Thanks for the tips. I'm still having problems finding a neuro. Utah has a ep center which doesn't take my insurance. I think I found a solution to try tomorrow. Here's hoping it works. The journal I'm keeping is already showing a couple patterns for weird feelings. I don't know if they are partials or what. If I get worked up while cleaning or misbehaving children or spatting with hubby envokes weird sensations. Supid stress! lol! Another weird possable symptom I have now is the feeling of bugs crawling under my skin. I did't switch any soaps or changed my diet except alot less soda pop. I did switch to a lower dose of meds which could be the cause I guess. This is a cause of stress too since my neuro surgeon only makes changes by phone. I hope to find a neuro before I am off the meds. I feel a surgeon shouldn't control the dosage of these meds. Any way thanks again. I like to read answers to others concerns. It triggers questions for me to write down to ask the doc. Keep up the great work! CathiView Thread
Thank you for the insight into some triggers. I know the library is a good place to start some research but I have been classified as legally blind since my last post due to damage from the tumor that started all this. Does anyone know if there are audio books on the ep subject? My library is small so they don't have anything. Or maybe a web site that will read out loud to you? My daughter is great to help but she is only 8 and in school all day. I still haven't been diagnosed with ep since I haven't found a neurologist yet. I do have my suspitions now I've done some research. I keep hearing things from my husband about what he notices from my behavior. I just write it down to show the doc ( if I find one). Any tips for finding one in my area? I've tried google with no luck. I'm in north eastern Utah. Anyway thanks again!
I can't thank you enough for all your help! Should I be concerned about going off the meds? If the risk is high to have another one should I bring it up with the neuro surgeon since I haven't found another specialist yet? I'm already down to 1,000 mg a day and in a month it would go lower. Also can a partial feel like low blood sugar? my parents are both diabetic so I know when sugars are low for them. Some times I don't eat breakfast or lunch and I'm fine and other times if I eat breakfast and by noon I feel sick, hot, sweaty, and very shaky. Still coherent though. it comes on suddenly but fades slowly over the next hour or so.View Thread
A week after the episode I went to an already scheduled app with my neurosurgeon. He reviewed the mri from the er and told me to stay on the levetiracetam (2,000 mg a day) that the er started. After 3 months He would start weaning off it so by the one year mark I would be done with it. As to if it was a really long episode or if it was broken up, he said he don't remember it stopping and restarting. So in the precaution and safety area, I stay home with my 5 year old daughter all day and I live out in now where land. I feel it is a bad idea but we have been working on phone skills for emergencies with her. She calls her grandma and her dad regularly for practice. He calls me every hour to check in with me. I haven't been driving anyway since the tumor caused permanent damage to my vision. We have no bath so no worries there. Are hot tubs ok if i'm not alone? I am in process of finding a neurologist but it looks like I'll have to go about 4 hours from home to see one. I wonder if I have been having them longer than I thought. Before the tumor I had periods of what I thought were day dreams. One night driving 30 miles home I went into "day dream mode" and after pulling into the drive I came out of it and wondered how I got home. I remember being in the car behind the wheel but do not remember driving or landmarks. Its happened before then and after. Now that I've been researching a little it scares me to death. Could my "day dreams" be partial seizures?View Thread
Ok I'm new to health problems in general so it gets confusing. On Jan 6, 2012 my optomitrist did his exam with results that startled me. He wrote a prescription for an emergency mri. I went straight to the hospital for the test. AfterI was done the tech said it would be 3 or 4 days for the results. By the time I got home (40 min) the optomatrist was calling with the results. I had a tumor. Then on the 9th i was in the neurosurgeons office. The tumor was the size of a golf ball pressing on my right optic nerve and pushing my brain down my spinal cord. I was checked into the hospital that day and surgery was set for the 10th. All went well with the recovery and I only spent 4 days in the hospital. So I had a question. In Aug I had a (grand mal?) siezure that my Husband said lasted about 15 min. convulsions, loss of conciousness, and what my hubby describes as the death gurgle, and I remember nothing. I was asleep when it started and woke him when my arm hit him in the face. I'm glad he knew proper protocal! So is it generally one seizure that lasts that long? or multiple overlaping? Is it common to hurt for months after? I've had back, shoulder, and rib pains ever since. They took xray at the er and did a ekg and mri to which all normal as I remember it. Also could the smell or chemicals of hair dye cause a seizure? I did dye my hair right before bed.View Thread