I know all to well about distractions. But, good to hear from you. Congrats on being 6 mths seizure free Today! Next Goal 1 YR!
Sounds like you may need to watch your sugar levels, though. I know it can be difficult at times, but, you really need to establish a Set time for eating & stick to it! Hon, it ain't Good to mess w/ your med schedule. Your system needs to maintain a Steady Level of meds. So, Eat, B4 you consider taking your meds early. Then you may not Have to.
Have a Great Day w/ your Aunt. Happy to hear you like your job, too.
Me? Some Highs, some Lows. My Niece & her Hubby w/ 4 kids, came to visit me a few weeks ago. I got to see/hold my Youngest Great Niece for the first time. She is just barely 1. And Oh so Sweet! She is the one that was born w/ Seizure Activity. They kept her on Phenobarbital for 6 mths w/ no more seizures. My Niece & Daughter insisted she be taken off the med due to possible developmental Issues. She is Still Seizure free. Knock On Wood. She seems to be a perfectly Happy, Healthy young Lady.
I did get to work a casino Rooftop concert last Saturday. Got another one coming up on the 29th. I'll take $40 for stamping hands. Yard work, housework, never-ending. But, all is Good!
Hope to hear from you whenever you get the chance. Lots of Hugs
Do you belong to any Epilepsy Support Groups on FB? I added my Facebook ID to my Profile. Friend me. Not sure, but, I Think I have read some of your posts. I have a Group, called EP Land. That is what I used to call this Group. Epland. A friend started the Group for me & named it in Honor of this Page. I don't have many members. I don't Care to have a Lot of Members. I belong to other groups & their 'Owners' & admins can contend w/ All the Fights & Squabbles. The Group I have is used Mainly for storing interesting Articles pertaining to Epilepsy.
I have the same Issues w/ my State EF. I called a few weeks ago, to see if they would send a rep to my town for a Health Fair. Took them a week or 2 to reply. Reply: No reps available. But, IF I want to rep them they will send material. What do I want & how many?? Well, I don't know. And They Should! The health fair is next week. And I don't have the Funds to rent a table/space. So, another opportunity Missed.
Continue spreading the Word. If even 1 Person reads the Info that is Better than None.
Keep sending your Epilepsy Foundation Private Messages. Sooner or Later, they will realize how serious you are & may Answer you. You Know I am Rooting for You! Please, keep me posted on how you are doing. Hugs!
Believe it or Not, those same Myths exist here in the States, too. Maybe not as Bad, but, Still... Ignorance of Epilepsy is a Nitemare. I recently spread my wings to join Facebook Groups. There are Lots of Pages that have been created to Raise awareness. But, it just isn't enough. We Need Social Media. And no one can Afford it! I will try to post your message on a Few Facebook Groups. I will Inform you of any responses. Maybe someone w/ more knowledge on planning events will join us.
I do have 1 suggestion: Talk to your Local Schools/teachers about getting some Kids involved in your event. It's a Start. Sides Teachers are very good at Organizing.
Bless you Chaddy! You need it more than I do at this time. So take my Share. I do Hope the Probiotics work for you. But, do yourself a favor. Make a water de-tox solution & flush your system of them anti-biotics! There is a site (Google or Yahoo Search) that has over 50 recipes. But, here is a simple one that Hubby makes for me. 2 quts water, 1 Apple. sliced, w/ 1 stick of cinnamon. Let sit for 4 hrs b4 drinking. You can reuse the apple/cinnamon for another 2 qts.
Thanks for the Info Tasha. Sounds like Dilantin is working for you. Dilantin was the med I quit taking. Thought I was Cured. If your seizures are so well controlled, at this point, then all you need is the basics. For now. That & refill Scripts. Your Health System sounds about rite. It is Sad. But, believe me, the docs here in the States don't do much more, once seizures are controlled. So, question, Do they do any Blood work? They Do need to Test your med levels & Liver!
Sounds like you have all the Good Traits of Epilepsy. The Creative Side. Which is Good! A previous member was an Artist. She now does computer graphics w/ her paintings & makes calenders for a Seizure Organization w/ her own personal drawings/paintings.
You sound like a Great person. I am Very Happy you found us, too. :0 Keep your Chin Up! I Hope you have a Good Day. Hugs!
I know I am Low on members. But, I've been here for over 20 yrs. You can click on my ID or pic to read my Journey. Finding this Support Group was the Best thing that ever happened. I, too, had family & 1 Friend for support. I have been fortunate to have their assistance & Love. But, once I found this Group it was a Relief to be able to share w/ others' who Understood & they encouraged me to learn about All aspects of Epilepsy. I am Still Learning. Did you know there are 45 Types of Seizure Syndromes? W/ over 2000 different causes. And Numerous triggers? Yet, over 65% of those known to have Epilepsy are diagnosed w/ Unknown Cause. There are 65 Million People World Wide w/ Epilepsy. You Never were & never will be 'alone'.
It is said that we find out who are True friends are w/ this Disorder. Why? Becuz People or the Majority of the Public do not understand what seizures are or what to do when they witness one. Scares the Beejeezus out of them. All you can do is Try to Educate those willing to Listen. Let them Know that you are Still a Normal woman! W/ a neurological disorder called Epilepsy! That you can't help it if the electrical signals in your brain misfire. It Takes Brains to Have Epilepsy.
I, too, stopped taking my meds. Once! Drs Forgot to tell me taking meds would be a Lifelong Issue. They didn't tell me what Seizures Involved. All I knew was I hurt all over. The aftermath was Horrible. But, when I awoke all bloody under a bathroom sink, I knew I could no longer deny that I needed Medical Help. I Ignored the Epilepsy Foundation fliers in the waiting room at the hospital I went to. Another Big Mistake.
OK, enough ramblin. I think some of this is in my profile anyway. So, how long has it been since your last seizure? What medication are you on? Do you keep a Daily Journal? More Info in Helpful Tips. Please read.
Stress Induced? Very possible. It is a Common Trigger for a Lot of People. When was the last time you were tested? EEG? Portable EEG? Video EEG? MRI? You haven't had many seizures, so far. But, that may be due to your meds working for you. But, you still need to be tested at least once a yr. And have blood work done every 6 mths.
Are you doing any thing to help relieve stress? Yoga, meditation, diet, etc?? There is 'talk therapy' too.
OK enough. I Hope you had a good weekend. Know we Care! Hugs!
I realize getting back to good colon health is Important. But, if your antibiotics are causing seizures, then you need to Report it to a Dr ASAP!
Is there a Nutritionist you can contact? There may be foods/Diets out there that would get ya back to Normal.
Or!!!! If you need to Stay on antibiotics.....Again, talk to your Pharmacist & ask if there are other antibiotics that Don't cause seizures, that you can take. Drs do not always check about how meds will affect us. I apologize if I am repeating myself. But, Meds that cause seizures are not good for you, either! Period. You risk more harm to inner & outer body. You are not Stuck! You Do have Options! You just haven't talked to the rite person about your Options.
Get better soon. Hope you get the Help you need. Hugs
I agree, w/ Nancy. I was given Cipro/antibiotic & seizures were listed as a side effect. Plus, I have read of others' being given antibiotics that interact Badly w/ your meds &/or can cause seizures. Illness has already lowered your seizure threshold. I still don't understand WHY?? Drs don't do their Homework First. When it comes to mixed meds, you need to ask your Pharmacist to Check for Interactions & read your printout. Problem there?? Print-out doesn't list All Side Effects. Cuz, someone didn't report their side efect, that wasn't on the print-out. Not to forget, these meds are being Tested by Us. All our systems are different & can react Same as a certain percentage. Different for others' I apologize if ya already Know all this.
Suggestion: CALL your Pharmacist & Ask Questions! He/She may recommend you Stop taking the antibiotic. But, you Can Ask what you Can Take w/ your med.
So, How was Your Day? I do Hope you & your body/brain have recouped some. Lots of Hugs! Stay Strong! AND Get Well, Soon! Hugs!
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