Candi I believe my bone density scan was about 2 years ago. So we'll see what my doctor recommends. It changes a little each day it seems. I am happy to to have my husband home today. He normally has Wednesday off and has to work one weekend day. I start my full dose of keppra on Thursday night. I will be adding one more pill to my evening dose. I am excited to be almost halfway through the switch of meds. Of course I am also praying that this will even out the side effects sooner than later.
It has been an interesting month for my family. My grandparents on my mom's side of the family have both been in the hospital, both are back at their nursing home now and are okay. I have had this switch going on with my two hospital visits. And just regular cold and flu things have been keeping my nephew and my brother home from work and school. I have told my friends it might be dangerous to talk to me.
I hope you both have a great day and thank you again for all of your advice, support, and for being so genuine and caring. It's sometimes hard to find genuine people in our society today. Keep up the good work (even if sadly you don't get paid for it) you are more helpful than you can even imagine.View Thread
Good morning, I hope that your week is going well. I am getting a few more things settled with my job, which has put my mind at ease a little more. I am coming up on 7 years at my job. The first two years I did more of a data entry job but they started downsizing that department and I wanted to be sure that I had a job to go to and volunteered to move to customer service over the phone taking questions about people's loans. The job has it's days. I love my co-workers and there are some very interesting people that call in. You get every extreme and everything in between with phone calls. Some are very demanding but the other parts that make it hard is all the privacy laws, company processes that change quite a bit, and the fact that people listen to your calls and grade them. So it is a little stressful on a normal day but with all the side effects I tried unit didn't succeed. But I have a few little guardian angels that work with me that helped me the day I decided to go home and wait until until my body starts to adjust better.
all my family and friends have been happy I found this site. I have a feeling it is more likely that they would come and read things but not ask anything, or even a few might come to see what I am asking or saying.
Candi how long have you found that you generally go between bone density scans?
2 days in a row now with no crying and yesterday I got myself motivated to do a little housework and cook a meal for supper:) I know it sounds ridiculous but I have had a hard time getting motivated to do normal daily activities until the last two days really. My poor husband. But I feel like this week is a little of a turning point. I also hope you have a little more traffic on this site. I told a college friend of mine that has had his seizures for epilepsy controlled well for many years that he should join us now and be educated so he can continue not having troubles or see if there are any things he has not been addressing. I hope that you both have a good day.
Hey ladies, Both of you should have had itchy noses yesterday, I have been talking about you to now my immediate family and friends and my in-laws. I have read over both of your profiles and you both have had quite the journeys with epilepsy. Angie I have noticed nose well kids especially kids under about 10 years old are so great to be around. They are so innocent and they don't know how much you go through but are still goofy and just know that hugs are what make them feel better so they give lots of hugs. Candi I had also heard about the bone density problems because I was on tegretol xr for 14 years. My previous doctor had me do a scan about two years ago and at that time they said there was no decrease in density that was showing then. I was on phenobarbital when I had what they thought were convulsions when I was a baby. They took me off of it at age 5 and seizures didn't reappear until age 12 I was on depakote until age 18 when I had my 1st grand mal seizure. I was put on tegretol xr and nuerontin then and now the switch to the current meds at age 32. It's been a heck of a ride but now I am trying to figure out short term disability with my work which is a first for me. My doctor is being great about it. It's the deadlines and craziness through my job that is making me nervous. But my hr person and a coworker of mine are trying to make sure that I am hiting all the deadlines. A plus yesterday was that it was the first day for a while now that I didn't cry. I am a worrier as it is so medical bills, paperwork, a car repair to take care of has all been quite overwhelming. But I am learning to take deep breaths. Thank you again. JenView Thread
Angie and Candi Both of you are amazing and so comforting for what I have been dealing with even with great friends and family I have felt a little bit crazy not having someone who has experienced so many similar things and knows more about epilepsy. I am really drowsy today and for the first time since I have started the switch of meds I got a solid hour and a half nap during the day. I have really struggled to take naps during the day. So I am not sure what each day will hold going forward but with this group, friends and family I think I will get through all of the crazy changes ahead.
Thank you both for the congratulations on the weight loss. Actually since I dropped the tegretol I have lost an additional 13 pounds, not intentionally of course. I currently still at a healthy weight I hope either way it levels out.
Angie you definitely qualify for mother taking on so many children in that classroom. I have been checking out other posts and see that you and Candi have been helping so many people. Bless you both for taking the time you do to comfort others and share your knowledge of the subject of epilepsy. I have told my mom and my husband about you both and told them to at least come to the site to read and participate if they feel that they want to or need to.
Candi I am sure you are a great mom as well and Don't worry i am sure that you will get to spoil some grandkids at some point. I am really curious about the vitamin b6 that I have been seeing you recommend to me and others as well. I feel like a little bit of a pharmacy already because I take meds also for meneiers and a multivitamin that has only 2 mg of b6in in it. But how effective is the vitamin for you at least and do you have any suggestion of what mg bis needed. Thank you both and I am sure I will be talking to you again soon. JenView Thread
I just happened to spot this community group when I was researching side effects, I have never been a part of any group for epilepsy but I honestly haven't had this many issues in my life health wise at least. I had been fairly stable with my seizures the longest periods between seizures being 5 years. all my problems started being more serious when I lost weight. I am 5' 3" and was 261 pounds. my weight loss was intentional of course. some people in my family and friends started having health issues and that and a friend wanted to start a weight loss program together so I said yes and over a 1 year and 9 month period i lost 120 pounds. i felt better than I ever had because I had been overweight since childhood. but this is when my sodium went way low from my previous medicine. My new neurologist assured me that losing the weight was the right thing and that we will get a new medicine started instead. i know it would be stupid but going through this makes you question whether you should just gain weight again and go back to the other medicine. I don't really want to gain it back but it sometimes crosses a person's mind. i was exercising about 4 or 5 times a week. I just want to get back to that. again I want to thank any of you that take the time to read my rambling discussions and especially to those of you that respond that remind me that there are others that have experienced similar things. have a great weekend and happy mother's day to all the mom's out there. View Thread
I really appreciate you responding. Each day seems that one thing remains steady which is that mornings are the worst time of day for me. my logic of this is because I take the dilantin, keppra, and gabapentin all together at night and in the morning. by the time I get to the afternoon I am feeling the best. I did check with the pharmacy about the shaking and anxiety because I was not sleeping well. they recommended melatonin for sleeping and said that sleeping more should help with the other side effects. I have slept more since I got the melatonin. I had to add a morning pill yesterday of the keppra which I think might be helping with the anxiety a little. I know it is different for each person and I luckily have great friends and family that listen to my anxious jabbering. It is very slight but seems to get a little better with each day. it is just frustrating to not be able to gather your thoughts quickly and to feel like you have to have other people around in order to function somewhat normal. I have great people in my life constantly checking on me so don't worry about me to much.View Thread