seizure symptoms. Ask friends & family to note any odd/unusual behavior. Teach them Proper Response, too. A Lot of people do Not know the correct procedures for different types of seizures. Some don't even realize there are more to seizures than convulsions.
How to heal faster/healthier? A good, nutritious Diet is the Most recommended. Low carb, high protein (good fats) Plus supplements to ensure you get all nutrients. You Can supplement w/ Smoothies. Fish Oil is now being recommended to Help. But, keep in mind, what works for one may not work for another.
Do your homework about anti-depressants. As some Can trigger seizures. I suggest you read about Natural alternatives for depression. I'm not a doc, but, if you can Cope w/out anti-depressants, it would Help. At least that is my Opinion. I take 5000IU of D3 & try to expose my face/skin to sunlight everyday. My Sis was on 2000IU & it helped her.
If you have more questions/concerns, please let me know. I have been dealing w/ my Seizure Disorder, for quite some time. If interested, I can post some articles, that may prove useful to you. Here is HOPE that you Never have another seizure. Hugs!