Seek an Epileptologist (neurologist w/ Epilepsy Training) Visit www.epilepsytalk.com for a list of Drs recommended by others w/ Epilepsy. No need to join to read articles. She needs to see a Neuro ASAP!
Next: Start a Daily Journal! Info can be Found here in Tips where you posted. The Info will explain why you need to record Everything & not just track seizures.
Other than that, Learn about All aspects of Epilepsy & treatments, including 'alternatives'. ie: Diet, neurofeedback, corrective chiropractic & more. Our Resources has Lots of Info & below this Post, note the Epilepsy Center in Blue.
What else to do? Stay Calm! Be supportive! Encourage her to Learn more. There are books available on Amazon.com that can assist, too. Take note of Authors/titles & go to your Public Library & ask for the Research Librarian. It is their job to help you locate books if they aren't available in your library. A Book that Has been recommended for the past 20 or more yrs. Treating Epilepsy Naturally by Pat Murphy.
Now, If you wish to continue this conversation, Do Not respond to this comment. Please Post your questions/comment under Discussions. Although it IS a request for Tips, it is Not a Helpful Tip. A few ppl have been confused & posted here, as you have probably noted. But, I prefer our conversations to be in Discussions. Hugs!
The Heart Attack May have been seizure related. Over 65 % of people w/ seizure activity are diagnosed w/ 'Unknown Cause'. It may be possible he was experiencing 'undetected' types of seizures. I just learned that I have a seizure disorder where I have seizures in my Sleep w/ no physical Activity/evidence. After 30 yrs of Normal EEG's.
I Know Any seizure activity can affect the Heart. But, I will do some 'homework' & Learn More about HA or Heart Problems Causing Seizures. I do know that Over 65% of people w/ Seizures have 'unknown Cause'. Plus, I agree, anyone w/ 1 or more seizures Should have their Heart checked. I know my Sis had a Stroke after 36 yrs of Seizure activity. I had my check up several yrs ago & all was fine. I am considering asking DR for another test to check Arteries. Thank You for Sharing & your Great Advice!
Did your DR run any tests B4 saying No? Do you know what caused your seizures? Have you considered getting another Opinion?
Depending on Type of Seizures & cause some DRS will decrease or wean you off your meds after 2 yrs of no seizure activity. None of my DRS have ever suggested it though. I have been on the same med, same dose for over 20 yrs. Seizure Free. I have had breakthrus due to missed meds. But, that's Rare!
Are you just curious to know if your seizures will come back? If you decrease meds yourself, you will find out. No, that is Not a Suggestion or Option!
If it is meant to be, let your DR approve & Supervise your Drug levels. Haylen is Rite. It can be dangerous. Life threatening!View Thread
Good to see ya gettin to post again. Hey sweetrie, ya already had this article posted in tips. And I set up a page/post in Resources for All your article Links. SO we can file all your subjects/articles under your name. OK?
I reported the other identical Tip. So no worries.
I call it the DR/med merrygoround for a reason. 40 yrs & I am still riding that merrygoround. You would think, w/in the past 30-40 yrs, that I would have come across Lots of Good Drs. Especially, w/ moving & Insurance Changes necessitating another Opinion. I've changed Neuros, in this town, three times. G.P's, 4 times & fixing to try again. Pulmonary Doc has to go, too.
Thank Goodness for Others' who have 'been there, done that.' It Helps Knowing We Aren't Alone!