Cindigal, Fruit is normally a good way to get yourself to have an alternative to the sweets you might crave. I have been one that struggled with my weight ever since I was a child, and then almost every med I have been on for seizures always had a weight gain side effect with it. I lost weight to a healthy weight in the last two years. I did it with weight watchers, but the most important things I learned was eating meals and snacks throughout the day and portions. Keep variety in your diet and your exercise. Your body if you are trying to lose needs change. I lost my weight slowly. I had to build up exercise and keep changing my routine. I also had to find a way to get recipes that were things I liked to eat like mexican food that were healthier than what I got at restaurants. Don't stick with just chicken even though it is a healthy meat work in fish or lean meats that you like as well. If you do to much of the same your body basically retains the wait or can even gain because of your emotional times of feeling deprived. It takes a lot to get the right plan that works with your body because everyone is different. It took me a year and nine months for me to lose 120 pounds. Please let me know if you need any other weight loss tips. I like to be able to pay that forward because I struggled with it myself for so many years. Good luck and keep in touch.
Are u waking up right after it happens? if so what feelings are you having? Does your husband notice you moving around before it happens? I only ask because I have on two different occasions wet myself as an adult but with both occasions I had a seizure. This may not be the reason but I would take down any information you recall about when it happens and maybe even the food you are having or things you are doing on those days and talk to your doctor.
Candi, I am sorry the juice didn't seem to work for you. I love puppies, but we live in an apartment so it isn't an option for us right now. I definitely know what you mean about kids that are ours. I have a mama bear that comes out when anything happens wrong with my kiddo. She is just going to be 8 years old in June. She was part of my motivation to lose weight. Before the med change I could outrun her. I am still having some dizziness so I haven't run for almost 5 weeks now.
I hope all goes well for your friend Ed for the license. I am currently unable to drive and I am very used to my independence and being able to go so I feel like a hermit and can sympathize a little for him. I don't know if it is all in my head or if from everything I have been told or read, but I agree that I don't think Dilantin would have worked for me long term. Maybe it would have but those side effects for me were nutso. I haven't ever been as uncomfortable as the first two weeks on that stuff. I think the anxiety is still there a little but at the same time I am a worrier anyway as it is.
I am now working on getting my communication more open about bills and side effects etc with my husband. It is hard sometimes with him because he is the type to say everything will be fine because he thinks it is what I want to hear, and he doesn't tell me much about what he worries about in general, not just about my health but I am saying our whole relationship it takes a lot to get the layers peeled back on him to get him to open up sometimes. we have talked more in the last few days and gone through medical plans/bills a little to be on the same page about things. so I guess slowly we will get there.
Hi ladies, Candi thank you for the information about the adrenal glands. That could help out a lot. Angie I have only been on dilantin since April 29th but I have not noticed the difference in my gums. That sounds painful. But dilantin dose is down to 200mg one time a day. I think I have a better chance of getting back to me soon, my step daughter is going to be with us for the next two weeks. She distracts me from thinking about medical stuff all the time. I love her from the bottom of my heart. I came in to her dad's life as his girlfriend right about the time she was born. His previous relationship with her mom was not healthy at all. The good thing is that I feel like she is my own because I have been in her life so long. She needs more supervision than my husband so hopefully you all have a good weekend.View Thread
Angie, The Lamictal is the med that I found the low energy side effect for listed as an infrequent side effect but it does list drowsiness as a common side effect.And as you probably already know the drowsiness is about one of the first listed with Keppra.
I hope that now that i am getting rid of my dilantin little by little that things will level out so I can get back to my usual life. I will keep my fingers crossed.
Kim, I love your entries, they make me smile. You have a great sense of humor. about the journal piece, I honestly didn't start a daily one until this med change otherwise, like Angie I have a listing/calendar of the seizures I have had. Your idea about the database seems really ingenious but I am not sure how much people will actually put out there. I am pretty open with my history just to let people be informed around me especially so they know what is going on if I were to have a seizure. However there are sometimes that people find out this type of information and they treat you with a white glove or believe that it means you are not able to be accomplish the things the next person can. So I am not sure how it could work out but it sounds like something that doctors could even benefit from. HIPAA laws and everything combined with that is the only thing that comes to my mind that may shoot down your good intentions.
Good luck with your business you are starting as well. It sounds interesting and also sounds like it will benefit you health wise when it is up and going. but yes do be careful to not stress to much if things are just getting started.
Kim I know it is over overwhelming to start that journal. I do mine throughout the day so I don't forget anything. A good place to get ideas of what to take down is in the Tips area of this epilepsy community. You can search journal but the name of the thread is "journals posted by meetz." It has a lot of suggested things to journal. your post above about the breakfast foods made me smile. I get the same way but mostly in the afternoon with snacky foods. I have not experienced the smoke smell but I get dry mouth several times a day.
I have usually been on one or two meds. So it depends on the medicine and how it reacts with the person individually. I am going through a med change now but the goal is to be on one med or two in the end. I am sorry that may not be what you are wanting to hear. but I have learned the more the doctor knows about your symptoms, daily activities, how you feel, what you eat, and how much you sleep can help the doctor find the right path to making your seizures manageable and help you live more a more comfortable life. I realize your doctor didn't tell you about the journal but sometimes we as patients have to be proactive.
Even though our health is a definite priority keep laughing. that laughing can relax your body and when we are relaxing it is less likely for us to have those pesky seizures.
Keep coming back and chatting and let us know how you are doing. We all learn from each other. Have a good weekend!
I am just in my first month of taking keppra and now that I am to my full dose of it I am more tired which is common for beginning this medicine and I have read a lot of other's posts and have seen that it depends on the person as to whether it get's better. I am on other meds as well but not not lamictal. But according to webmd one of the side effects to that medicine is low energy. How long have you been on these medicines? I would talk to your doctor either way but also ask your pharmacist about the possibility of adding vitamin b to your regimen of daily meds. Hopefully this helps you. know one thing for sure that you are not alone in the side effects battle. I have also experienced more waking up several times a night but I think it may have to do with the interaction between my meds. Please become back and follow up and let us know how you are. JenView Thread
Kim I am fairly new to this community so I will introduce myself, My name is Jen. You and I have been going through a Keppra change at the same time basically. I am also on Gabapentin and Dilantin which I am starting to taper away the Dilantin this week. Anyways the appetite issue you are mentioning sounds familiar at this point for me, but my time of day is afternoon. In the morning I am not that hungry, but I am really trying to get back to my normal eating routine so I still eat a small breakfast. I have been on the keppra now for 3 weeks. I know I am on other meds now as well so our reactions may differ a little. I agree with Candi though as to break up your eating through the day but that also is how I have been doing it for a while because of a weight program I was on before, I had previously been on a medicine that made me gain weight and I didn't exercise regularly so I ended up having to lose 120 pounds to get myself back to a healthy weight. I have also read a lot about keppra and also others stories in this community about keppra and it seems it is not just you and I going through this because I have seen some stories about gaining weight. It took me almost 2 years to lose the weight I did so I know adjusting your normal eating habits can be hard but if it is going to keep you healthy and make your medicine work better potentially it is worth a try. We will both get adjusted to our new appetites or anything else that comes up. The trial and error period is bizarre sometimes. I hope all is going well otherwise and hope to hear back from you soon.
Candi and Angie, I appreciate all the knowledge I have gained from both of you and will see with other people that submit questions if I am able to assist. I know it definitely can help to talk about things and hope that more people start to realize that and come here for assistance.
I will be around here somewhere just not sure where I will be able to add the most assistance/reassurance to people. but I am more than willing to help.