My husband has recently been diagnosed with having pseudo-seizures. They are usually triggered when he has an anxiety attack or when he is very stressed. He is also conscious during the whole thing and can carry out full conversations with you while having one. Seizure meds don't help him and anti-depressants don't help the anxiety issue either. He was informed that if he can get his medical marijuana card he would hopefully see results in the anxiety and seizures. He is concerned that there might be more to the seizure disorder but cant quite figure out what. I am also concerned that these might eventually turn into full blown seizures some day. I do thankfully have medical training and i know what to do if he does but we have 2 young boys and I don't know how to tell them that their daddy is having a seizure and he'll be okay. Any tips on how to help him figure out whats really going on? We have seen numerous Dr's and shrinks and we keep getting told the same thing. Also how do you explain seizures to a 5 and 2 year old?View Thread
my oldest understands but the lil one is still not the best talker but i think he understands because usually he hugs his daddy and i think that's his way of saying "it's ok daddy i love you"
i have been trying to keep a journal but when he has them in hus sleep it makes it difficult for me cuz i'm asleep too and he doesn't have violent seizures so they don't wake me up. and he cant always get the words to say something to me when they happen.View Thread
we have seen so many drs that i have lost count of all the drs we have gone to see. no we havent done the 24-72 hr EEG walking test and he had an EEG done a couple years ago and nothing came up on it which is weird. we are working on getting him back on insurance so that we can go see a specialist to really get this whole thing under control and really figure out whats going on.
the 2 year old is a little more difficult then the 5 year old when it comes to teaching them things like what to do when daddy has a seizure my 2 year old just trys to cuddle with his daddy and thats his way of telling him you'll be ok daddy i love you. my oldest has started to learn the triggers and the signs of a seizure coming on and if i'm not around he can let me know, which is very helpful.
his fathers day was as good as it could be without being with his family. he was at his grandmas for not only fathers day but our one year anniversary. we had a month apart and that made a big difference with the seizures they increased while he was gone but once he came back they decreased dramatically. he had one on the 4th of july and had one last night.
i try to take as much time as possible for myself but it's not always easy with the boys. the most time i really get to myself is when i take a shower or i'm asleep unless a friend of mine wants to hang out for a couple hours.View Thread
Both my lil guys are too smart for their own good sometimes. But the youngest of the 2 doesn't comprehend fully whats going on with his daddy and that's where it gets difficult. My oldest is a little bit easier to talk to because he understands more. He can comprehend that daddy isn't ok and that daddy needs help and can come get me if i'm not in the room when one hits.It's more a matter of trying to explain how they happen and why... and I think the ways you stated will work I know my boys are smart and they will understand and i keep telling myself that. I;m just, I guess, worried that they're going to get scared because of it.
My husband says thank you for the advice and thank you for wishing him a happy fathers day!!View Thread
Thank you Candi the support is a great thing to have...... Lately he has been having the seizures in his sleep and that has started to worry me. He wakes up very sore and i feel helpless at times because i tend to sleep through them. We are working on getting him his medical marijuana card but have had no luck yet. I will keep you posted as I know more.
The last DR that he spoke to said that he need to keep a journal as well. Only problem is, is that his memory isn't all that great and he tends to forget something I tell him or ask him to do 5 minutes after i say it.
I will look into the books and i hope they will help. I know my oldest will have an easier time understanding but my little guy has seen his daddy seizing and because his daddy is usually sitting somewhere that he can sit on him he thinks daddy is there to play. Thankfully my husbands seizures aren't violent.
I'm in need of venting a lot and it's good to know that I have others I can vent to besides my husband because I know it stresses him out and that's not a good idea.View Thread