Tracey, I am glad you found this group and hope you do make use of the great support you can find here. Candy and Angie just helped me earlier this summer through a rough spot and have made me more aware of triggers that can bring on seizures. There isn't a great age to find out you have seizures but I will say it is hard to be in your twenties and have friends that may not quite understand the repercussions she may have if she has too much to drink. You definitely want to check with the doctors on that subject, I have had different opinions from doctors to pharmacists but I choose to stay away from the alcohol just to make sure it doesn't lower the effectiveness of my meds or cause me problems. Her life is definitely not over and doesn't have to come to a screeching halt. She just needs good support from you and her boyfriend that seems to be concerned and on top of noticing things already. with the support of her family and friends she will get through it. I know it is scary to think of being medicated for a long period of time but don't overthink it too much until you get actual test results back. Taking medicine each day can help control the seizures some and sometimes completely. but it takes time to get the right combination down. Keep optimistic and know that as crazy as life can get with seizures it sometimes makes us appreciate life more in the end. I now think of myself as lucky to have only seizures that I can mostly control in comparison to some that have terminal diseases. I know that is kind of a depressing way to think about it but I try to view it as a way to reach out to others with any type of health concern and help in anyway I can. she will have a new kind of normal once she finds out more from the doctors and gets more direction, but keep coming to us with your concerns or questions. Good luck with everything.
Candi and Angie, Weight has been an issue for me since I was in grade school honestly, which was before the epilepsy medicine started. So I can't blame it soley on my meds. Now I just want to maintain which with everything lately has been on my mind first what I am putting in my mouth is not healthy food usually. Just trying to get the food part refocused. I lost weight in the last two years that I am not wanting to have to lose again. Angie my husband's team is also the raiders (if we are talking pro football) I am a packer girl myself. I grew up in Nebraska all my life so if anyone watches college ball you know husker fans turn out in seas of red. You can not really live comfortably in this state without being a football fan. Yay for preseason football starting at least.
Ladies and any gents that may be also reading, I know I have been out of touch with you for a while but I have been a lurker in the midst observing the work of these two wonderful friends that are here for anyone at any given time. You ladies ate truly amazing. I have gotten back to workouts with my sister in law at least 5 times sometimes 6 a week. Trying to manage my weight since the change of meds has been something I have wavered in. Especially in the area of food. But it has been an emotional summer. My current trial to go through is losing my grandpa. He passed away this past weekend and the funeral is tomorrow. He was 91 so he lived a long good life and is now in a better place where he isn't in pain. So it is a blessing to have had him as part of my family until this point in my life. He however is the first grandparent I am losing. I still have the other 3. I helped my husband and my friends through their losses of grandparents in the last 10 years, it is just new territory for my immediate family though since the last death in our family wise at least was when I was 12. We have been so blessed. I truly appreciate all the support I have gotten from this site and hope this fall is going to be a little less chaotic.
I grind my teeth and have a history of seizures as well, the night guard I feel more comfortable with is Dentek custom fit night guard because it forms around all of your teeth on the top. I bit through the ones that the dentist made for me and bust them. I just replace the Dentek one and you can get coupons for them in weekly grocery coupons every once in a while.View Thread
Nancy, I hope the doctors are catching activity with the tests they are running, but I wanted to also put out there that if it comes to where that activity does not occur while you are there I have had a similar experience of severe dizziness. Mine however after tests and theories of several doctors came to be that I have meneirs disease. It would cause dizziness to where I couldn't walk without holding on to a wall or someone by me. 4 hours is how long it took me on 3 different occasions to have the dizziness stop. I had one time that it took me 6 hours to recover but it was just after I had a colonoscopy done the day before hand. With all the liquid I took in for the preparation of the colonoscopy is what effected the meniers. I now am on a med that regulates this but after 4spells of it happening it was frustrating to try to make sure my work wouldn't be upset about me leaving. If your doctor wants to test for this it would involve a hearing test and a test where they put water in your ears and have you do a light test after that water is put in your ears, sorry I can't remember what it is called.View Thread
This has been an educational post. I know there are so many things that can cause seizures and that our meds that control them can make other things in our body have more issues so it can be a double edged sword sometimes. But it still amazes me what things need to be done within us to calm down our brains to function normally. I have never had to consider surgery yet for my seizures but am amazed by the info that I have learned of what they can tweak to make things work correctly.
I hope that with more awareness of this we as patients of epilepsy can also bring more to the table for symptoms we have to make these different issues that arise more treatable or even preventable if at all possible.
Shelia It sounds like you had to go through a lot lately, which I am sorry you had to experience. I am curious to know if you don't mind what meds you are on that can cause problems for your liver. I know Tegretol xr is one that does that because I was on it for a while and towards the end they wanted to monitor my liver as well. I liked tegretol xr for the control portion it helped me for years with, but it started to affect my sodium is why I had to let it go. I switched doctors as well to get some more answers. I know that isn't the most fun thing to do, but sometimes it seems that if you have had any control of your seizures you become a number. because I had great control of mine for many years but when problems started to arise my previous doctor acted like it was not big deal because I didn't have seizures a lot. well the more negligent he was about it the worse things became. I am so glad you got another doctor that is working with you. I hope the PCS makes it way out soon for you as well. computer restrictions are hard for anyone these days they are everywhere. I started back to work the 2nd week of june after being off for 6 weeks for med changes of my own and getting used to the computer and the stress was intimidating but it fell back into place for me. Your seizure that you had where you mentioned not remembering how to use the silverware do you remember feeling confused about it? I used to have absence seizures when I was younger where I would say things to my mom but when I came out of it I could only remember bits and pieces at the beginning and just as I was coming out of it. But evidently I would talk more through them than I was ever aware. But my seizures now are complex partial seizures and my husband has been getting educated more about seizures in this last year and a half especially since I had changes going on. I hope things continue to go well for you though and its always good to hear the successes, but when you are having things happen don't be a stranger JenView Thread
GrandmaKitties I also responded yes to your question. I have experienced petit mal seizures earlier in my life when I was first diagnosed and have later developed grand mal seizures which is what my more recent seizures have been. Please continue to report to us about how you are doing and I hope things get better. I know I have had seizures with an aura most of the time that lets me know when it's coming generally but I have also had them where I had no warning that I picked up on and it is alarming to come out of. I for the last two major seizures have hit my head because I was standing and fell backwards. One time involved stitches and the other was a big bump. Hopefully you will get some answers and relief with doing the things that Candi has suggested. Just keep talking is one of the more important things when it comes to depression. Don't shut out people and get out the frustration somehow, we are here to help or to vent to when you need it.
I have now been at work a few weeks and feel my confidence coming back and even some of my tasks at work that I used to dread are now things that I am trying harder at. So my supervisor is happy to have me back, for now until something new starts up I guess. I have been watching ball games for my nephew and that season is about winding down now which is something that is good because I think being in the heat affects me more with this med than the last. I know Keppra has right on it to avoid prolonged direct sunlight. so i sometimes have to find a tree at the ballpark to sit under and I am fine otherwise I just get to warm and don't want to push it. I hope all is going well for others here as well. Have a good week. Jen View Thread
mkees, I hope that you have read Angie's post she has given a lot of good suggestions. I would agree that anxiety, stress, lack of sleep, etc. can all cause seizures. If you would like to you can check out some other posts by myself on this site. The strangest things can affect your body. Are you on a specific medicine for the seizures at this time that they are adjusting or how often in the 4 years have your seizure occurred? If you are not currently medicated and they continue to happen I would suggest the EEG that Angie mentioned where you are observed and they can get a better reading hopefully to see what is actually the root cause of the seizures. I am not sure how much you take for notes for your doctor but I have learned the hard way and by switching doctors even that we have to get the right doctor the right info to get answers. keep up the investigating because there are doctors that are more specialized that can possibly help you better than what you have received for answers so far. I sympathize with you that you have to keep going through more tests but if you get the answers from those tests that you need things will get better for you. Please let us know more of your follow up. If your depression is getting severe I would consider talking to at least a general physician about what vitamins or meds you can take to help. Exercise helps me to feel better when I am having a rough time and a walk outside is free so get some fresh air for yourself as well. It does wonders. just make sure to take some cold water with you as well.