I am Fine. Was just taking a sabbatical from all my Groups. I'm not sure what happened to do That. I do know it started after I had a Nitetime Sleep Mode. Wake up! Crash!. Wake Up! Crash. At least 3-4 times.This usually only happens during the day. But, it left me pretty drained. I logged in, read one post & logged out w/out replying. Now, you know me. I don't 'Normally' leave a post un-replied to.
Angie, you got reasons to Celebrate! Congratulations! I only know the Yr I became seizure free. But, that is easy to remember, since my son was born that yr, also.
Yes, My has already told me & I have shared the News w/ others' on Facebook. About the NV Chapter & the Epilepsy Walk. I think I heard about the conference, also. But, will check my account & post a reminder to those who mite be interested, on FB.
Thank You Both, so much, for helping Tim. I can see he appreciates both of you answering his questions. I have Reason to have Faith in you Ladies. I am Proud to have you Both w/ me.
I wouldn't trust an ER opinion. Ask your Dr for a referral to a Neurologist or an Epileptologist (seizure specialist w/ 2 yrs training in Epilepsy)
Tests: next would be a CT Scan or an MRI, another EEG or possibly a portable EEG she can go home w/ for 24-72 hrs. I would, also, have her estrogen levels checked. She is at an age where Hormones are changing. Levels of Estrogen & Progesterone fluctuate & can trigger seizures in a person w/ a low seizure threshold. These are known as Catamenial seizures. There is more info in Helpful Resources.
I know these 'episodes' were pretty far apart. But, it is said that seizures don't discriminate as to how often, when or where. Suggestion: Start keeping a baby monitor w/ sound/video in her room to be sure nothing is occurring while she sleeps. Showers Only! Unless bath is 'supervised'. Start keeping a Daily Journal. More Info in Helpful Tips. If possible, if/when another 'episode' happens...Try to Video the 'episode'.
As to headache, nausea, vomiting..these are 'normal' to post-ictal seizure activity. But, I am not a Dr & there are other possibilities. Please keep us updated. Keep asking questions. Learn Proper Seizure First Aid Response & inform family & Teachers of what to watch for & what to do. Here is Hoping it is Not Seizure Activity. Get Second Dr Opinions! Hugs!
Hello Tim, You will know this soon. But, the test you had sounds like an EEG. Depending on the results, you may be scheduled for a stay in an EMU (epilepsy Monitoring Unit) for further testing. I think you are 'talking' to 2 of the Best Ladies I have ever met. I Know they will be here for you, for as long as you need them or Longer. I do Hope you will continue to post us w/ updates, whenever possible. Know we care. Hugs!
I don't discredit any injuries when it comes to seizure activity. But, question? Do you recall any Head injury/concussion?
Here is a related article from a site I trust. It has a lot of tech words but, if you can read between the lines it helps. From what I noted, yes, neurological issues can arise from such injuries. Mentioned is neurological deterioration, which Could mean possible seizure activity. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3162686/
I do hope you are seeing some good Drs for this. I would consider a Chiropractic Specialist/surgeon, if possible. If you reply, I will post a link to someone who may be able to help. Hugs
Unfortunately, all our meds have side effects. But, it depends on the individuals system as to whether they will adapt easily or Badly to any of them. Or if they will control your seizures. But, then again, you have a Right to Quality of Life. If those meds continue to affect you Badly after 2-6 weeks, you can & Should demand another. Some side effects can decrease or be eliminated by eating nutritiously, too.
Obviously this doc ain't listening when you ask for Mono-therapy. Which is a sign of a Bad Doc. You want a doc who Will listen. And they can be Hard to Find.
Yes, I have a suggestion. Check into alternatives. epilepsytalk.com has articles about Diets, too, if you are Interested. But, it may take a Homeopathic MD/Naturalist to get you started & monitor your progress. Unless you can find a Neuro/Epileptologist (seizure specialist) that agrees.
Keep us updated & if you have any more questions, I will try to point you in a direction for answers. Hugs!
2 or more seizures Qualifies as Epilepsy. Brain abnormalities such as yours can be responsible! epilepsy is caused by a localized abnormality of the brain, which can result from strokes, tumors, trauma, congenital (present at birth) brain abnormality, scarring or "sclerosis" of brain tissue, cysts, or infections. Yes, The surgery performed was successful. But, now, they have been re-triggered by Something and it is highly possible they may not go away. As I said...It's an either/or situation. Even the supplement you are/were taking for energy can be Suspect! Doesn't matter if GNC approved it or not! I tried to look up the Supplement but, you mis-spelled it. So, Please, check our Drug & Supplement Guide up top. When you get to that supplements page Clik on Side effects & Expand the article. Note the blue high-lighted statement? Clik on it & you will get More feedback that others' have reported while taking that supplement.
IF the seizures Are caused by the scarring, it may be possible that you can have another operation. If your Lifestyle is responsible, then yes, you need your medication or an Alternative.
Seizures do not discriminate. There is no way to Know for sure if/when or where another seizure may take place. As you already should know if you have been doing Homework. Based on your seizure activity as a child says it All.
Yes, I would call your Old doc & see if he will see you. If not, then ask him for a referral to a Dr you Can trust! But, keep in mind that a Lot has changed in the world of Epilepsy in the past 20 yrs. What your doc said after the operation is no longer True! For Some!
Drivers License...I have heard what you are saying soooo many times over the years. My Question.....Do you Value your Life & those of others' on the Road? Do you really want to take that Chance? There are Alternatives. Neighbors', classmates, bus systems, etc. It don't hurt to Ask! If you feel you are being a Burden by asking, Stop, Think Again. There are ways to re-pay these people who Do assist you! So, please, until you have answers & have No More Seizures for the Allotted Time, don't drive.
You have choices & I do Hope you make the Right decisions. Please clik on my ID & read my Epilepsy Journey. Hugs!
Sad to hear your seizures have returned. So, my question is...Did the current Neuro base his/her opinion on the tests that were run? I am assuming the CT Scan showed scarring, because an EKG does not determine seizure activity. Not that I know of anyway.
I find it kinda Strange that your current neuro is saying that you Have to take Keppra in order to avoid losing your License. Fact is, you had a seizure & Should Not be driving period. There is no way that Any Dr can predict if Keppra Will control further seizures. Only Time can insure that! 2-6 weeks on any med determines if it Mite be working. But, that is not a Guarantee! Your DMV requires you to be seizure free for at least 6 months, depending on the State you live in. BTW: Research from the UK has determined 1 yr seizure free is better/best, b4 resuming driving.
As for surgery... Yes, some people can go the rest of their Life seizure free. But, it is not Guaranteed either. Latest Research findings, claim surgery may only work up to 15 yrs. The fact you went 20 yrs is a good thing. But, now, you need to focus on controlling them, once again. Unfortunately, scarring can Re-trigger seizures. But, so can Improper sleep (which can cause Stress, too) Stress & inadequate eating. And It could be a combination of all 4 factors. You really need to have an EEG done, to determine if your brain IS misfiring again. No matter What the cause!
I recommend getting a Second Opinion! In fact, anyone w/ a Seizure Disorder & activity should seek more than 1 opinion. As for Keppra, well, that is up to You! Cuz, it doesn't matter What triggered the seizure! The sooner you have control over them, the Better! Of course there Are alternatives. Diet is one of the alternatives. But, that would mean seeing a Homeopathic MD or Nutritionist that Specialize in seizure disorders, too.
Since you don't have Insurance, I suggest you Find a Teaching Hospital. Or apply for a Clinical Trial. Clinical Trials will Pay You! You could, also, contact your State Epilepsy Foundation to see if they can help! EFA.org has contact Info. Only Issue w/ that, is you Have to see a Dr they recommend.
I know this isn't what you want to hear. But, Hope it Helps! Keep in mind, You are Not Alone! I will be here if you need or want to talk further. Hugs!
We are not Drs. But, I can tell you a Normal MRI is Good! It means there are no abnormalities such as tumors, lesions, etc. As for the VEEG. Please ask your Dr. But, it does sound like you may have to have another test (EEG or VEEG0 done. Treatment will depend on what the Dr concludes necessary. More than likely a anti-seizure med will be recommended. But, Please, do some homework about 'alternatives. Start keeping a Food Journal too. It is possible for food allergies to cause seizure symptoms/readings, too. Please read our Journal Info in Helpful Tips.